Pelvic pain - how can I ever 100% convince myself?

I've read that its good to compile an evidence sheet as to why something is TMS. There is lots of evidence (past history of what were clearly mindbody syndromes, years of extreme stress before my fall that initiated pelvic pain symptoms). The problem is, I can just as easily look at the same evidence and conclude the pelvic issues are not. I've worked out all my issues. My life has actually been great the last two years- in fact, if it weren't for this chronic pain I'd be perfectly happy. I don't have stress in my life anymore. Other symptoms came and went- so why is this so persistent and extreme?

Most of the healings seem to happen in a year or less. I've been at this for two years and have been trending worse again over the last few months, to the point where I'm basically back at the same level of pain when this all started. Believe me, I'm not insulted by a mindbody syndrome. I'm one of the people who WANTS this to be TMS- that gives me the hope of a full cure. I hate Doctors and procedures, they give me a massive anxiety attack and I have no confidence in them anyway.

Most of the pelvic pain patients here had the problem come out of nowhere. If that had happened to me, it would be easy to dismiss. Mine started after a fall on my tailbone down the stairs. Most pelvic pain patients get a clean bill of health on imaging studies. I, on the other hand, have been told so many different things. The first Doctor I ever saw said I had a broken tailbone, but the radiology report said they didn't see a tailbone fracture but I had a "mildly displaced sacrum". A nurse practitioner I saw didn't even know how to read the X-ray report. An orthopedic surgeon looking at the exact same X-rays said there was nothing wrong. An MRI showed nothing wrong. A colorectal Doctor told me I had a "serious abdominal condition" but couldn't figure out what it was. A gastroenterlogist basically told me there was nothing wrong. A pelvic floor PT said I had a crooked tailbone and pelvic floor dysfunction. I've gotten so many diagnoses (or non-diagnoses) it's ridiculous- how can I ever know who was right? Most Doctors don't even understand these conditions anyway. A TMS Doctor I E-mailed with last year told me I should "be checked out by at least two urologists" - as if I haven't seen enough Doctors!?

If I had never been given any nocebos would I have healed? I don't even know- Pudendal Nerve Entrapment is what scares me the most, and it can't even be seen on an imaging study apparantly so I can never disprove it. Researching early on was definitely a bad idea. There's a lot of evidence its nonsense diagnosis (and I've even posted about it), but I also ask myself "what if?" What if I'm walking with a dislocated tailbone pushing everything around causing pain? What if I really do have an Entrapped Pudendal nerve giving me all these symptoms?

I've tried so much- I even watched Alan Gordon's youtube video on pelvic pain. I understand it all and keep trying, yet its not working- why?

 

Prognosis for PNE is really bad. Most people who have it are in pain forever. Some try medication, physical therapy or surgery with little success. In fact treatment seems to be risky, with many getting worse. Few Doctors even know about it or treat it. So worst case scenario is I'm in terrible pain forever.

 

Jason pls take a look at the link below which is a previous post of mine to someone who has PP. Its an interview with Dr Schubiner by @Abigail & its explains why PP is TMS in some detail.

http://www.tmswiki.org/forum/threads/the-best-interview-with-dr-schubiner-regarding-pelvic-pain.7091/ (The best interview with DR schubiner regarding pelvic pain)

Hope it helps

Mala

 

[Deleted at BeWell's request]

 

I used to have urinary frequency and pelvic pain when I was a teenager and the symptoms mostly went away when a doctor told me it was psychological. After discovering Dr. Sarno in March, 2016, this is even less of an issue for me. I don't fear my bladder and pelvic floor muscles anymore.

For me I just had to forget about my pelvic pain and once I realized it was all psychological, it was easy for me to not worry all the time about it. Sometimes I have a flair up and I remind myself that there is something stressing me out. Usually a flair up when I'm in transit so it is easy to identify the source.

My pelvic pain and urinary pain was 100% psychological.

 

Sometimes the fastest way to believe is experience - direct physical experience of the mind body connection and change in the body leading to change in the mind - I've see a lot of pelvic pain relief from TRE Trauma and Stress Release Exercises that trigger of autonomic shaking to release patterns of body tensions - this approaches the problem from the other way around somatic release to change psycho somatic pain rather than psychological insights to change body pain. Might be worth a go.