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Trigeminal Neuralgia Relief via Dr. Sarno

Discussion in 'Support Subforum' started by candysworld, Dec 16, 2018.

  1. candysworld

    candysworld New Member

    I began following Dr. Sarno's treatment plan by myself for trigeminal neuralgia symptoms of pain & numbness on the right side of my face, nose, lips and teeth. I re-read the Mindbody book. The numbness is severe at times, but intermittent. MRI showed some sinusitis. Going for CT scan just to rule out nerve damage.
    I'm journaling & self-talking every day, for about 3 days now, but it's not helping. I'm keeping track of the onset of numbness. I actually yell at my brain to stop the numbness! I've made lists of all issues in my past & present that may be contributing to the symptoms. I think I'm fairly self-aware of my psychology problems, as I've been in therapy numerous times in my life.
    Why am I not getting any results? Why am I still experiencing symptoms? What more should I do?
  2. Roxygirl577

    Roxygirl577 Peer Supporter

    I suffered from Trigeminal Neuraligia for around 2 years. At it's worst point I had around 20-30 episodes a day, I couldn't eat, let wind, water, clothing, etc touch my face. I know it was definitely a TMS symptom. The only thing that worked was when I stopped fearing it. I know it's easier said than done, but i finally gave up I guess. I said, fine you win, and let it happen and stopped caring. It went away in about a week. I have only had about 5 episodes since and that was 3 years ago.
    Lola111 and candysworld like this.
  3. Andy Bayliss

    Andy Bayliss TMS Coach & Beloved Grand Eagle

    Hi candysworld,

    Welcome to the Forum and Wiki. Roxygirl577's post sounds very encouraging. What will be helpful is if you imagine this is you and read it every day. What you're hearing is that there is no reason why you can't have the same experience, and have symptoms resolve.

    We recommend the free programs at the Wiki, including the Structured Education Program. This gives long-term support, and you can post your responses/reflections as you go through the prompts.

    I suggest patience, perseverance, and self-understanding.

    Andy B
    candysworld and Roxygirl577 like this.
  4. candysworld

    candysworld New Member

    Thanks for your encouragement! But what do you mean about stop fearing it? I'm not sure how to do that. When I feel symptoms, I try to ignore them, or tell my brain I know it's TMS. But that doesn't work. I'm thinking of seeing a TMS therapist to help me. I've been following Dr. Sarno's treatment.
  5. Roxygirl577

    Roxygirl577 Peer Supporter

    I really had to think about how to explain the 'no fear' thing. The only way I can describe it, is by a complete change in mindset. Ignoring the pain, or the episodes, never worked for me. That actually never worked for any of my TMS symptoms, although I do know they work for others, but I had to find a different way that worked for me. In fact, it wasn't even something I did on purpose...I was going through a major life crises at the time and I guess at some point I just said, you know what? I don't even care anymore. I accepted that this was a part of me now, and that there was nothing I could do about it, so I just stopped caring. I didn't try to ignore it, or get mad at it. I just accepted that it was there, even if that meant forever, and I just let it be. I didn't even expect it to go away. But it did.

    ...Looking back, I'm amazed it worked, but at the same time, it reminded me of meditation, and I understood it a lot better through this analogy. During meditation, people complain that they can't clear their minds..they try to ignore the thoughts and that usually doesn't work. So then they get frustrated, or even angry that the thoughts won't go away...well that usually never works. But they teach us to just let the thoughts happen, just let them be there and don't judge them. Watch them come and go...and eventually they subside. It also reminds me of a book years ago, I can't remember the name right now, but I believe it was by Louise Hay, where she said that all sensations, especially pain, is just trying to send us a message. If we listen to it and let it have a voice, then it will give us that message and not have a reason to be there anymore. Again, I know this won't work for everyone, but it seemed to be the best way for me. Acceptance.
    readytoheal likes this.
  6. Roxygirl577

    Roxygirl577 Peer Supporter

    I also agree with Andy B, that you should try the structured education program on this site, it is an excellent tool.
    candysworld likes this.
  7. Andy Bayliss

    Andy Bayliss TMS Coach & Beloved Grand Eagle

    Thank you Roxygirl 577 for such natural expression of this truth for you. I hope you might put this quote up under its own thread and get some other responses. Something like "How I quit worrying about symptoms" or other. Very well said. I really hope many people read this.
    Andy B

    Roxygirl577 and candysworld like this.
  8. candysworld

    candysworld New Member

    I'll be fine all day, and then I'm watching tv at night, and onset of symptoms start up. So how does acceptance relieve the onset of pain and numbness?
    I'm still not understanding.
  9. Roxygirl577

    Roxygirl577 Peer Supporter

    Thank you Andy, I appreciate that. i will do that soon :)
  10. Roxygirl577

    Roxygirl577 Peer Supporter

    Acceptance is not going to relieve the pain right away, it's a process; but when you have the pain you just need to accept that it is there at the time and not fight it. Self love and care are most important during this time.
    candysworld likes this.
  11. Lola111

    Lola111 Newcomer

    Thank you both for sharing. I'm just learning about TMS and hope for Trigeminal Neuralgia suffer's, that fear that you mentioned about washing face, touching the face, wind blowing, taking a shower, talking, eating is one of the most scaring feelings. Anything that could possibly be in contact with the face is overwhelming. I'm glad someone pointed to me about this forum. I need to read about success stories and support in this subject.
  12. Andy Bayliss

    Andy Bayliss TMS Coach & Beloved Grand Eagle

    Welcome Lola111,

    I encourage you to make an introductory post with its own title if you like, telling why you are here. We highly recommend the Structured Education Program at the Wiki as a free program to investigate and undo your symptoms. Good luck in the process, and take hope. Being afraid of symptoms is part of what perpetuates them. It serves a great distraction according to Dr. Sarno, or as Alan Gordon suggests, staying afraid helps us feel safe because a state of alarm helps protect us, or may have in the past. In any case we are enthralled with fear!

    Reading any success story, and substituting your "condition" for the one being discussed is powerful. TMS is TMS, and it goes by a thousand names and symptoms. Trigeminal neuralgia is one of them. I was diagnosed with plantar fasciitis, neuropathy, Tarsal Tunnel and could hardly walk for years. Many physicians suggested surgery. Now I ski and climb mountains. Have courage.

  13. Patrisia

    Patrisia Peer Supporter

    Hi @Lola111 !

    Welcome! I was diagnosed with trigeminal neuralgia last summer and was recommended medication and surgery (MRI showed the artery touching the nerve). I stopped medication (it was not even helping) and went on the TMS journey. I also never got the surgery. It took me 5 months to get rid of my original pain. I am now dealing with crazy symptom imperative but that's nothing compared to the feeling of helplessness when I was diagnosed and the fact that doctors could not help me. I thought my life was ending and I was suicidal (hence why they call it the Suicide Disease). I had to quit my job and spent a lot of money at the dentists/neurologists. My true answer came in the form of this forum, Sarno's book (which helped me before when I was going through years of back pain), Dr. Hanscom's book and @plum!!

    Either way, ask away! We are here to help and rest assured that TN is indeed treatable (both TN1 and TN2) :)
    plum and Marls like this.

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