Front teeth allodynia. Does this sound like TMS?

Hi everyone, just signed up to get your advice and thank everyone who will take time to read my story.

Long story short, I sustained a trauma last October in my front teeth which I thought would heal quickly. Ever since the issue has become chronic. I've seen many specialists including dentist, TMJ, ENT, neurologist, did an MRI and X rays and all are clear. No infection, no inflammation, no damage. Yet, one doctor mentionned allodynia.

The trigger is characterized by extreme sensitization to touch of the 4 front teeth. I mean to the point just wind on my teeth, or even gliding a hair on the teeth can trigger the pain. Of course daily activities like brushing teeth, eating drinking, talking and even mouth-breathing trigger the pain. So I try to avoid the triggers, eat less (lost 20 lbs), avoid talking to people. Basically I stopped living.

The pain once triggered is sort of like flared up teeth, burning, tingling, pressure to the joints, muscle spasm in masseter/pterygoid, migraines.

What makes me think it could be TMS is that at night and first thing in the morning my teeth feel fine. Once I took a 30 minute nap while I was in pain and when I woke up the pain was gone. Does allodynia dissappear when unconscious?

Also, I did have burning scalp syndrome 4 years ago, sort of similar to my teeth but in my scalp. It lasted a year.

Hopefully someone has some imput, the pain is driving me nuts.

 

Hi. That does not sound fun. I have had TMS symptoms almost everywhere, including my nose and chin at times. About a year ago I started getting super dry chapped lips only they didn't look like much of anything but they felt terrible. No one takes it too seriously because I look fine and there does not seem to be much explanation. I have concluded it is yet another TMS symptom and it comes and goes. Sounds like you've exhausted potential medical causes and so it would be a good time to embrace TMS recovery. Combined with the burning scalp sydrome, TMS seems like a very likely candidate. I say embrace TMS recovery because the thing is you can't just casually try it on and expect too much. We want evidence, a test, proof that it is definitely TMS and it just does not work like that. If you can look at the other recovery stories and truly believe that our minds have the ability to create excruciatingly painful physical symptoms in order to distract us from something emotional and psychological, then you can find a way to apply that belief in your own life, to your own pain. You need to be able to accept that premise though, can you? Our pain feels so structural that sometimes that it becomes a huge obstacle in believing that our individual pain is generated by TMS. We recognize the potential in others, but our pain feels different. We need some kind of verifiable proof in order to believe it in ourselves. So perhaps rather than prove that it is TMS, prove that it isn't. What do you have to loose? When we are trapped in the pain distraction, there is room for little else. Especially joy. When we find ways to let go of that distraction, when we stop trying to fix the pain and focus on our life, desires and feelings in spite of the pain, things begin to change. You cannot monitor the pain or judge your success based on it. Outcome independence is the hardest thing to grasp but once you do, you can turn things around pretty quickly. It might just be a few wonderful moments at first, but those will expand and grow. And when you reach a point in which you feel you can live a happy, fulfilled life with or without the pain, it may just disappear altogether.

 

Tension in your masseter, temporalis and/or digastric can be accompanied by sensitive teeth and molars, but also by migraine and pain on the scalp. It is a common combination seen in triggerpoint treatment. However it is my experience that approaching such tension as TMS rather than treating the muscles is the best way to get rid of it in the long run.
Not experiencing the pain when just waking up is a pretty good give away for TMS. For example some people mention the experience of going to the loo in the middle of the night, only realizing when they return to their bed that they are not having any pain.

 

Sweetheart,

I greatly empathise. After many years of torment I was diagnosed with atypical trigeminal neuralgia and tmj, which when all is said and done is TMS. It manifests primarily in my right upper teeth but at its worst my entire palate and front teeth were affected, as were the whole right side of my face, my temple, my neck and my throat.

I've been through the living hell you describe. At one point my dress size was a UK size 6 because I couldn't eat. Even soup and drinks triggered my pain and sensitivity. Brushing teeth, eating and drinking, wearing make-up, some days speaking and smiling were ordeals.

These days I am much, much better. You can read "My Story" for more insight into how I began to heal. Interesting that you mention how a nap made things better. It isn't that being unconscious makes allodynia disappear but rather that sleep is the best way of calming an over-sensitised nervous system.

In my story you can read how I describe sleep as the charm and the start of my recovery. To this day whenever I have a flare-up it is sleep that soothes it once more. The fact that you have glimpsed this chink of lessoned pain suggests that this is indeed TMS and that by learning to soothe yourself, you can calm your frazzled nervous system back to it's natural, neutral resting state.

As other have noted, burning scalp is another form of TMS. This bout of allodynia sounds very much like the symptom imperative at play.

So, good news. There is much you can do to overcome this wretched condition.

Plum x

 

Thanks everyone for your responses it's very comforting

Plum: I had read your story before signing up and I really related in a lot of aspects. I wish you the best in your recovery

I started reading Sarno's books (Mindbody Prescription and Divided Mind) and I'll keep reading them until I feel better. I am 100% sure my issue is TMS related. I'll update on my progress. I think I know exactly where my inner rage is coming from, I just need to get my thoughts straight.

I am realizing I have been doing everything wrong. Everything I was doing or thinking was contributing to the pain.

 

I've been making some progress. Been reading and listening a lot, about 3 or 4 hours a day.

The sensitivity has diminished a bit and muscle pain also.

I completely resumed talking, eating and brushing teeth. Though I am still very fearful of talking.

I realized I'm conditioned to so many situations. I've been wearing for the past 8 months a cotton roll as a spacer between my upper lip and gums to prevent my lips from touching my teeth while talking. I decided to stop doing this and within 5 minutes all of my facial muscles started to spasm up. I still ride my bicycle wearing a surgical face mask because of the wind. Any time I don't wear it my teeth flare up.

It's just so hard to "forget about it and live your life" and the pain is located in your face and causes these tension headaches

I also suck on ice cubes to relieve some of the pain. It helps numb the throat muscles and burning teeth. Is this something that can hold back my progress?

 

That's nice that you are making progress.
I remember experiencing painful teeth from cycling and walking, even when it wasn't that cold outside.

 

I'm not sensitive at all to heat or cold, just to touch.

So the wind on the teeth (or even mouth breathing) feels like something is touching my teeth

 

Just circling back to say that the symptoms are gone. I can't remember when exactly probably around March 2019. I just remembered this forum existed and that I posted here.

Hopefully this gives hope to some people with similar symptoms.

The key is to let go & stop caring and eventually the symptoms lessen and disappear. The fact that I can't pinpoint exactly when the symptoms went away is what you want to achieve.

I can't say I changed anything else in the process, except that I started rock climbing and that I love it. I think that might have played a big role.

 

@deafheaven that's great to hear! How long would the pain last once triggered? I have a relapse and mine is 24/7 but for example brushing triggers it and then it hurts even more

 

Usually all day. Sometimes just for a few hours

The teeth would either tingle, be completely numb or extremely senstive to touch... Clearly blood flow retracting from that area

 

It depends upon the alignment

 

That must be really tough. Hang in there.

My thought is that it is conditioned response. I have seen it happen. The initial injury is healed but the pain remains as a conditioned response. That's why all the tests come back normal but the pain and sensitivity remains. Treat as a conditioned response and it will go away.

You can use the steps I outline in this video series. The one on Rapid Recovery goals deals with conditioned response. You need to tailor it to your situation. Take care.

My New Video Series on Rapid Recovery from TMS | TMS Forum (The Mindbody Syndrome) (tmswiki.org)