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Severe CFS/ME/EDS/Fibro/Post lyme

Discussion in 'Support Subforum' started by Davidgraham5, Jan 8, 2020.

  1. Davidgraham5

    Davidgraham5 New Member

    Hoping someone can help me get out this hell

    2004 jungle trekking Thailand got really ill sick, fever etc lost so much weight, fatigue, chronic pain etc etc. Recovered to 80% where could work but always had constant infections. In 2014 diagnosed with ecoli then campylobacter. Run if infections after coli including gum, ear, chest infections. Recovered again back to 80%. Bitten by tick, EM rash diagnosed with lyme in 2015 body completely shut down. Tested positive for lyme, mycoplasma on nhs. Did several rounds of antibiotics which worked great on symptoms and felt the best I had even prior to lyme. Relapsed month after antibiotics finished. Diagnosed with CFS/ME/Fibro and EDS very loose skin on face hands, hyper mobile joints etc.

    Tried herbs supplement then lightening process, reverse therapy and nothing has worked like antibiotics did. Not making much progress to at all. Is this something TMS can help?

    Symptoms are

    Severe chronic fatigue
    Low white blood (neutrophils)
    Low natural killer cells
    Chronic pain
    EDS - joint pain, hypermobile, muscle loss
    Low zinc and magnesium
    Constant infections
    Neck pain
    Bone loss in teeth (seen specialist who said bone loss of a 60 year old I'm 38)
    Severe gum receding
    Low body temp deep chills

    Any help is much appreciated
  2. Davidgraham5

    Davidgraham5 New Member

    Can anyone help?
  3. JanAtheCPA

    JanAtheCPA Beloved Grand Eagle

    David, we're not medical professionals here, so the problem with your very short and recent story and your list of conditions, is that they reference a lot of specific physical conditions that we can't speak to. However, I do have a suggestion, which is that you read one of Dr. Sarno's books (The MindBody Prescription, or The Divided Mind) AND that you read some of the posts on the Sucess Stories subforum, scanning the titles to find references to things which sound familiar. After you've done those two things, perhaps you can ask your question again, but also provide a history of possible signs of TMS in your "former" life, and perhaps a look at your emotional well-being from childhood to current times.

    People have recovered from all kinds of crazy symptoms and conditions, including ones that started out as conditions that the medical community ostensibly treated. "Chronic Lyme", for example, has pretty much been debunked as a real condition by people who eventually ended up finding recovery in TMS knowledge and practice.

    Just off the cuff, in my personal experience as well as from my reading and other knowledge, it is absolutely possible that you have a weakened immune system which results from some kind of old emotional instability or trauma, and that's where we have to start from on this forum. It's also how you are more likely to find people who can relate to your amended story, and you'll get some feedback.
    hecate105 likes this.
  4. Davidgraham5

    Davidgraham5 New Member

    Thanks for you reply.

    I've spent last year doing reverse therapy and the lightening process emotional work. It's made very little impact in my overall health. I know tms is different so I'm reading and researching trying to explore this field.

    Nothing severely traumatic happened as a kid but I had constant aggression, anger and fear. I was a troubled chils in that sense. I had very loving and caring parents but very little money. I can't find anything that happened in my childhood to make me so angry and have alot of fear. Could this be linked to my current health conditions?
  5. hecate105

    hecate105 Well known member

    If you felt aggression, anger and fear as a child then there will be an explanation for that.... but you will have to find it! As Jan said - read a Sarno book - like The Divided Mind' - and see of you find descriptions of your character/behaviour etc in there. If it makes sense to you - you may well have TMS and with hard work and application - and most of all - kindness to yourself.... you can get better..
    I had a symptom list as long as yours - and now I am 99% better - I went from using a wheelchair to cycling across countries.... it really helps to understand your own psyche and ways of reacting to situations, people and pressures.... learn about the thing that 'trigger' your TMS, your pain and your stress...
    Use the Structured Educational Program - free - on this site https://www.tmswiki.org/ppd/Structured_Educational_Program (Structured Educational Program) as a starting point, and I am sure you will find some relief from your symptoms.
    At the very least you get to understand a complex and beautiful creature (You!) and at the best - you get to heal and have a wonderful life.... Good luck!
    Rainstorm B and JanAtheCPA like this.
  6. JanAtheCPA

    JanAtheCPA Beloved Grand Eagle

    Definitely. Now you "just" have to dig really deep, and look at your childhood from the point of view of a completely self-absorbed infant and child.

    I, too, was fortunate to have had an excellent upbringing with responsible and loving parents - but I have struggled with anxiety all my life. By doing some pretty deep exploration and visualizing myself as a very young child I remembered and discovered a couple of things.

    One was remembering that my mother had been an only child, raised in European boarding schools. She never babysat in her life, she got married well into her late twenties, she didn't conceive right away, and then she had a miscarriage before I was finally born, almost four years into the marriage, so that she was almost 30 when she had her first child. I recall the stories she told me about how nervous she was with me - so guess where my anxiety came from?

    Then there's the natural desire of the infant/child to receive 100% of the parents' attention - this is what Freud explored, and which Dr. Sarno incorporated into his theories. I was well-loved and very much wanted, but my parents proceeded to have three more children after me, and through meditation and journaling (at age 60), I was able to recall myself as an awkward and isolated child way back then. For better or worse, I was well-behaved and self-sufficient, which was all too easy for my parents to take advantage of when the demands of three more young ones became overwhelming.

    Traumatic? Hardly, not in the big picture. But isolating for a small child? Definitely - and isolation, often experienced as abandonment, is a HUGE issue for human beings.

    Another form of isolation is often described by people here, which is bullying - whether by peers or by siblings. The child might perceive that they have been abandoned by parents who are unable to protect them - and a history that includes some form of bullying is extremely common amongst those who suffer from anxiety. Of course, parents themselves can inflict fear and anxiety on their children, and in fact I am convinced that too many young people today suffer from anxiety, brought on by a society that worships safety above experience. The internet and constant exposure to bad news doesn't help, of course.

    Try exploring some of these ideas. Humans were designed by nature to be fearful, and it doesn't take much to push us over the edge of reasonableness.

    And this :)
  7. TG957

    TG957 Beloved Grand Eagle

    This: https://theconnection.tv/ (The Connection: Mind Your Body)
    JanAtheCPA likes this.

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