Ic

she333 said:
Just wanted to say hi. I'm battling the IC/TMS too! At times it gets so depressing . I feel very lucky because I used to have a lot of pain and I often don't have any now. Sometimes just a little and that's usually musculoskeletal in the area. But yeah I'll have periods of time where I just constantly have to go to the bathroom and it is so so uncomfortable. I do notice it happens more when I'm stressed out so I can see the connection to emotions. Other times it just seems to happen, but I know we can be preoccupied with it. I love seeing that others have recovered. I try to remind myself that I have definitely improved too and have the right to focus on other goals I want for myself.
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how are you doing :)
 
Ok. How are you? Thanks for asking! Some really good days, some not so good ones. Some days really feeling like I need to go to the bathroom when I know I don't which is annoying. I've really been working on and I think making some progress in believing that its nothing and not caring about it. I had less days where I find myself running to the bathroom again and again. There's been a lot of anxiety which I know is feuling things. I started going to meditation once a week, & I am working with someone from the pain psychology center. I also found two more people online that improved from IC with Tms methods so that always helps me. How's progress going for you? Oh I also started reading a Steve ozanich's book. That has helped because he does a good job of describing just how it difficult, long and frustrating his own journey was. And that has helped me to look back when I am really feeling frustrated or upset about all this, and see how far I've come when I compare myself to how I was last spring or summer. I mean now there are days or sometimes parts of days when I'm really living.
 
Hi...
I really hope you get this message...it's been a few years since you left this. I saw that you use DNRS (which I"ve been using for 8 months). I hope to be able to find you on the DNRS site too! Anyways, I haven't seen much on DNRS helping interstitial cystitis...and would love to hear if and how it's helped you!? I have many chronic "ITs", 24/7...but the pain i've been having from my IC is unbearable. Would love to connect with you!
Thanks so much,
Diane :)


Grateful17 said:
I have used several things to recover. A Neural Rewiring Program, Tapping and TMS work. I would guess that I am about at 75% recovered. What is remaining is some strongly held food allergy symptoms that are basically conditioned responses. So I am still recovering and strive for 100% eventually. My symptoms from food allergies were what I had the most fear of and the things that scare us, also help to make those reactions stronger (deeply rooted neural networks in our brains). But I did not know all of that at the time.

The Neural Rewiring program I used was something that I still do, as it helps me so much and I love it. It is called DNRS (Dynamic Neural Retraining System.) Many people that do it, can obtain full recovery within 6 months to 1 year. Then some take much longer, but just like TMS, some people who do DNRS experience Book cures too and get well really quickly.
DNRS teaches you how to stop the fight/flight/freeze stress response that keeps our trauma loops going. It uses NLP (neuro-linguistic programing), self guided visualizations, CBT, and many other things to literally rewire the over protective stress response of the subconscious and limbic brain that are causing the reactions in the first place. You can check it out at dnrsystem.com

Tapping really helped me too. I hired a Faster EFT practitioner to do private Skype sessions and we went through some of my past traumas and cleared them out, which gave me some relief of my physical symptoms.......(pretty cool)

Then I found out about TMS just this summer......DNRS does not call it TMS, they call it a Limbic System Injury. (Same thing). There are many things you can do to recover. And something that will help you tremendously is to practice TRUE INDIFFERENCE. Which is to live your life like the symptoms are not happening. The more you fight it or let it frustrate you, the more you fuel it. Acceptance, and not fighting it, will help. When we do this time after time, the brain catches on and realizes that it does not need to distract us with the symptoms anymore.

Your symptoms are coming from the unconscious/subconscious/limbic part of your brain, so when the Conscious brain says........"oh this is bad, or UGH, when will this ever stop" this makes things worse. We have the ability, with our conscious brain to interrupt that stress response, instead of feeding it.
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DianeD said:
Hi...
I really hope you get this message...it's been a few years since you left this. I saw that you use DNRS (which I"ve been using for 8 months). I hope to be able to find you on the DNRS site too! Anyways, I haven't seen much on DNRS helping interstitial cystitis...and would love to hear if and how it's helped you!? I have many chronic "ITs", 24/7...but the pain i've been having from my IC is unbearable. Would love to connect with you!
Thanks so much,
Diane :)
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I’m here too - completely healed IC using these techniques.

You can message me if you like!
 
This is an interesting thread, I too have bladder pain and pelvic pain. I found a good doctor who ruled IC out and told me that is is psychosomatic. And I am usually doing well. I follow the program of Dr. Schubiner since summer, though I am not doing it daily. If I am doing fine, I always think that it is all gone. But it keeps coming back and usually there is a good reason. I will have a look at the DNRS. And then I would like to know how you, CGP get rid of your bladder problems?
And another topic that came up in this thread: food as trigger. Everyone who had a look at the IC network website is of course familiar with the IC diet. I tried it several times, each time for several months. With no effect. Though the only effect is that I sometimes start to be afraid of eating the ‘forbidden’ foods, like tomato, chocolate or having coffee. I know that it is stupid, but sometimes this pops up and when it does, it indicates that I am in panic and I really have to get back to the TMS program.
 
