Recent content by 0208mad

Hi everyone just thought I’d post as I’m once again hit with this awful body burning. It’s a really bad flare up so really need some reassurance. it’s been almost 11 years since this burning stinging tingling started. At first it almost took my life it was that bad. After the many many tests I...

Hi just wondered how you are doing. I too have all the symptoms of Small Fibre Neuropathy but cannot get a diagnoses. I've had two skin biopsys that are clear MRI which is clear. Blood tests clear. Mine also goes away when I lay down. Sounds familiar to you.

Hi I have seen 6 neurologists and cannot get a diagnosis. I have all the symptoms of Small Fibre Neuropathy the non length dependent. Mine started in the back 3 years ago.Now it's all over me. I have had two skin biopsys all clear MRI scans all clear. Numerous blood tests all clear. Just...

Day 20 Question to ponder, what is the one thing you would change if you could. Well that's easy, the pain and the awfulness of these symptoms. I want it GONEplain and simple.

Day 16 Well symptoms have been pretty bad today, but I have to admit, I have had a lot on my mind for various reasons. I have also been focusing on my symptoms a lot which is a definite no no and has given them energy. The question to ponder on today is whether I have told anyone about my TMS...

The Amitriptiline is an antidepressant but it has to be taken in much higher doses. I too am rooting for you :-) xx

Hi sorry I haven't replied earler strangely just read this message. Yes I do think they have helped my progress. Lycra ( pregabalin) has defineatly lifted my mood and helped with the pain. I've had no side effects and my body adjusted well to them. Now the Amitriptiline I am slowly decreasing...

Day 13 Hi everyone we'll had quite a bit of pain this evening but trying really hard to resist getting down about it. Today I was asked on the program, which bit of what you have read has been the most helpful. This has to be from Alan Gordon which was about breaking the pain cycle. Check it...

Well I am so very pleased to say I know I am getting better. I totally understand now that my repressed emotions are showing them self through pain. I feel like I'm starting to live again. I'm looking forward to each new day, it's so wonderful. My dream is to get off my meds, I hate putting...

Day 11 So so happy I feel I am getting better. I want to shout it from the roof tops. I have taken full control of my symptoms today and do you know what it feels wonderful. Twice today TMS started to try and crank up the symptoms and twice I have manage d to control it. I feel really really...

Day 10 Well yesterday and today I have been feeling good. