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Small Fiber Neuropathy

Discussion in 'Support Subforum' started by winterhaven123, Jan 8, 2016.

  1. stradivarius

    stradivarius Peer Supporter

    Thanks for sharing in so much detail Caulfield. That is a hell of a story, so glad you have come through all that and out the other side. I am sure your story will help others.
     
    Dorado likes this.
  2. Lavoris

    Lavoris New Member

    I was so happy to read your post. I have convinced myself (maybe a little less after reading your post) that getting too much Botox did me in. All over sfb in limbs mostly hands and feet. After a suicide attempt last year I sought help from a trauma therapist but still kept privately obsessing about that. I found an article yesterday published by a neurologist backing up my claim. I too went to Mayo and they did EMGs and inserted small needles deep into my muscles. Then a sweat test. Negative. Released w a DX of Central Nervous System Disorder. This gives me hope. I just started the program and I am seeing a TMS specialist here but I didn’t believe him when he told me if it was Botox it would have been gone. I really would love to hear from you as to how you let that go. Was it Mayo? My hands and feet don’t sweat but I’m gonna go home and sit in my tub until I wrinkle! I ordered a book by Dr. Moskowitz from his website Neuroplastix thigh was mentioned in an earlier post. I have thrown away so much money! I am off Zoloft and more than halfway off of Klonopin but I am still on Lyrica and feel awful about it. I know Dr Schubiner says to save it for later when it will be easier to believe you don’t need them anymore. Swinging for the fences when I feel benched:).




     
  3. Boston Redsox

    Boston Redsox Well Known Member


    I am in the same boat as you ...I know your looking for a answer so wasn't I ...did the same shit you did ...YOU NEED TO GIVE UP and stop looking for a diagnosis be happy you didn't get one ....Move on your test are clean ....if you need more proof see a tms dr send him or her your results get his stamp and move on ....Are you on any meds
     

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