Numbness, tingling, electric shocks, paresthesia, allydonia, small fiber neuropathy

[ficus]

Hi pat how are you doing now? how are the feet?

 

[cly09]

You definitely have TMS. Neurological tests and biopsies are useless because you can get positive results. Central Sensitization is just another trendy label for "we don't know"...it's nonsense so don't get hung up on it. I had CRPS which is the mother of all neurological chronic pain syndromes and I'm here to tell you that everything you describe is TMS. Stop searching and looking for reasons to disprove it. Get off the medical merry go round. Neurologists will NEVER help you with this, I can guarantee you that. I strongly suggest you email Dr. Howard Schubiner and he can confirm what I'm saying. Also check out his lecture on YT that is posted here and my success story.

Hi,

I just joined and posted a few questions about small fiber neuropathy. So you are saying even if your biopsy results show severe damage, it could still be TMS? The damage was caused by inflammation from MCAS. This is the one thing stopping me from believing this is my issue. Do you think it’s worth it to get a repeat biopsy to compare, as it has progressed to my whole body now? Thank you

 

[cly09]

I was diagnosed with SFN and have made considerable progress. When I treated SFN as a nerve disease I was in bad shape. When I finally believed it was TMS and started this journey I started seeing results. Progress is slow and non linear but tangible.

did you have a positive biopsy?

 

[ficus]

I was diagnosed with SFN and have made considerable progress. When I treated SFN as a nerve disease I was in bad shape. When I finally believed it was TMS and started this journey I started seeing results. Progress is slow and non linear but tangible.

how are you doing now ? this is super super hopeful for many people expereincing SFN

 

[ficus]

How are you feeling now? Have you had a small fiber neuropathy biopsy?

did you have issues post vaccine ? or just intersted in seeing who did have that / slash TMS

 

[miffybunny]

Hi @ficus,

Yes I had a positive result because it's just a false positive. Peripheral neuropathy is a meaningless symptom in the absence of a pathology (diabetes for ex.). MCAS and long covid are just made up labels slapped on to symptoms of anxiety (in the form of tms). Somatic anxiety mimics a medical issue , but the symptoms are harmless and not indicative of any "damage". Whether the symptoms are nerve pain, seizures, itching, burning etc etc etc., the question is, "what is the etiology?".

 

[cly09]

Hi @ficus,

Yes I had a positive result because it's just a false positive. Peripheral neuropathy is a meaningless symptom in the absence of a pathology (diabetes for ex.). MCAS and long covid are just made up labels slapped on to symptoms of anxiety (in the form of tms). Somatic anxiety mimics a medical issue , but the symptoms are harmless and not indicative of any "damage". Whether the symptoms are nerve pain, seizures, itching, burning etc etc etc., the question is, "what is the etiology?".

Thank you for posting that…it gives a lot of hope to those of us with these horrible issues going on. It’s hard for me to believe it in my own case because of the progress of symptoms and how they are consistently in the same spots (until they spread), but I am going to keep working on it. The other thing is my 10 year old also has
MCAS and that makes it hard for me to believe as well-any thoughts on this? Thanks so much

 

[cly09]

Hi @ficus,

Yes I had a positive result because it's just a false positive. Peripheral neuropathy is a meaningless symptom in the absence of a pathology (diabetes for ex.). MCAS and long covid are just made up labels slapped on to symptoms of anxiety (in the form of tms). Somatic anxiety mimics a medical issue , but the symptoms are harmless and not indicative of any "damage". Whether the symptoms are nerve pain, seizures, itching, burning etc etc etc., the question is, "what is the etiology?".

I also forgot to add I am looking into hidden mold, but I knows lot of people get better with brain retraining despite these things.

 

[miffybunny]

The first thing you need to do is stop going to all functional quacks. That entire alternative industry is a scam. Their labs are bogus, and their "treatments" are expensive placebos at best. Labels make things seem real and permanent, when the truth is they are artificial constructs for the purpose of profit or billing insurance. MCAS, chronic Lyme, Mold toxicity, mercury toxicity, multiple chemical sensitivity, candida, Epstein bar, inflammation etc etc etc are allllll buzzwords these charlatans use to fear monger and exploit anxious people. I've mentioned this before, but my father was an allergist for 40 years and he said in all his life he never heard of such a thing. It's a garbage diagnosis. Not real. People get better form all of these symptoms because it's all functional anxiety. Once they "treat" it as a psychological issue, and not some kind of medical pathology, the symptoms cease to have a purpose and thus they cease to exist. We live in a terrible timeline of social media propaganda. It's an epidemic of fear.

 

[cly09]

The first thing you need to do is stop going to all functional quacks. That entire alternative industry is a scam. Their labs are bogus, and their "treatments" are expensive placebos at best. Labels make things seem real and permanent, when the truth is they are artificial constructs for the purpose of profit or billing insurance. MCAS, chronic Lyme, Mold toxicity, mercury toxicity, multiple chemical sensitivity, candida, Epstein bar, inflammation etc etc etc are allllll buzzwords these charlatans use to fear monger and exploit anxious people. I've mentioned this before, but my father was an allergist for 40 years and he said in all his life he never heard of such a thing. It's a garbage diagnosis. Not real. People get better form all of these symptoms because it's all functional anxiety. Once they "treat" it as a psychological issue, and not some kind of medical pathology, the symptoms cease to have a purpose and thus they cease to exist. We live in a terrible timeline of social media propaganda. It's an epidemic of fear.

