New here - All over body nerve pain

Merilu said:
I am new here and this is my story. I went on a family amusement park ride with my 3 year old on August 4, 2015. The ride spins around and the car you are in also spins you around. My 3 year old started to cry and I twisted my head a few time against the force of the ride to look at him. That same night I noticed both my legs and arms go numb while I was sleeping. I started getting electric shocks in my arms and legs and strange sensations. My hands and fingers would hurt when I would use the iPad. A week later I went to my gp and he didn't know what was going on. By this time my neck started to hurt and the neuropathy symptoms were getting worse and a week later I went to the ER and was told I had peripheral neuropathy and to go see a neurologist. I was given a prescription for gabapentin 300 mg 3x a day. The ER took a neck X-ray but I guess it looked fine. Since then I have had (2) cervical MRI's, (1) lumber MRI and (1) brain MRI, another cervical X-ray and and EMG testing on my arms. I have seen (1) orthopedic doctor (2) neurologists, a neurosurgeon, nurse practitioner that works for another neurosurgeon, and a TMS physiatrist. These are my MRI impressions. I have 2 mild bulges and 1 moderate bulge in c5/c6. I am pasting the important parts:

MRI 9/1/15
C5-C6: There is right and left paracentral annular protrusion.
Small tissue of slight higher signal adjacent to left-sided
protrusion is between the disc and the longitudinal ligament.
This suggests some possible hemorrhage or fluid and edema.
Overall moderate central spinal canal stenosis with effacement of
ventral and dorsal CSF space. Neuroforamina mildly narrowed on
the right side with slight compression of exiting right C6 nerve.
Left neuroforamina proximally narrowed with compression exiting
left C6 nerve.

IMPRESSION:
1. No compression fracture, bone edema or subluxation.
2. C5-C6 with moderate central spinal canal stenosis from
combination of annular protrusion and small adjacent edema, fluid
or perhaps blood. Bilateral exiting C6 nerve compression.


MRI 10/29/15
C5-6: There is a broad based central protrusion which touches the
cord and bilateral uncovertebral osteophytes that cause moderate
right and mild left foraminal narrowing.

IMPRESSION:
Mild multilevel degenerative changes, with associated mild to
moderate bilateral neural foraminal narrowing as above.

EMG:
Impression:
This is a mildly abnormal study. There is electrophysiological evidence of a borderline/mild left ulnar neuropathy at the elbow. There is no electrophysiological evidence of a right cervical radiculopathy. (The patient’s bilateral symptoms were worse on the right; given the normal EMG of the right arm, we elected to forgo needle studies on the left.)

My lumber and brain MRI were normal.

I have done physical therapy, acupuncture, orthogonal chiropractor who adjusted my atlas. None have helped except the physical therapy made me feel a little more energetic. I was basically told that the cervical disc should only affect arms and not legs unless there is cord compression. All the doctors have done the motor tests for spinal cord compression and I don't have that. I was basically told from the neurologists that I was over anxious and I should go on medication. The one neurosurgeon just told me if it doesn't get better than we can do surgery but he disregarded why my legs would hurt. He told me not to think about it. I am in excruciating all over body pain. I get buzzing, tingling, numbness, burning, pain, shooting pain shocks - anything considered neuropathic. I also get pelvic pain and felt like I had a uti. I could go into more detail but I am trying to keep this short. Sorry for the long post. Anyway, to sum it all up the TMS physiatrist said I have TMS. I am trying so hard to believe this but I relate everything to my neck and that amusement park ride. I was fine physically before that but I have had recent bouts of anxiety and what I am going through now has put my anxiety out of control. Any advice would help. Thanks!
Click to expand...
Hi. I have se are nerve oi. Too. What is happening with you?
 
Dede, this was a post from several years ago, it's obvious from it that her doctors told her her issues were stress related, that equals TMS. Can you imagine how many people would be in surgery if you could get so easily injured by a carnival ride that young children are allowed to go on?!?--half the planet would be wearing neck braces. It seems she got better, to find out her current state you may want to PM her (personal message) through this site. To me it's obvious it's TMS when one sees so many doctors and they tell her it's stress, anxiety, i.e., TMS.
 
Merilu said:
I am new here and this is my story. I went on a family amusement park ride with my 3 year old on August 4, 2015. The ride spins around and the car you are in also spins you around. My 3 year old started to cry and I twisted my head a few time against the force of the ride to look at him. That same night I noticed both my legs and arms go numb while I was sleeping. I started getting electric shocks in my arms and legs and strange sensations. My hands and fingers would hurt when I would use the iPad. A week later I went to my gp and he didn't know what was going on. By this time my neck started to hurt and the neuropathy symptoms were getting worse and a week later I went to the ER and was told I had peripheral neuropathy and to go see a neurologist. I was given a prescription for gabapentin 300 mg 3x a day. The ER took a neck X-ray but I guess it looked fine. Since then I have had (2) cervical MRI's, (1) lumber MRI and (1) brain MRI, another cervical X-ray and and EMG testing on my arms. I have seen (1) orthopedic doctor (2) neurologists, a neurosurgeon, nurse practitioner that works for another neurosurgeon, and a TMS physiatrist. These are my MRI impressions. I have 2 mild bulges and 1 moderate bulge in c5/c6. I am pasting the important parts:

MRI 9/1/15
C5-C6: There is right and left paracentral annular protrusion.
Small tissue of slight higher signal adjacent to left-sided
protrusion is between the disc and the longitudinal ligament.
This suggests some possible hemorrhage or fluid and edema.
Overall moderate central spinal canal stenosis with effacement of
ventral and dorsal CSF space. Neuroforamina mildly narrowed on
the right side with slight compression of exiting right C6 nerve.
Left neuroforamina proximally narrowed with compression exiting
left C6 nerve.

