My recovery from a diagnosis of trigeminal neuralgia

[Diana-M]

So how long of a setback was it for you when u overdid somstic tracking?
And will ut really hellp that I'm just telling myself over and over that i'm safe, and my symptoms are safe?

I can’t remember how long. Weeks? Yes, it will help, along with all the other stuff you do to calm yourself down. It takes a while to calm.

 

[Matt94]

I can’t remember how long. Weeks? Yes, it will help, along with all the other stuff you do to calm yourself down. It takes a while to calm.

I wish there was TN on the success stories database here on tms wiki. There are actually tons of success stories when you first look for them. I have found maybe 20 just in a moments time. I'm feeling hopeful these days <3 I tried emailing the tms wiki site and getting them to add the TN topic and I even linked them 7 success stories, but didn't get any reply

 

[Diana-M]

That’s great you’re feeling hopeful! Keep up the good work!

 

[JanAtheCPA]

I wish there was TN on the success stories database here on tms wiki. There are actually tons of success stories when you first look for them. I have found maybe 20 just in a moments time. I'm feeling hopeful these days <3 I tried emailing the tms wiki site and getting them to add the TN topic and I even linked them 7 success stories, but didn't get any reply

Hey Matt, this is a valuable request and suggestion, so let's work together and see if we can find a way to do this. I'm not at the other end of that tech support email address, but I do have some limited abilities to edit our existing wiki pages. If I'm able to add a new item to the database you're referring to, I can then link one URL to it.
You can PM me, and in the interest of helping me do this quickly, I need a few things from you in the message:

1) The URL of the database page you're referring to

2) the URLs for your seven success stories

2) Your top two choices out of the seven success stories. What we need are stories that are well written and comprehensive enough to give the reader a sense of what worked. By well-written, the chosen story will ideally exhibit proper grammar and spelling, mature use of language, and formatting which makes the narrative easy to comprehend (such as paragraphs).

I can add tags for Trigeminal Neuralgia to all seven threads to enhance searches.

You could also add a post to each of those threads in which you recommend the other six Success Stories.

There are lots of ways to get creative on the forum! But let's also see if we can enhance the wiki as well.

 

[Missdee]

I was diagnosed with trigeminal neuralgia five years ago and have had success in being pain free thanks to mind body practices learned from Dr. John Stracks. Not that I don’t have flare ups - I do about every three months - but the flare up is short lived and usually only requires one dose (250mg) of oxcarbazepine per day for a few days. And when people ask what causes TN, I say “thoughts.” the habit of negative or unkind thoughts towards oneself takes years to treat with compassion (for this person).

When I was diagnosed, I felt like my life had stopped. The attacks were ongoing and seemed uncontrollable. The two neurologists I visited both said that there was nothing that could be done and that the pain would only get worse. They assured me that they would do their best by adjusting the dosage of various medications to keep me comfortable. The medications were strong and it was difficult to work. I couldn't drive. I despaired that I would have to use my disability insurance to support myself.

About five months after my diagnosis, while I was struggling to find a way to manage, I met Dr. John Stracks at Northwestern Memorial Hospital in Chicago. He said that he believed I didn't have to suffer as I did. I joined his Mind Body Class where over six weeks I learned with other people, who suffered from severe Mind Body pain, practices to free ourselves. Within the first week everyone in the class stopped taking their medications. As long as I was meeting with the class I didn't need medication. When the class ended the pain little by little returned. That was the beginning of another adventure. This time as I continued to meet with Dr. Stracks and other people he referred me to through the community of Mind Body Syndrome, I learned how to bring care and compassion to this person.

I have flare ups a few times a year, but they are small - twinges usually that remind me that there's more practice needed. More compassion.

I hope this narration of my experience helps others who suffer from TN. It's a horrible, life-stopping pain. And I truly believe that we don't have to suffer that pain.
be

Hello how are you now?

 

[Missdee]

Beth Thank you for sharing your story. I need to read and know that there is a hope for Trigeminal Neuralgia Sufferes. I have been diagnosed with that condition and suffer so many other symptoms. I believed that all this symptoms are TMS. Thank you.

How are you getting on?