That’s the first time I’ve heard that about mold, so thank you for that perspective. That’s interesting about your dad as well. Yes, social media propaganda is definitely out of control for sure. So many of us desperate to get better and failed by conventional medicine are turning to alternatives with no real evidence behind it.

 

[miffybunny]

Yes, these industries KNOW that the conventional medical model has nothing to offer, so they exploit desperation to the hilt with their unproven nonsense. There is an entire industry revolving around autism for ex. It's all quite predatory.

 

[ficus]

Hi @ficus,

Yes I had a positive result because it's just a false positive. Peripheral neuropathy is a meaningless symptom in the absence of a pathology (diabetes for ex.). MCAS and long covid are just made up labels slapped on to symptoms of anxiety (in the form of tms). Somatic anxiety mimics a medical issue , but the symptoms are harmless and not indicative of any "damage". Whether the symptoms are nerve pain, seizures, itching, burning etc etc etc., the question is, "what is the etiology?".

yes - i had a positive biopsy with less fibres for small fibre neuropathy and so thats caused much stress /

 

[ficus]

did you have a positive biopsy?

how are you doing now after some time - was it tms for you?

 

[cly09]

how are you doing now after some time - was it tms for you?

i just started my journey

 

[ficus]

I would suggest getting a second or third opinion. If you're in the 5th percentile then that shows structural degradation of your nerve fibers, no? Personally, if I could have some sort of confirmation of neuropathy I'd be going the Pirenzepine route to try regrow the fibers, then ARA 290, etc. There are some unconventional treatments for neuropathy, but if it's TMS it'll do nothing for you.

The only real test is the skin biopsy, but even then, they need to test you once, then test you again a year later and compare the density of the nerve fibers and again a year later.

I've done so much research on this, studied articles and have been on every FB Group/reddit/forum available, and every sufferer says their symptoms change daily - one neurologist claimed "The only thing predictable about neuropathy is that it is unpredictable". I've been to Neurologists where I legitimately knew more on the subject than them. Sucks I can't get the test in Australia and Corona makes it impossible to fly to Europe. I would hate to pursue this TMS route for years and years just to find out it's useless for the structural damage.

so curious how you are doing now? mine is the same story - i am doing the program and getting some results although it constanly floods back and i am not always aware of why - how are you though=? I hope better as the years have gone on

 

[Sunrise]

Hi all.

OP here. Checking back in to say I am 100% with no symptoms.

My biggest bit of advice is surrender to the symptoms, stop chasing diagnosis and accept it. Expose yourself to normality - back with friends, public, people, hobbies, etc. Stop seeking reassurance. It might not be this year, it might not be next year, you will have bad days, you will have VERY BAD days.. but it will pass. If it passed for me, it will pass for you. I spent so much money at so many health professionals because I refused my believe my mind could conjure all these physical symptoms.

What a tough time in my life this was. And there have been other tough times since (unrelated) which have caused me to completely forget about this saga. We're always going to be faced with battles in life and we can't drop everything and wallow in depression, we have to keep pushing. No one gets through to the end of life without a few chinks in the armor.

My DMs are open if you want to talk.

Thanks

 

[ficus]

So s

Hi all.

OP here. Checking back in to say I am 100% with no symptoms.

My biggest bit of advice is surrender to the symptoms, stop chasing diagnosis and accept it. Expose yourself to normality - back with friends, public, people, hobbies, etc. Stop seeking reassurance. It might not be this year, it might not be next year, you will have bad days, you will have VERY BAD days.. but it will pass. If it passed for me, it will pass for you. I spent so much money at so many health professionals because I refused my believe my mind could conjure all these physical symptoms.

What a tough time in my life this was. And there have been other tough times since (unrelated) which have caused me to completely forget about this saga. We're always going to be faced with battles in life and we can't drop everything and wallow in depression, we have to keep pushing. No one gets through to the end of life without a few chinks in the armor.

My DMs are open if you want to talk.

Thanks[/QUOT
So so happy for you!!!!! can you remind us here what was going on for you and how long it had been ?

 

[Alouqua47]

Hola, me alegra mucho saber que te has recuperado por completo; me das un rayo de esperanza. Incluso antes de esto, siempre venía a leer tu historia cuando me sentía desanimada por mi situación. Tuviste muchas de las molestias físicas que tengo ahora: sensaciones corporales erráticas, hormigueo y cosas así.

La diferencia es que llevo un año lidiando con un síntoma principal que no desaparece y que me causa mucho dolor día tras día. De hecho, hoy ha sido uno de esos días difíciles; para que te hagas una idea, cuando el síntoma está en su punto álgido, incluso se me hincha la mano.

Espero poder superarlo también. Eres una gran fuente de inspiración. No sé si podré simplemente "vivir y seguir adelante"; no lo creo. Pero al menos sé que responder bien a los síntomas fue lo que te llevó a recuperarte, ¿verdad? ¿O usaste alguna técnica especial, como el seguimiento somático?

 

[Alouqua47]

"I think it would be really helpful for others if you wrote your success story on the success forums."

 

[ficus]

I had neuropathy and healed. You have to get used to setbacks. They are inevitable, and panic makes them worse. Tgirl is right, your anxiety only feeds your pain. Fear is your main enemy, learn to recognize it when you are fearful. We all have fear and anxiety, there is nothing wrong with the emotions themselves, but allow them to absorb you is wrong. Meditation is what helps us stabilize our nervous system so we sustain bouts anxiety and fear.

You had neuropathy ?? how long did you have that before you found this work and how are you now? do. you get the symptoms still