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weird pelvic symptoms

Discussion in 'General Discussion Subforum' started by kimaya, Jun 2, 2018.

  1. kimaya

    kimaya Newcomer

    hi i have been having health anxiety since childhood ,when i was 17 i started having panick attacks which i though was due to heart condition as i had no idea what panic attacks are i took me long time to get convinced but after therapy and medication my breathing came back to normal and i stopped medication life was good for 3 years with some random panic here and there in 2017 i remember i had some problem with my eyes (floaters and weird feeling) went to doctor thrice and it went away
    in jan'18 i had a uti i was on a holiday so it wasn't treated properly came back test confirmed uti took antibiotics i was fine just seemed a bit off took more antibiotics it went away but that a bit odd feeling stayed i was uti free in Feb which freaked me out since i was still feeling off i thought there has to be something did the worst thing googled came to know about ic and thought my life was over i was getting suicidal went to more doctors had alot of cultures to rule out infection and ultrasounds and blood test all tests came back normal till then i developed weird pain in vagina that comes and goes then focus shifted to vulvodynia googled like crazy i used to google 5 hours day and those forums are a very dark place to be i used to cry everyday thinking why it's happening with me at such a young age then i got to know about tms and iam hopeful.
    my current symptoms include
    burning vulva pain on and off
    shooting pain down urethra sometimes
    pubic boon heaviness and pain
    pain at start of urination

    also the recent urologist i went to wanted to do cystoscopy with hydro which my mom refused as i have no bladder pain or urgency and i could make matter worse with a false diagnosis as she is aware of my health anxiety
    now my mind is stuck to what if i have inflammation , what if i have some virus , what if i never get my life back
    also i have started journal-ling and sep but the main issue is iam having semester off holidays and i mostly stay at home all day and i have no distractions iam constantly obsessing over pain about how much water i drank how much times i went to pee etc
    anyone who recovered from these symptoms would be a huge help.
    sorry for such a long post had to vent it out.
     
  2. Bodhigirl

    Bodhigirl Well known member

    Oh, welcome! I just signed on and saw your post... Looks like you were just here!
    I am so sorry for your suffering and so glad that you found us.
    We have a wonderful structured program most of us have done at least once... I urge you to begin. The fear of the fear, the fear of the suffering, definitelyl causes our suffering. Please never apologize for writing long posts or venting here. We are here to listen, give support and receive the same support whenever we need it.
    Keep reaching out. Read Sarno's book. Once you are convinced that fear/rage/grief/anxiety are the cause of physical symptoms, they have far less hold on you. Trust it. My favorite Sarno story is saying, "The unconscious mind gave us symtoms the way that a magician makes you think that a rabbit appeared in an empty hat. There is no magic. There is no rabbit." That is my mantra. No rabbit in the hat. There is nothing wrong with me but my thinking and feeling and my fear of my own existence.
    Giving you a virtual welcoming hug,
    bg
     
    westb and Lizzy like this.
  3. kimaya

    kimaya Newcomer

    thank you for motivating me iam just scared of what if it goes worse and its consuming me
     
    Bodhigirl likes this.
  4. NicoleB34

    NicoleB34 Well known member

    i have all these symptoms. they've thrown around the terms Interstitial Cystitis, Pelvic floor dysfunction, pudendal neuralgia, vulvodynia....
    It's all the same stuff though. Hypersensitivity in the pelvis and possibly abnormal muscle tension. This is all a result of TMS and an overactive nervous system. My symptoms wax and wane, so i know it's not true nerve damage. Also, antiinflammatories generally dont work for these conditions. It's more in the nerves than anything. using mind/body techniques can help this. i'm 30-50% better.
     
  5. NicoleB34

    NicoleB34 Well known member

    btw, the biggest thing that has helped me, is to slowly do things that i used to fear caused me pain. Slowly getting your life back WILL train your brain that activities are safe. You might get a bit of flareups first, but dont worry about it. I keep having to tell myself "yes, flares suck, but they always calm down eventually". Keep telling yourself that. Fear feeds this condition. The pelvic floor is very linked to the autonomic nervous system, so being anxious, stressed, or constantly in a state of fight or flight will really affect the pelvis.
     
  6. yoyo12

    yoyo12 Peer Supporter

    I'm experiencing the exact same right now.

    This is how I keep thinking, I was able to conquer other tms symptoms but now that I got over them I'm obsessed with pelvic pain symptoms, panicking it's a prolapsed bladder or uterus or something. I want this to end so bad...
     
  7. Mary80

    Mary80 Peer Supporter

    Welcome!
    I know that I report only my experience and that perhaps for others it was not so .. but only one thing I want to tell you .. before knowing this forum ... I arrived at the site of the magnificent Dr. Shubiner.
    I have done many medical and non-medical courses ... I have read many books on tms .. but only with the program of Dr. Shubiner I have seen results. It was hard not to think it's simple ... very hard! But it works ...
    I bought the Doctor's book and I started to follow the program (alone) ... it was hard and I thought nothing was happening ... instead after a few months ... a little miracle and day after day the symptoms are going away.

    At the moment my worst problem is anxiety .... but the burning, back pain, neck, cystitis, dizziness ... everything is going away ..symptoms I had for years!
    Mary is winning 10 to 1 and this 1 is anxiety ...
     
    HattieNC likes this.
  8. kimaya

    kimaya Newcomer

    iam same my fear of it getting worse consumes me
    what are your symptoms ?
     
  9. kimaya

    kimaya Newcomer

    thank you mary i had two good days and i was so happy but symptoms returned today and iam depressed again :(
     

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