Follow along with the video below to see how to install our site as a web app on your home screen.
Note: This feature may not be available in some browsers.
RogueWave, are you happen to know ACE1 from tmshelp forum?
I have written very little here, but I have read a lot. This forum seems edifying to me, not like many others I've seen in the dump that is internet, so here it goes:
My personality is TMS total: perfectionist, self-demanding and conscientious, always looking to be loved, very responsible, I always follow the rules strictly and I have difficulty letting it go. I found this description in a success story here, and almost literally I had to copy it, because I'm like that!
Part of my story is in my profile. My story started with fears and worries, and then the rest came.
I think I've already read "everything" on the internet ... yes, everything. I'm fed up of reading. I also have a mountain of books mentioned here and there, and another mountain of success stories of all kinds, of people who have been cured of the most rare and difficult things, even ALS (read Ben Johnson for example, but there are more cases on Terry Wahls page).
Today I feel very sick all day, every day. And I am constantly monitoring and evaluating my sensations and the state of my body, and feel in a very bad state. I often think I'm collapsing.
Now I am enduring the following:
- maintenance insomnia, I fall asleep easily but at 3-4 hours maximum awake and it's over.
- logically I'm tired and I do not have much energy, but I can not sleep more than I get! (This makes me very angry)
- my head is heavy, dazed, as derealized, as after a night of partying and alcohol, you understand me. I'm not focused and sometimes I do not remember things that just happened a minute before
- sensation of fizzing in the body, like a strong pulse, not localized but general, in the trunk, like shaking inside. this is particularly disgusting
- general muscular tension, more pronounced in the neck
- I have a nervous twitch in my upper lip, for a year now
- constipation, but this is since childhood. but it was never a problem. sometimes interrupted by very frequent stools. I really do not know if it is constipation since there is no consensus definition of constipation.
- ocasionally the tip of the tongue tingles and some letters get stuck in my mouth
- sometimes I feel that my left leg becomes numb, it is a sensation, it is not something objective, the leg works normally to the movement, to the touch... This was my first important symptom.
- then followed the hand and arm on the same side, with a similar feeling. This scares me especially.
- I get the impression that my hands are shaky but I do not see it, it is more an internal sensation.
- I'm sad and crying every day, my life has become very dark
Before these symptoms manifested, I read them and I feared them... I know this with certainty. Chance?
In all this time, I have seen several general practitioners, including alternative medicine, my blood tests, vitamins, etc., are normal. At first I was afraid of MS, three different neurologists saw me and they did several MRIs and everything was normal. Then I started to fear parkinsons. In the last year I have seen three other private neurologists, two of them specialized in parkinsons, and in his opinion what I have "only" severe depression and anxiety. The last neurologist was 4 days ago. curiously after that appointment I slept acceptably, and the next day I was emotionally well, although my physical symptoms were there.
None of the neurologists showed a glimmer of doubt. All my symptoms are listed on Anxietycentre.com, yes. But I'm still sad and worried. I also know that there are so many stories of people diagnosed at 5 years even 8 years since the first symptoms ... and this has me in this horrible limbo! On the other hand, sometimes I think that with so many symptoms that I have, if there is something wrong, doctors should have seen something, or not?
Family and friends (wich I have less and less) do not understand how I am not happy and I forget this nightmare, but I can not because the symptoms continue and the vicious circle continues, and I feel more and more alone, misunderstood and isolated. A week ago I dreamed that my face hardened and I could no longer smile, it was horrible! I woke up with my heart jumping.
I also have an energetic therapist, something similar to Reiki, who does not feel anything altered or wrong with me, just my thinking. but the thought can really make us sick, is not it?
The cycle is: start a new technique (meditation by J.Dispenza, Healing Codes by Alex Loyd, TRE ... you name it) practice 4 days and goodbye, as there are no results. The other cycle is: 1-2 practicing the independence of the result, the letting go, the positive affirmations, you name it ... then return to fear and find an explanation for my symptoms on the internet. I have been doing this for 3-4 years, gradually getting worse. Especially the last year and a half has not killed me because I have children who need their mother.