Time2be said:
This is an interesting thread, I too have bladder pain and pelvic pain. I found a good doctor who ruled IC out and told me that is is psychosomatic. And I am usually doing well. I follow the program of Dr. Schubiner since summer, though I am not doing it daily. If I am doing fine, I always think that it is all gone. But it keeps coming back and usually there is a good reason. I will have a look at the DNRS. And then I would like to know how you, CGP get rid of your bladder problems?
And another topic that came up in this thread: food as trigger. Everyone who had a look at the IC network website is of course familiar with the IC diet. I tried it several times, each time for several months. With no effect. Though the only effect is that I sometimes start to be afraid of eating the ‘forbidden’ foods, like tomato, chocolate or having coffee. I know that it is stupid, but sometimes this pops up and when it does, it indicates that I am in panic and I really have to get back to the TMS program.
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The most helpful thing for me, probably, was just deciding to be done being a victim. Even though it’s not the nicest, what was most helpful for me was taking on a judgy mindset about all the people in the IC forums, and deciding not to be like them - maybe it’s different now, but a lot of them were very dismissive and almost were bragging about their pain, listing their surgeries in their signatures and slamming anybody who suggested non-medical/mental options. Helped me distance myself from them. Stop reading those forums, if you’re on them, and put away the diets and meds.

It’s also important to focus hard on things that do excite you, despite your pain - I’d just enrolled in art school and started planning a trip to Miami. Whenever i felt awful i would think of my mom, who is the opposite of our personality type, and how she would see situations i was in. I also confronted some things with my husband that I’d been avoiding, and saw a mind/body doctor, Dr. Stracks. who confirmed my pain was psychosomatic.

It’s also helpful to keep a note in your phone of quotes, stories, and inspirational passages from books to look at whenever you’re feeling doubtful.

You can message me if you have more questions...also please forgive the weird punctuation - this iPhone glitch is making me crazy!)
 
Dear CPG, so we share the experience with the IC network! Though I had a very good conversation with the founder if the network who agreed that I don’t have IC. But at the network forum I always felt like I am doing all wrong, because I never could find my trigger food. I never took medication, now and then a pain killer, but nothing strong and never more than once or twice a month.
And I also agree that it is important to do things one is excited about. Usually my work is exciting for me, but right now I have so much tedious overwork that I really get angry inside ... and feel like a victim, although it was me who agreed to the extra work. So, basically I feel trapped at the moment, also with an upcoming surgery (thyroid gland).
I think I will message you, I have some questions ... thanks!!
 
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Time2be said:
Dear CPG, so we share the experience with the IC network! Though I had a very good conversation with the founder if the network who agreed that I don’t have IC. But at the network forum I always felt like I am doing all wrong, because I never could find my trigger food. I never took medication, now and then a pain killer, but nothing strong and never more than once or twice a month.
And I also agree that it is important to do things one is excited about. Usually my work is exciting for me, but right now I have so much tedious overwork that I really get angry inside ... and feel like a victim, although it was me who agreed to the extra work. So, basically I feel trapped at the moment, also with an upcoming surgery (thyroid gland).
I think I will message you, I have some questions ... thanks!!
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Please do message me! I would be interested in sharing with you an experience I had with a thyroid procedure that kept me from having to have surgery, in case it could help you...

I think the most important thing is to just switch your mindset from being on the defense/victimized, to being on offense, and taking charge. Fear < Love. Closed < Open.
 
I thought I would jump in! I too have been experiencing very disconcerting and depressing bladder symptoms that have now been plaguing me for nearly two years. I'm sorry to hear of others suffering but I have found reading these forums very helpful and comforting.
In young(ish) men, bladder infections and particularly IC are fortunately uncommon. I remember suggesting to a doctor, the possibility of having IC and he practically laughed in my face. I have been through many tests and nothing yet has confirmed any real diagnosis other than a very vague and confusing 'Chronic Pelvic Pain Syndrome' or 'Overactive Bladder.'
What I know for certain is that my symptoms are far worse when I'm stressed or anxious and they appear to have started during a very emotionally stressful time in my life.
Having read a lot now about TMS, it does seem to make a lot of sense and I have many of the classic character traits.
I thankfully don't experience pain but the frequency and urgency can dominate my life and it's extremely hard to push it out of my mind and try to have a normal existence.
Every time I start thinking about my situation in a negative way or self-diagnose myself with something like a prostate problem or a urethral stricture (for example) I can become obsessed and that makes matters worse.
Before the bladder problems began, I had breathing difficulties and that never turned out to be anything serious and it eventually disappeared so I can only assume it was psychosomatic.

I would love to hear from anyone who can relate.
 
Dear anxiousone,
First of all - and I think others have already told you - your profile name is not really helpful for you. I would change it, if I were you.
What you describe is normal for people with TMS that shows in the pelvic region and the bladder. You had checks, I guess. An urethra stricture or prostate infection as well as other infections (chlamydia etc.) can be ruled out by a urologist. And I guess you have done this. If so, you can be sure that the frequency etc. is psychosomatic. You had these issue for two years, that is not such a long time as some others here. So, I think your have a very good chance of getting rid of it by following one of the available programs. And don’t be frustrated because of relapses or things are not going so fast. You have to be steady, give yourself time and of course, you have to address this fear issue.
 
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Dear Anxiousone, I think my first reaction to your profile name was maybe to harsh, I am sorry, I didn't intend to hurt you. I should have said it in a nicer way. But there is something to it, calling yourself Anxiousone you are keeping yourself in a victim position. I don't think that this is helpful. Although I also think that mere positive thinking is a bit overrating - just calling yourself Couragessone will not as such help you, but it will indicate a change! There need to be actions guided by courage and trust. I know what I am talking about, I do struggle at the moment. So, be sure, you can heal yourself. And during this process you will not stay to be the Anxiousone !
 
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