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Going backwards please help!

Discussion in 'Support Subforum' started by billiewells, May 27, 2016.

  1. billiewells

    billiewells Peer Supporter

    Hi everyone,

    Feeling absolutely desperate today. I came To TMS at beginning of year, read and read and read, got hold of TMS therapist, felt that after 4 years of hell I could get back in the world. But, as June heralds the mid point of another year, I seem to be going no where in terms of recovery. I have so many symptoms it bores me to list them again but drop foot dominates my disability. I am so worried that without exercise I am getting weaker and weaker, my muscles must be nearly atrophying. I try to walk, but simply can't balance and fall over. I live alone, with no family support in a rural environment.

    Pins and needles effect my hands and feet, my drop foot is swollen.I have real trouble driving because I cant operate the pedals properly and yet have to go out to get supplies. I have a dog that I long to walk and have to rely on dog walkers to take him out which is costly. I haven't been able to get in a shop for two yers and the smallest task during the day is a huge challenge.

    i read Oznich's book which also mentioned drop foot and he just started to run on it. I simply dont know how this is possible, I would fall over.

    Completely lost in all this . . . so want to walk and have a life and re connect with this world. Days are so grim and they just keep on being grim. I am so willing to do what is necessary, but nothing is working. How do I get my life back before my muscles just waste away. Please advise. Thank you
  2. Ellen

    Ellen Beloved Grand Eagle


    I'm so sorry to hear of all your difficulties. I know the isolation that TMS symptoms can create and how hard that is when you're all alone.

    Are you continuing to work with the TMS therapist? I know it can be expensive but usually it doesn't take too many sessions before you can continue on your own. Also, it may be helpful for you to see a TMS doctor to get you started. I don't know where you're located, but even if you have to travel a ways many people say it is worth it. Are you using a structured program like the SEP or Schubiner's Unlearn Your Pain? Those are good ways to supplement the reading for many people.

    Give us a little more info on what you're doing and we can give more specific advice.

    Hang in there. There is a road to recovery for everyone.

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