Facebook Groups

I'm on a Fibromyalgia group for men on Facebook, I imagine that many here would think I shouldn't be on it. But, is there a way to introduce TMS to fibro sufferers? , I don't want to insult anyone, but perhaps even if I'm removed from the group(for telling them it's psychosomatic) I can plant a seed! Any advice on this? I'm also new to TMS myself, but i believe it.

 

Hi Markus, and welcome to the forum!

Here is a Q & A by John Stracks, M.D. on how to tell friends you think they have TMS:

http://www.tmswiki.org/ppd/Q&A:_Explaining_TMS_to_friends_and_family

Also, this is a good thread, I think this thread covers a lot.

http://www.tmswiki.org/forum/threads/how-to-tell-someone-they-have-tms.1187/

 

Hi, Markus. I'm glad you're spreading the word about TMS on Facebook.
Peggy's reply is great.

 

From what I hear you can expect a lot of anger in response, and some may result in personal attacks. If you are feeling a little uncertain in your own acceptance of TMS, it could be hard for you. But if you are brave enough to give it a try, I commend you. It may make an important difference for some people.

 

Thank You, and thanks for the links!

 

Thank you Forest, I have already liked that group on Facebook. I will have to figure out a way to reach them, even if one at a time. I've yet to feel any better but, I'm onto what my unconscious is doing, I have reading to catch up on as well. I'm pretty stressed out right now but, I expect it to pass. I appreciate your advice!

Mark.

 

Thanks Peggy!

 

Hi Marcus,

I actually had a fibro diagnosis at one time, before I knew about TMS. That is what you get when doctors can't figure out what is causing your pain. I never believed it from the start. My husband is a retired physician and he doesn't believe that Fibromyalgia is a real disease. However, when I developed tachycardia, my husband did not think that was TMS or Fibro. we went to see an Endocrinologist. It turned out to be a condition called "hyperparathyroidism", for which I had surgery.

For a short time, I belonged to a Fibro support group, not because I believed the diagnosis, but I was curious about the diagnosis. It was during this time that I realized I actually had TMS. However, also during this time, I was diagnosed with a real physical ailment called "hyperparathyroidism" and had surgery for it. Hyperparathyroidism CAN cause weird, vague symptoms that come and go, very similar to TMS. So I attribute my recovery to a combination of having the parathyroid surgery and realizing that I also have TMS.

To come to the point, while I do believe that there can be some real physical problems underlying Fibro, I also think that Fibro is usually TMS. I found the people on the site extremely hostile to any ideas that this condition can have psychological causes. They really wanted to be sick and wore it like a banner. I mad NO progress with them.

Recently, I read over some things Dr. Sarno had to say about TMS existing along with other physical diagnoses. He does not seem to think it has to be all or nothing, TMS or not. There are disagreements on this site about that. In one book, Dr. Sarno wants his patients to think totally psychologically, but I believe this is when the physician is certain the patient has nothing but TMS. Particularly in the case of older people, I believe Dr. Sarno thinks that both physical and psychological can coexist. In fact, over reaction to a physical ailment is actually TMS also.

 

Chickenbone, I appreciate your response. I have noticed a trend on fibro groups t o constantly talk about how much pain they're in. I have no doubt they are in horrible pain, but they are wary of any Dr's or methods that sounds like snake oil salesmen. While I don't wish to diminish the hell heaped upon these people, there foes seem to be a resistance to Dr. Sarno's proram. I'm very new at this but, I have more hope than I've had in a long time.
But, I have to try because TMS makes more and more sense to me. Thanks for sharing your info.

Mark.

 

Thanks for the encouragement, I used to think I wanted make people aware on my fibromyalgia group. it's basically impossible for me to do that, its going to have to be the only way that I can do this is to put me first! in just reading the literature on TMS I am wracked with pain as I read. and then I might get distracted, and be filled with an enormous amount of energy, which issomething I'm not used to so I'm never sure what to do with all that energy. so far today I read a chapter or two in Steve's book, & I must tell you I was in more pain then I can remember in a long time, so there must be something to this TMS work!my mind tries to distract me by removing the worst of the pain, and giving me this huge amount of energy again, its not good because I don't know what to do with energy. but I keep pushing forward and later on I'm going to start reading again, and maybe do some journaling like I did this morning which was pretty out there and upfront with myself, so I'll start reading if I get pain I will just tell my brain that I'm on to it. But I do think you're right most fibro if not all fibro groups are not ready to hear this type of thing.


Mark

 

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I still see my TMS therapist 6 years later because he helped me that much We barely ever talk about TMS anymore!

 

It's very unfortunate how people are so defensive about potentially accepting ideas taht could make them better :-/