1. Alan has completed the new Pain Recovery Program. To read or share it, use this updated link: https://www.tmswiki.org/forum/painrecovery/
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Is POTS and CFS/ME be helped by this program?

Discussion in 'General Discussion Subforum' started by AnnaKa, Jun 6, 2019.

  1. AnnaKa

    AnnaKa Newcomer


    I am just looking into TMS and figuring out if it can help me. I’m 29 years old and this is a little of my story...

    I am hoping I can be directed to a program or practitioner that uses the Sarno approach, but for Postural Orthostatic Tachycardia Syndrome and CFS/ME. I was also diagnosed by an emergency room physician as having conversion disorder, due to my symptoms having no cause based on my MRI results and CT scan. I have over 30 physical symptoms on a daily basis.

    All of the programs I look at are focused on pain, like Nicole Sachs program and others. I was going to download the Curable app, but that is also for pain. Does anyone just focus on general body discomfort and fatigue?

    I also looked at a few meditations, but they were about unlearning pain. I have some minor pain, but my other symptoms are much greater and have kept me completely bedridden for over 3 years.

    Does anyone have advice for me?

  2. AnonymousNick

    AnonymousNick Peer Supporter

    "Pain" and "symptoms" I think end up being interchangeable terms when it comes to TMS. For instance, there's so much more to Sarno's book "Healing Back Pain" than backs or even pain in some cases. Sarno has mentioned having visual migraines (I've had way more than a few as well), and they are not painful, but very distracting and upsetting. Anything that's pulling you away from living your life and is getting tied into fear or distraction is within the scope of TMS. I would say that you should feel free to apply anything about pain that you hear in TMS therapies to your own symptoms. Good luck!
    Ellen and Tennis Tom like this.
  3. Davidgraham5

    Davidgraham5 New Member

    how are you now Anna - i have same diagnoses. Im about to start TMS try get out this hellish state
  4. TG957

    TG957 Beloved Grand Eagle

    TMS can manifest itself in a wide variety of symptoms: muscle spasms, digestion problems, tachycardia, Raynaud's, whatever! The more bizarre your symptoms are, the more likely they are TMS.

    I am informally coaching a woman who went from a non-stop tachycardia, low blood pressure, severe fatigue and neuropathic pain throughout her body to being symptom-free about 70 percent of time - in 6 months! She is optimistic that she will fully recover, after being told by the doctors that she had incurable condition.
    Last edited: Jul 3, 2021
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  5. Ran

    Ran New Member

    Hello TG957 and everybody! I ve been suffering with a mild case of POTS (mainly orthostatic tachycardia or palpitations) since January due to covid and vaccine fear I think... I am familiar with TMS. I overcome 3 years ago a consistent stomach ache and IBS symptoms with this program but now I can't get through! Maybe I am not convinced it is TMS now or because of the current situation with the pandemic.Any help will be highly appreciated!!!
    Cap'n Spanky likes this.
  6. Cap'n Spanky

    Cap'n Spanky Well known member

    I can promise you that CFS is a form of TMS. I had it and recovered following the principals set forth by the books, techniques, and programs suggested here. As AnonymousNick said, I simply replaced the term "pain" with "symptoms".

    Quite a long time ago, I recovered from sciatica/back pain, tennis elbow, and several other lesser issues reading and following Dr. Sarno's books. This time around, for CFS and insomnia, I followed Alan Gordon's free - Pain Recovery Program | TMS Forum (The Mindbody Syndrome) (tmswiki.org) I went through it through very thoroughly. It took a lot time and dedication, but I am recovered now. Alan's got a new book coming out soon.

    Here's a great article that explains how chronic fatigue can be a form of TMS. Explaining the Unexplainable: Chronic Fatigue Syndrome | Psychology Today

    Our very own TG957 has a brilliant book that's a great example of demonstrating something not traditionally thought of as TMS is... in fact... TMS. It's called - Defying The Verdict: How I Defeated Chronic Pain - by Tamara Gurin. The Kindle edition is only $0.99. Highly recommended!

    I personally don't know anything about POTS. But based a quick Google search, it sounds anxiety related and could certainly be a form of TMS. But you're the one that ultimately has to make that decision.
    Ellen likes this.
  7. cfsistmsguy

    cfsistmsguy Newcomer

    I was a CFSer who get better via TMS techniques. I actually just made an informational website just for this purpose (because there is much less info about CFS vs. pain syndromes, though they are in essence exactly the same!) If you wanna check it out and give me feedback, that'd be amazing! Or if you just wanna chat and ask me questions about my recovery, feel free. :)

    TG957, Ellen and Cap'n Spanky like this.
  8. Cap'n Spanky

    Cap'n Spanky Well known member

    Nice job with the website!
    avlval likes this.
  9. Ellen

    Ellen Beloved Grand Eagle

    Great website! Thanks for this contribution. It will change lives.

    Have you written your recovery story for our Success Story sub-forum?
  10. cfsistmsguy

    cfsistmsguy Newcomer

    Yep! I posted it awhile ago via a different account. :)
  11. cfsistmsguy

    cfsistmsguy Newcomer

    Thanks so much! I just built it because I felt I really had to get the message out. I tried to post it to a cfs reddit and it got immediately taken down. :/ At least a few people will see it, ha!
    avlval and Cap'n Spanky like this.
  12. rob89

    rob89 New Member

    CFS, from my reading, and I have only been reading about TMS for maybe 6 months properly, is almost certainly TMS.

    just yesterday I actually finished reading a book called ‘it’s all in your head’ by Suzanne O’Sullivan. She is specialises in neurological disorders but most of her work has been with people with conversion disorders who have suffered with dissociative seizures. Most of these patients have previously and wrongly been treated for epilepsy and so have taken a catalogue of drugs to control the condition. They tend to get sent to Suzanne when the placebo of those drugs stops working and their seizures become more frequent.

    The entire book is about the physical manifestations of the psychological but she talks about conversion disorder throughout. It’s a very interesting read, and although not strictly TMS related in her examples and findings; the amount of crossover is massive. She talks about Freud and others and their early work which is the first connection between her findings and Sarno.

    It is also refreshing that she talks about in vogue disorders and their spread through society based on no medical diagnosis or proof. She is actually quite scathing of medical care in general here in the UK; at times, when it comes to the psychological. Very good book and her belief is almost certain; when she speaks of CFS it is a product of the psychological.
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