How I healed from a myriad of symptoms

Feelings and emotions are a necessary part of life. Becoming a robot is not the way to relieve mind-body symptoms. The key is balancing your feelings and emotions - and not letting them consume you. Otherwise, we end up in persistent fight-or-flight mode. This is where mind-body symptoms come in.

I’ve written quite a bit about Ehlers-Danlos; I believe this more recent post may be helpful: https://www.tmswiki.org/forum/threads/need-more-help-unable-to-convince-my-subconscious-this-is-all-tms.25892/#post-134115 (Need more help unable to convince my subconscious this is all tms)

 

I see, hey i wrote you in private messenger would
You be willing to read it? Thanks so much

 

To make sure everyone benefits from these discussions, I’m always very happy to respond to the threads on these message boards. All my personal experience and advice regarding EDS can be found in these posts. Happy to answer any questions based on what I’ve posted!

 

What does that mean?


Does that mean you don’t answer in messenger, do you want me to copy and paste it in here, it’s pretty heavy i don’t want to trigger anyone
What I asked in messenger isn’t anything you posted about on the forums

thanks

 

DMs don’t allow other members to benefit from the discussion and I don’t typically engage via DMs. It's tricky as well because I'm not a medical professional or a health coach, and I can't always confirm what's structural, what's a mind-body symptom, and what's the result of both - and I do want to make sure I'm honest about that. Sometimes the DMs I receive include aspects that I’m not able to address the way people expect. I can, however, speak to my own experiences where there’s alignment between my story and another person’s.

All that said, I've responded to your DM.

The advice I give and personally live by is aligned with what I've posted about EDS on here in terms of balancing emotions as well as accepting uncertainty, the possibility of having a structural issue, and that some things may not be perfect. However, even if something is structural, emotions can amplify everything!

 

Hi @Dorado

Your story has been very inspirational to me and I keep on referring to it when I'm losing hope. Thank you for being here for others!

I'm having lots of trouble with truly letting go of the healing obsession; mainly because when I do let go for periods of time, symptoms tend to come knocking even harder on my door. And then I start to really believe again I should do something differently and start to break my head again what that could be. Understandably. But I'll get there some day...

What would you say is the biggest gift that came out of all that suffering for you?
I bet you wouldn't want to go through it all again, but there usually is a silver lining for those who pull through...

And how are you doing with the left-over generalised anxiety? Is it still getting milder?