TG read your book. Funny I googled dystonia cure and said there isn’t one. So I’m glad you got the cute which brings me to my issue which is My back has been in 24/7 mild contraction in am through to searing pain when working as if it were about to snap. Feet burning 24/7 now. All work ups neg. I feel there is no cure. But reading your book I think it has to be TMS. Nothing would last that long. Last week was stripping wallpaper n next day felt groin pain still have it. Again I think is it or is it TMS. I hate docs now n sill not go unless my arm is falling off. Just wondered your thoughts I believe all are TMS following severe life stressors constant over last two years. Yes or no ?
Jimmy, since you read my book, you know that I had been in the same agony, searching for hope and feeling that there was no cure. I know now that cure, if you define it as a magic pill that works overnight, does not exist. But what exists is healing. It is different from cure, because it comes from within, and because it comes from within, it is more powerful.
Judging by your symptoms and how they appear randomly in your body, it is TMS. Without digging deeper, I can't tell whether your symptoms fit the Budapest Protocol for CRPS, no would I dare to claim that I can diagnose you - I am not a doctor. But the combination of neuropathic pain and dystonia may as well indicate just that. CRPS is probably one of the most complex and difficult categories of chronic pain, but there is hope. I cannot predict whether you can heal on your own without help from TMS practitioners or you would need help, but it is important for you to know that without looking inwards and working through their own emotional issues and stresses you have experienced, nobody can beat a prolong severe chronic pain.
Not all the doctors are the same. Dr. Schubiner, frequently mentioned on this forum, is a TMS doctor who works with CRPS patients, and the one I would certainly recommend, although I was never his patient. There is Dr. Gietzen, also listed on the TMS Wiki who I actually saw as a patient and who I can recommend in that capacity.
Finally, this is what I firmly believe: dystonia is caused by stress and overload of the nervous system. It was much harder for me to beat dystonia than the pain itself. My pain was down to very tolerable levels within 8-10 months, but it took me another year to get rid of dystonia. Be patient, don't be afraid to deal with your emotions, as hard as it is - and you have a chance!