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Hi!! I am in a very very similar boat to you - it’s been going on for 2 years. Chronic vulva itch which does flare before my period. I have also had many biopsies done because I do actually have a lot of redness and look abnormal down there, and I do have a some sort of vulval dermatitis, but nothing more serious than inflammation of the skin shows up. I also had severe bladder issues a while back, but they have calmed down now. I’m pretty convinced that i COULD have TMS, but i’m looking for any evidence that could corroborate that. Can you please let me know how you’re going now :) I hope coping if not better!
@GhostlyMarie
@blundy
Wow thank you, it definitely helps seeing success stories like this especially with visual components! Glad you have healed
Hi!! I am in a very very similar boat to you - it’s been going on for 2 years. Chronic vulva itch which does flare before my period. I have also had many biopsies done because I do actually have a lot of redness and look abnormal down there, and I do have a some sort of vulval dermatitis, but nothing more serious than inflammation of the skin shows up. I also had severe bladder issues a while back, but they have calmed down now. I’m pretty convinced that i COULD have TMS, but i’m looking for any evidence that could corroborate that. Can you please let me know how you’re going now :) I hope coping if not better!
@GhostlyMarie
@blundy
 
So, for the past year I have had on and off vulvar itching. It feels like needle pricks (like if you’ve ever gotten bitten by a bug or fleas or something) and general tickling/bugs crawling. I notice that if I am doing something that takes my mind off of it, I don’t have itching but if I am sitting, and not doing anything, I will feel itching lol I notice it gets more prevalent before and after my period also. I’m in the process of eliminating feminine hygiene products to see if that’s causing it.

HOWEVER! The itching began the day after my first pelvic floor physical therapy consultation and then it never left. I was so scared of this appointment because I was so afraid that the PT would prove that I had some kind of pathological dermatoses or that I had nerve issues in my vulva. I cried the whole day before the appointment. The day after that consultation, the itching began. I had thought it was because of the rubbing (my PT didn’t hold back on stretching and manipulating the area) and lube the PT used to assess my pelvic floor but then the itching never went away. I guess it was PTSD triggering event seeing as I am a SA survivor and having someone touching me down there was mentally difficult. I have been to multiple gyns, GPs, and a vulvar derm and all of them have said I look perfectly normal down there but I still itch.

I am wondering if this could be tms? I do notice that if I don’t feel itching for a couple days and then I think “huh, I haven’t had that sensation in a while”, it will come back lol my skin looks normal, there’s no sign of eczema or lichenification or infection… and the sensation moves around and feels like it jumps. One spot will stop itching and then another will start and it just goes on like that. I am terrified of having something like lichen sclerosis and its primary symptom is itching so I’m wondering if I scared myself so much that my nervous system generated the sensation. To be fair, I get itching all over my body randomly but I’m more concerned about yen vulvar itching.

has anyone else experienced itching as a tms symptom? How did you eliminate it with mind-body methods? I am sure I answered my own question but I really just want someone to relate to. lol. TIA!
Hello

For me personnally it was emotional
Started few years after sexual abuse
I had years of infections but nothing helped
Then years of no infection evidence, but burning of my skin inside

And it just went away over time but i csn not tell you what happened exactly

I did diffenrent therapies, counseöing, somatix experiencing, homöopathie

On the physical level it helped also to Balance my hormones with Cremes and homöopathie as i had very low Libido, breast tension and no natural lubrification because of too low hormones, what increased the burning

It was always better in the middle of my cycle

And when the symptoms disappeared, as soon as i only tried to have sexual intercourse again,few days after, all sensations came back for weekes

So that was the prove

Since years i just accept to love sexuality differently, i don t go much in the sexual abuse topic anymore and since then it is ok for now

Comes back from time to time but shortly and low intensity

Even if one has not experienced sexual abuse, i think there can be a lot of other things linked emotionally to vulva symptoms
 
Hello

For me personnally it was emotional
Started few years after sexual abuse
I had years of infections but nothing helped
Then years of no infection evidence, but burning of my skin inside

And it just went away over time but i csn not tell you what happened exactly

I did diffenrent therapies, counseöing, somatix experiencing, homöopathie

On the physical level it helped also to Balance my hormones with Cremes and homöopathie as i had very low Libido, breast tension and no natural lubrification because of too low hormones, what increased the burning

It was always better in the middle of my cycle

And when the symptoms disappeared, as soon as i only tried to have sexual intercourse again,few days after, all sensations came back for weekes

So that was the prove

Since years i just accept to love sexuality differently, i don t go much in the sexual abuse topic anymore and since then it is ok for now

Comes back from time to time but shortly and low intensity

Even if one has not experienced sexual abuse, i think there can be a lot of other things linked emotionally to vulva symptoms
Thank you for this response! Over time dealing with these sensations and discovering TMS, I realized that I had a lot of anxiety based around sexuality and my female anatomy. I would think about it all of the time and I was weary about allowing partners to touch me, etc. so it’s no wonder that when I developed chronic TMS symptoms, it was around my pelvic area. It has gotten so much better over time and I barely think about it. I have small lingering symptoms but they aren’t something I really notice or give attention to anymore. I know eventually they will be completely gone and I’ll forget they were ever a thing. They don’t scare me at all anymore and honestly, symptoms or not, I consider myself a success story based off of the fact that I am no longer in fear of my body or symptoms. I know what this is and I know that I am 100% okay.
 
They don’t scare me at all anymore and honestly, symptoms or not, I consider myself a success story based off of the fact that I am no longer in fear of my body or symptoms. I know what this is and I know that I am 100% okay.
There will always be symptoms as long as our brains are alive and aware of the reality of living this life. Success is all about our response and our ability to live our best lives no matter what, and by that measure, YES, you ARE a Success Story, my dear!
 
Thank you for this response! Over time dealing with these sensations and discovering TMS, I realized that I had a lot of anxiety based around sexuality and my female anatomy. I would think about it all of the time and I was weary about allowing partners to touch me, etc. so it’s no wonder that when I developed chronic TMS symptoms, it was around my pelvic area. It has gotten so much better over time and I barely think about it. I have small lingering symptoms but they aren’t something I really notice or give attention to anymore. I know eventually they will be completely gone and I’ll forget they were ever a thing. They don’t scare me at all anymore and honestly, symptoms or not, I consider myself a success story based off of the fact that I am no longer in fear of my body or symptoms. I know what this is and I know that I am 100% okay.
You should definitely consider sharing your story in the success stories forum ❤️
 
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