IMPRESSION:
1. No compression fracture, bone edema or subluxation.
2. C5-C6 with moderate central spinal canal stenosis from
combination of annular protrusion and small adjacent edema, fluid
or perhaps blood. Bilateral exiting C6 nerve compression.


MRI 10/29/15
C5-6: There is a broad based central protrusion which touches the
cord and bilateral uncovertebral osteophytes that cause moderate
right and mild left foraminal narrowing.

IMPRESSION:
Mild multilevel degenerative changes, with associated mild to
moderate bilateral neural foraminal narrowing as above.

EMG:
Impression:
This is a mildly abnormal study. There is electrophysiological evidence of a borderline/mild left ulnar neuropathy at the elbow. There is no electrophysiological evidence of a right cervical radiculopathy. (The patient’s bilateral symptoms were worse on the right; given the normal EMG of the right arm, we elected to forgo needle studies on the left.)

My lumber and brain MRI were normal.

I have done physical therapy, acupuncture, orthogonal chiropractor who adjusted my atlas. None have helped except the physical therapy made me feel a little more energetic. I was basically told that the cervical disc should only affect arms and not legs unless there is cord compression. All the doctors have done the motor tests for spinal cord compression and I don't have that. I was basically told from the neurologists that I was over anxious and I should go on medication. The one neurosurgeon just told me if it doesn't get better than we can do surgery but he disregarded why my legs would hurt. He told me not to think about it. I am in excruciating all over body pain. I get buzzing, tingling, numbness, burning, pain, shooting pain shocks - anything considered neuropathic. I also get pelvic pain and felt like I had a uti. I could go into more detail but I am trying to keep this short. Sorry for the long post. Anyway, to sum it all up the TMS physiatrist said I have TMS. I am trying so hard to believe this but I relate everything to my neck and that amusement park ride. I was fine physically before that but I have had recent bouts of anxiety and what I am going through now has put my anxiety out of control. Any advice would help. Thanks!
Click to expand...


Holy Cow!!! You just described so much I’ve been going through! Just see my post tonight! It is insane manning to have nerve pain but no sign of origin. I have some neck issues from stress to vertebrae and bulges but nothing to cause all over pain. I too was told my problem would not affect me all over. I am on Lyrica and I have been prescribed an anti depressant but haven’t taken it yet. You can private message me if you want I can relate to everything you are sayinG. I convinced myself it was Botox that did this. I have had every kind of therapy there is physically and I see a trauma therapist now. He told me to google trauma and nerve pain and there is quite a lot. I wouldn’t even believe my cousin who is a brain surgeon and is also a neurosurgeon when he looked at my MRIs. I bounced by Botox and neck problems and continue to when I have flares. Let’s use each other as proof that this is something the human brain can manifest. How likely is it that we both have the same problems and are on this forum? BTW I also get that uTI problem and tinnitus as well. This stuff moves around. I am so sorry for your pain. Nobody knows what torture it is unless they’ve experienced it. Would love to “chat”. This is truly incredible as I could mistake this post for my own.
 
Hi merlilu i saw your post about the nerve pain your haveing after a neck trauma, i also have the same issue, after a i fell and injury my neck and head legs arms fingers i have all sorts of pain tingling crawling stinging electric zaps cold and hot sensetions , it gets beatable to unbearable my fingers also get numb when using iphone or ipad, i have done all mri and blood works ever single thing is all clear and they say its central sensitization syndrome put on gabapentin 100mg doseing up slowly but no relife yet , hope you are feeling better have they found out what could this be ? Please email or massage me here really need help and advice ibo_T_@hotmail.com
 
Hello, it has been two years since my last post and I just wanted to give an update. Over the past two years my nerve pain had decreased significantly and I would rarely think about it. Up until yesterday, I was doing great. I had lifted my nephew in his baby carrier and I must have pulled neck. My neck, upper back hurt but I also have the nerve pain in my arms, hands, legs and feet again! I am trying to keep calm but I know my anxiety will take over. Not a great way to start off the New Year. Over the past couple of years, I would have frequent episodes of jaw pain, which would eventually subside. In June of 2017, literally overnight, I developed a very bad case of acid reflux. I never had acid reflux before except when I was pregnant. The acid would go all the way to my throat even when I was standing up. I thought it could be tms but I still went to the doctors many times and took many different supplements and changed my diet and nothing helped. I was convinced I had h. pylori. I had an endoscopy and I was expecting the doctor to find something and they found absolutely nothing! I had the reflux for about 2 months but it did go away. So now I am facing the nerve pain again and I am praying it will go away again.
 
I am so sorry. Nerve pain sucks! It’s maddening! It sounds like your other symptoms were a precursor to this...jaw pain and acid reflux are all anxiety related. You may have to dig really really deep to figure out what might be gripping you. For me it’s fear and loneliness. I have tinnitus out of the blue and just started getting acid reflux like you. It is so hard to stay calm when you feel like you must. I am trying to learn how to let the panic move through me. It’s not easy that’s for sure! Can you take some time to let yourself feel what might be bothering you? Is there a small thing you can do to make yourself feel more in control of things that seem to be happening all around you?
 
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