thanks for all the compassion, and the replies.
Where I'm coming from is a sense of futility. I've read books, done my "homework". I haven't been idle this past year, but when I see myself coming up on a big annual concert in my musical life, during which UU made me struggle last year, and I've done all these things over the year, and I'm feeling the same way coming up on that concert again, I feel like there's no point in believing that certain strategies are going to work. I first experienced UU around 1997. It has been pretty intermittent but the last couple years, despite all I know about TMS, it's becoming more and more constant. It's pretty logical to say that if I could have figured out how to deal with it by now, I would have. because I've tried ALOT of things, at length. So that's why I get to thinking, very practically: my life as it is now is what I can logically expect it to be, into the future. if I am totally unhappy with how I feel, then a logical conclusion is: dont keep living. It's not horribly emotional judgment, it's practical.
with how stubborn this symptom is, it would be easy to conclude it's not TMS. but I've done all the doctor checks. And I had equally crippling TMJ, for ex., in the 90s. so Ockham's Razor suggests it IS TMS.
It's logical to conclude that nothing I've tried over the past 10 years is going to work, because it would have by now.
I DO know that I beat jaw pain by a) approaching it as TMS and b) chewing gum. without b) I dont think I would have beat it. I also used squares of gaffer tape to interrupt my symptoms of upper body soreness. My brain is wired that I just cant ignore these symptoms. I work myself into a feedback loop tizzy. I needed something that would drive that wedge between my symptoms and my mental reaction to my symptoms. without these physical interruptors I think I would be at the same point of suicidal thinking with those symptoms. but instead when they recur, I have an ace in the hole I can trust and rest on.
so that's why I keep coming back to the "physical interruptor" approach. it's something I havent tried for UU yet, because I havent found an interruptor that really works.
I really need help brainstorming what it might be. It may literally save my life.
I think the symptom of UU is especially hard to deal with because I HAVE to make a choice to react to it constantly, which is WHEN to go to the bathroom. Some days I just give myself all the pseudo relief I want...which is to go like every 30 minutes. some days I'm up for a fight and I do the ignore it for 90 minute intervals thing. other days I'm just not up for that mentally. but having to pick between these approaches forces me to stay engaged with the UU pain in a way that other symptoms cant force me to be engaged. I think that's why UU is the last refuge of my stubborn TMS. I cant disengage from it. because you gotta go to the bathroom. it's a real physiological need. all the other TMS symptoms are physiologically independent, like physiological fictions. This one piggybacked on my kidney stones for a long time, until my doctor disproved that with multiple scans and such. but now it's just piggybacked on the actual urine cycle of my body.