Steve J.
Well known member
Hello,
I feel like the past couple of weeks have been monumental. I'm golfing again, riding my bike more often, among other things that I was either too scared to do but did them anyway, or avoided them altogether. I still get some increased arm pain after golfing (though really quite a negligible amount, and I've gone three times, each time the pain afterwards is less and less). I rarely experience any lower back pain anymore, and when I do, it's extremely brief. The pain in my ankles is gone. However, I still experience some knee discomfort and forearm/hand pain, but overall my symptoms are greatly improving/diminishing! I even woke up the other day and I swear I felt zero pain for about one minute before I started thinking about it again. I should be celebrating!
But I still have a nagging fear in the pit of my stomach. I had an ambiguous test result come back a couple of months ago, a 1:40 ANA titer, which the NP said is nothing to worry about right now, and doesn't want to see me until September. She stressed "leaving the worry" up to her, and to golf and write and draw, in essence to continue my life. I don't even have 95% of lupus symptoms, but the fear still lingers, and the only thing that continues to make sense is TMS.
I've written about fear before. It seems to be the crux of mindbody afflictions. Once that can be uprooted, or at the very least mastered, then the physical symptoms of TMS will eventually fade away. I get that...but still working on...GETTING it. Like really allowing courage to be my guide instead of the scared little dude that seems to still be starved for attention and care.
I feel like I'm not doing nearly enough to congratulate myself/treat myself for all the good work I've done. It's just my nature. What do you do to celebrate victories while on this journey? I've been having entire days that have been fantastic, and I just want to give myself some credit. This conditioned fear response, perfectionism, and low self-esteem seem to be the real scoundrels in all this hubbub.
I freaking love all of you, by the way. Seriously. What an incredible place. It's an abomination that this paradigm is not more known, and that it's so easily dismissed by most of the medical community.
Steve
I feel like the past couple of weeks have been monumental. I'm golfing again, riding my bike more often, among other things that I was either too scared to do but did them anyway, or avoided them altogether. I still get some increased arm pain after golfing (though really quite a negligible amount, and I've gone three times, each time the pain afterwards is less and less). I rarely experience any lower back pain anymore, and when I do, it's extremely brief. The pain in my ankles is gone. However, I still experience some knee discomfort and forearm/hand pain, but overall my symptoms are greatly improving/diminishing! I even woke up the other day and I swear I felt zero pain for about one minute before I started thinking about it again. I should be celebrating!
But I still have a nagging fear in the pit of my stomach. I had an ambiguous test result come back a couple of months ago, a 1:40 ANA titer, which the NP said is nothing to worry about right now, and doesn't want to see me until September. She stressed "leaving the worry" up to her, and to golf and write and draw, in essence to continue my life. I don't even have 95% of lupus symptoms, but the fear still lingers, and the only thing that continues to make sense is TMS.
I've written about fear before. It seems to be the crux of mindbody afflictions. Once that can be uprooted, or at the very least mastered, then the physical symptoms of TMS will eventually fade away. I get that...but still working on...GETTING it. Like really allowing courage to be my guide instead of the scared little dude that seems to still be starved for attention and care.
I feel like I'm not doing nearly enough to congratulate myself/treat myself for all the good work I've done. It's just my nature. What do you do to celebrate victories while on this journey? I've been having entire days that have been fantastic, and I just want to give myself some credit. This conditioned fear response, perfectionism, and low self-esteem seem to be the real scoundrels in all this hubbub.
I freaking love all of you, by the way. Seriously. What an incredible place. It's an abomination that this paradigm is not more known, and that it's so easily dismissed by most of the medical community.
Steve