I know that the key is the mind. And this applies in all cases, whatever the problem, physical or mental. The mind is idiotic: it is not at my service, it is destroying me. But I can not make myself stronger than my mind and master it.
My story is not typical of TMS. What the hell is wrong with me? How do you see? I have a horrible disease that can not be diagnosed early yet? What I can do?
I have a really really big problem.
@RogueWave Thank you for your posts on this thread. I find them extremely valuable. It should be noted that it's the sympathetic nervous system stuck in hyperarousal (SNS: fight-or-flight response), not the parasympathetic (PNS: restores calm, homeostasis). The SNS stuck in hyperarousal idea is new to me, and it rings true. The idea that the symptom itself (pain, fear of pain, worry about never getting out of pain, etc.) becomes the fuel that keeps the SNS hyperarousal wheel turning makes sense too. Great post, thanks again.
Apologize for the incorrect correction on that. I was thinking if the PNS was overly activated, a person would experience more peace and calm, not symptoms. Are you saying that chronic SNS arousal sort of smothers out normal PNS activity?
Roguewave, first, thanks for your slapOf course, I understand the meaning. My mother tells me the same thing! According to her when a person is drowning in water due to his lack of calm, it is best to slap him in the face and then help him out. She is a bit gross woman who grew up and lived on the edge of the sea in a fishermen family, so she will know what she says!
The visit with the neurologist yesterday was totally satisfactory, he explored me taking his time and said that he saw me very well in all aspects, and that the normal and healthy body does strange things at times, but that my things do not fit with any disease, and that I have been sick for a long time, 3 or 4 years, and that if there was something wrong, it would probably have already been detected, he said that the diseases do not hide, that they show their face quite clearly. I was calm and I believed him, he is a recognized expert in his area.
The list of symptoms of Anxietycentre is very valuable and enlightening. Now, it is as if I find myself in the next problem: that is, I already know that all these messages from my body are due to anxiety, but now I want to finish it because if I do not do anything I can be suffering for decades like some people. Ufff!
I also think that the withdrawal of the antidepressant and the benzodiazepine that I took for 1 year until the summer of 2017 has aggravated things a lot. I hope to recover from that, but it is not a help, because I have read stories of people who say they have not returned to be the same person since they took medications of this kind... Brrrr! I try not to think much about this, but I really regret having listened to my doctor when he gave me these medications, because I think they have been disastrous for me, I was fine the year I took them, but removing them is being an odyssey that has not improved much still.
Yes!! I read Hillbilly and Balto every night before sleep, his writings so simple and so wise. I'm grateful that they took the trouble to write their ideas. I am also grateful to you, because what you tell me is worth a lot because besides being generous, you are a medical professional. I understand it so well, and now I need to internalize it and feel it, to do "click" deep inside me. So, I accept the diagnosis intellectually, but I have to come to feel it. Over time, I hope I will. I guess a lot of people fight with that same obstacle.
A week ago I started a brain retraining program to help myself changing thoughts and associations, visualize, etc. I find it strange to practice, but I will continue daily, as much as I can. I do a bit of Qigong along with that, and I do my normal life (although I suffer a lot internally). I congratulate myself simply for practicing and I have tried to focus on the positive (since I started a week ago, I'm not so constipated and I sleep a little more, it's almost imperceptible, but it's something!). I do not dare to declare my progress because I think that as soon as I say it, it will get worse again and that it was only a mirage or an illusion... Duende's stupid brain
I have no other path to stick with the work, like in a dark tunnel, without knowing where the light is, but I must keep walking.
Thank you all, again, for your support.
Is this common? Symptoms on one side of the body? Many here and in Anxietycentre refer to symptoms similar to mine, but not on one side of the body only ... I am very confused.
I feel very shaky especially when I move, for example when getting out of bed if I do things too quickly. Then I feel especially trembling. Does this have something to do with adrenaline, perhaps? It would be great if RogueWave gave his medical point of view.
A good thing I want to mention, is that constipation is gone, since 1 month, I'm like a clock in that matter. Never before. Thats funny. But the other symptoms continue the same or worse, and depression and anxiety is overwhelming.
Many many thanks, friend. I see clearly that my hardest obstacle lies in the little faith and confidence that I have in myself. Thank you, I do not know what else to say![]()