Hi everyone
I have a conundrum. I have dysautonomia, which I have managed to greatly improve through TMS work. I know that I can heal, but I lack self belief. Part of this is because I have one very scary symptom that I struggle to overcome.
When I sit, stand, or bend, my heart rate and BP spike reasonably high and I get a real rush of blood through my chest which causes an intense pressure and squeezing sensation. It takes my breath away and I gasp for air. I'll be honest, I'm very afraid of it. I've had all the checks, there is nothing dangerous, it's just typical POTs/dysautonomia. However the Dr did say 'just take it easy when it happens and don't bend too fast' in case the pressure in my chest goes too high causing strain on my heart, e.g. standing still, waiting for it to go, slow bends or pausing while it calms down (it only lasts 10-20secs). I'm obsessed with finding an answer though and it scares me a lot - i think about it constantly (and yes, I know this is a problem.)
So, I need to find a way to overcome the fear and reiterate safety without ignoring my Drs sensible advice. My question is this - I know I need to overcome the fear, but I don't believe it is sensible (at least initially) to do this by bending sitting etc quickly and with no thought in case my BP spikes too high. Has anyone got any tips to send my NS the message that this symptom is safe without pushing through it, antagonising it etc? For example, would it work for me to accept the symptom, allow it to be there, stand still, or move slowly while it happens but relax and not care that it is happening, whilst not feeling pressured to change it, push through it or bend faster etc? E.g. not caring that it is holding me back or uncomfortable because it is temporary?
All thoughts welcome and I hope I am making sense
Sophie
I have a conundrum. I have dysautonomia, which I have managed to greatly improve through TMS work. I know that I can heal, but I lack self belief. Part of this is because I have one very scary symptom that I struggle to overcome.
When I sit, stand, or bend, my heart rate and BP spike reasonably high and I get a real rush of blood through my chest which causes an intense pressure and squeezing sensation. It takes my breath away and I gasp for air. I'll be honest, I'm very afraid of it. I've had all the checks, there is nothing dangerous, it's just typical POTs/dysautonomia. However the Dr did say 'just take it easy when it happens and don't bend too fast' in case the pressure in my chest goes too high causing strain on my heart, e.g. standing still, waiting for it to go, slow bends or pausing while it calms down (it only lasts 10-20secs). I'm obsessed with finding an answer though and it scares me a lot - i think about it constantly (and yes, I know this is a problem.)
So, I need to find a way to overcome the fear and reiterate safety without ignoring my Drs sensible advice. My question is this - I know I need to overcome the fear, but I don't believe it is sensible (at least initially) to do this by bending sitting etc quickly and with no thought in case my BP spikes too high. Has anyone got any tips to send my NS the message that this symptom is safe without pushing through it, antagonising it etc? For example, would it work for me to accept the symptom, allow it to be there, stand still, or move slowly while it happens but relax and not care that it is happening, whilst not feeling pressured to change it, push through it or bend faster etc? E.g. not caring that it is holding me back or uncomfortable because it is temporary?
All thoughts welcome and I hope I am making sense
Sophie