Temperature sensitivitty

[GirlFromBrazil]

One of the symptoms I developed along with my chronic pain was temperature sensitivity.

I started to feel very cold when the temperature was low, and very hot when the temperature was high (especially in my extremities). Clothes and shoes aren't enough to keep me warm. During hot weather, I also experience fatigue, and the whole thing just leaves me feeling so irritated.

Does anyone experience something similar? Has anyone had improvements with it? If so, how?

Thanks.

 

[Ellen]

I had this during the 20 years I had fibromyalgia (TMS). It went away when I recovered. I remember having lots of environmental sensitivities at the time, like to air quality, etc. also. In my experience it will go away with your other TMS symptoms.

 

[Cactusflower]

Hi @GirlFromBrazil
I have had similar responses - I have had a host of symptoms which fall under "dysautonomia" - essentially an umbrella term for undetermined "ailments" (complaints) that have physical manifestations but no structural or medical basis. Perhaps you may have noticed others along your journey? I have had POTS like symptoms, "low blood pressure" type symptoms (I actually do have very low blood pressure but no symptoms from it in the past), vestibular disturbances, visual disturbances, sudden onset of feeling the the floor is dropping out under me (almost like I"m going to faint), needing to use the washroom urgently...I can get VERY hot when eating a meal, and like you, sensitive to temperatures. I have always been sensitive to the cold or a draft. Some clothing I still find irritating (comes and goes) and I can't force myself to swim (something I love) because temperatures of the water seem to be incredibly off putting.
What have I done?
nothing that isn't TMS related. I use compassion for my nervous system which is still sensitive at times. When I feel bad or unsuccessful about surmounting issues, I remind myself how far I've come and begin to count my wins. Instead of finding the negative, I look to focus on something positive about myself and my journey because all along this way I am teaching my brain that nothing is wrong so that it can give some equilibrium to my nervous system. My mindset is simply that my body is still just looking out for me and in time, when it recognizes that it doesn't need to call attention to things that aren't the "lion" in the room, I won't have or at least will have much less time experiencing those (and any) symptom.
If you have done the emotional work, then you've already been working towards that more calm nervous system response. Keeping things like this from become a distraction, and irritation, a focus of any kind is another way to keep doing the emotional work. Place your attention on things that NEED attention in your life, and simply just let the other stuff go because it's temporary.

 

[GirlFromBrazil]

I had this during the 20 years I had fibromyalgia (TMS). It went away when I recovered. I remember having lots of environmental sensitivities at the time, like to air quality, etc. also. In my experience it will go away with your other TMS symptoms.

That's so good to hear! There's hope

 

[GirlFromBrazil]

Hi @GirlFromBrazil
I have had similar responses - I have had a host of symptoms which fall under "dysautonomia" - essentially an umbrella term for undetermined "ailments" (complaints) that have physical manifestations but no structural or medical basis. Perhaps you may have noticed others along your journey? I have had POTS like symptoms, "low blood pressure" type symptoms (I actually do have very low blood pressure but no symptoms from it in the past), vestibular disturbances, visual disturbances, sudden onset of feeling the the floor is dropping out under me (almost like I"m going to faint), needing to use the washroom urgently...I can get VERY hot when eating a meal, and like you, sensitive to temperatures. I have always been sensitive to the cold or a draft. Some clothing I still find irritating (comes and goes) and I can't force myself to swim (something I love) because temperatures of the water seem to be incredibly off putting.
What have I done?
nothing that isn't TMS related. I use compassion for my nervous system which is still sensitive at times. When I feel bad or unsuccessful about surmounting issues, I remind myself how far I've come and begin to count my wins. Instead of finding the negative, I look to focus on something positive about myself and my journey because all along this way I am teaching my brain that nothing is wrong so that it can give some equilibrium to my nervous system. My mindset is simply that my body is still just looking out for me and in time, when it recognizes that it doesn't need to call attention to things that aren't the "lion" in the room, I won't have or at least will have much less time experiencing those (and any) symptom.
If you have done the emotional work, then you've already been working towards that more calm nervous system response. Keeping things like this from become a distraction, and irritation, a focus of any kind is another way to keep doing the emotional work. Place your attention on things that NEED attention in your life, and simply just let the other stuff go because it's temporary.

Thank you for sharing your experience and for the good advices

 

[Diana-M]

Does anyone experience something similar? Has anyone had improvements with it? If so, how?

My feet used to be so cold nothing would get them warm. That was two years ago. Now my temp has regulated and many of my hypersensitive nervous system symptoms are subsiding as I slowly but steadily heal and regulate my system. There’s hope!

how do you heal your nervous system? First you have to turn off the adrenaline by improving how you view life, lowering your internal and external stressors, treating yourself kindly. It’s a lot to do.

Then, you need to soothe your nervous system with meditation, EFT tapping, and/or bottom up somatic healing practices. There are books on this. Study the vagus nerve. This is key!