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I just need some kind words

feduccini

Beloved Grand Eagle
This year has been very challenging in my recovery. There's been a dramatic change in my symptoms where they appear all over the place, from neck to knees, with aggressive flares. I didn't stop my routine. I keep doing my exercises (including healing ones), working, walking my dog twice a day, doing the things I do for fun. But I want to be honest here and say it's been hard. A lot of times I gotta stop, breath, tell my mind I know what I'm doing and we're not going back to bed.

But oh boy, it's been tough.
 
I know how hard this journey is, and I'm sorry you're going through a tough time. But you're doing the work anyway, and therefore, there is light at the end of the tunnel. Stay hopeful.
 
Hi @feduccini, Your postings on these forums show that your understanding of TMS runs deep, and that's huge when symptoms hit hard. They've been all over the place lately because you've got your TMSing brain on the run—it's asking, 'Are you sure I can let go?' By doing what you're doing, you're telling it that it can. So hang in there.
 
Do you have an evidence list? I had to revisit mine because I have flare that just really got to me. Checking that list really helped me see that it's TMS. I also talked to my body and told myself I was fine. It is just TMS and I had flares before that went away once I calmed down. And then think how you can calm down instead of spiraling about it. Most of the time I use deep breathing cause its easy to do in the moment. Bloodmoon wrote a great post on being grounded that I'm trying to use today. If I'm at home, I'll read a book or find a funny show to watch. Just little things to slow myself down.

It's hard when symptoms change and then you start questioning. But this is actually part of the process. I watched a Curable video with Raelan Agle yesterday and they talked about the three flare stages we face:

1. We are scared cause of our symptoms and we start to spiral with negative thoughts.
2. We decide we are going to work as hard as we can to "heal" this. We will do everything and anything!
3. We realize that we just need safety restored in our body. The work helps get us there, but we don't have to do ALL the things to get there.

This stuck to me since I realized I was at stage 2 with this latest flare. Maybe this might help you as well!
 
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