Diana, you seem to be most well when you are able to enjoy small experiences and moments throughout the day despite symptoms. You have a resilient spirit that is moving more and more into the light no matter what is going on with symptoms. You often express having had moments of contentment or delight or joy as well as times of pain and distress. I think you are moving toward more and more consistency in the everyday being a little bit better, bit by bit, over time, and toward eventually more consistent happiness.But all I can think is maybe there’s something about HOW I SEE the WORLD that is contributing to my inner rage. Maybe I expect more than life can really offer?
This makes me think that no, you don't expect more than life can really offer -- you are actually becoming better and better at enjoying and appreciating it. You are starting to *see it more clearly.* The joy and the rage both. Even when symptoms get you down, another day you will be back a little closer to the sunny side...
Today something really hilarious happened. Our neighbor called and said there was a chicken on her porch. We ran over and caught the chicken. Turns out it was not our chicken. Turns out ANOTHER NEIGHBOR HAS SECRET CHICKENS. Because the Chicken Inspector (no, I'm not even joking) is such a jerk that these neighbors decided to hide their chickens instead of cooperating with the town Chicken Code (again, not joking).
As my husband handed over the chicken, he said wistfully, "It really is a beautiful chicken, though..."
I laughed and laughed and laughed. What could be better? No, we don't expect too much out of life, because *just a hilarious chicken experience* is enough to make it absolutely worth living.
There's so much joy awaiting still.
Keep going, sister!