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Day 1

S

Sam06

New Member
This is Day 1 for me of the Structured Education Program.

I started feeling unwell about 6 months ago and recently my doctor told me I have fibromyalgia. I have been go go go for many years now, juggling being a working parent, looking after my parents who are unwell, helping others whenever they asked and neglecting my own self care. I have been under chronic stress for a long time, I have a lot of trauma and loss.

I have also been having myofascial pain for about 4 years now brought on by my job that requires a lot of repetative work.

I'm hoping that this program among other things I'm doing to recover will help me overcome not only the pain I have developed in the last 6 months but that it will also help me eventually be able to overcome my pain from work as well.

Not only do I want to recover physically but I want to learn to live my life better. Detach from all the negativity that I think brought me to where I am now.

I'm really glad I stuck to my gut and discovered this alternate world of recovery. I thought, this can't be right, I may have been living life dysfunctionally for a long time but I was feeling fine physically 6 months ago. There must be something I can do other then what my doctor is offering me.

I do feel a little overwhelmed and I think one of my biggest challenges is going to be patience and sticking to it. Life can be hectic with 2 little kids.
 
I’m with you. This is Day 1 for me and I’m in the same boat. It is tough and hectic with two little kids who look up to you and sometimes you just can’t be present. It’s my biggest challenge and toughest part to deal with.
 
"I'm really glad I stuck to my gut and discovered this alternate world of recovery. I thought, this can't be right, I may have been living life dysfunctionally for a long time but I was feeling fine physically 6 months ago. There must be something I can do other then what my doctor is offering me."​

Yes!! I'm so happy to see you found your way here because there IS another way.

Just this morning, I've been watching a new interview with Dr Schubiner, and there's discussion about the enormous impact the things medical practitioners tell patients can have. Huge amounts of harm are done when doctors tell people these 'conditions' are chronic and there's nothing they can do. They also discussed how some 'treatment' programs comprise CBT therapy which is designed to help people cope with symptoms. Not resolve them, cope with them. They're starting from a premise of hopelessness. It's just awful.

You mentioned that you're feeling overwhelmed. For now, just follow the SEP. Take some time to really focus on each day's educational item (reading, video, etc). Make notes. Engage with the material rather than just skim-reading or having a video on in the background.

When you start to find your feet in this world, you'll start to find that (1) this knowledge and peoples' recoveries have been around for DECADES - this is not new! It's got a good history and track record. And (2) there are a wealth of amazing resources out there now about it, I could recommend so many YouTube channels to give your brain more proof! I'm resisting that urge as I really don't want to overwhelm you further. The SEP is amazing because it's done the legwork of finding excellent introductory educational resources - being told what to read/watch each day is so much less stressful than browsing for content yourself. Stick to that for now, but down the line there's a whole world of this stuff if you want to delve deeper. :)
 
djamesharm said:
I’m with you. This is Day 1 for me and I’m in the same boat. It is tough and hectic with two little kids who look up to you and sometimes you just can’t be present. It’s my biggest challenge and toughest part to deal with.
Click to expand...

I know what you mean, living with chronic pain while looking after kids is so challenging but my kids are also a big reason why I'm determined to recover.
 
Thank
pinkteapot said:
"I'm really glad I stuck to my gut and discovered this alternate world of recovery. I thought, this can't be right, I may have been living life dysfunctionally for a long time but I was feeling fine physically 6 months ago. There must be something I can do other then what my doctor is offering me."​

Yes!! I'm so happy to see you found your way here because there IS another way.

Just this morning, I've been watching a new interview with Dr Schubiner, and there's discussion about the enormous impact the things medical practitioners tell patients can have. Huge amounts of harm are done when doctors tell people these 'conditions' are chronic and there's nothing they can do. They also discussed how some 'treatment' programs comprise CBT therapy which is designed to help people cope with symptoms. Not resolve them, cope with them. They're starting from a premise of hopelessness. It's just awful.

You mentioned that you're feeling overwhelmed. For now, just follow the SEP. Take some time to really focus on each day's educational item (reading, video, etc). Make notes. Engage with the material rather than just skim-reading or having a video on in the background.

When you start to find your feet in this world, you'll start to find that (1) this knowledge and peoples' recoveries have been around for DECADES - this is not new! It's got a good history and track record. And (2) there are a wealth of amazing resources out there now about it, I could recommend so many YouTube channels to give your brain more proof! I'm resisting that urge as I really don't want to overwhelm you further. The SEP is amazing because it's done the legwork of finding excellent introductory educational resources - being told what to read/watch each day is so much less stressful than browsing for content yourself. Stick to that for now, but down the line there's a whole world of this stuff if you want to delve deeper. :)
Click to expand...

Thank you for the advice and information, I think I saw that video. I have been watching some of Dr. Schubiner's interviews and he's right. I actually felt better before my doctor said I have fibromyalgia, really messed with my head.
 
I was given a similar waste bin diagnosis - the boxes doctors like to put us in when they don’t understand what’s going on with us and don’t know how to help!

It staggers me that it’s acceptable to blithely dish out these terrifying ‘diagnoses’. With serious or long-term illnesses, diagnoses are delivered with sympathy and empathy and a sense of seriousness. Yet doctors will throw out these chronic ‘conditions’, seemingly oblivious to the terrifying stories people hear about what that means.

I’m really sorry you’ve experienced it, and I’m really glad - and happy for you - that you’re open to the explanation here!
 
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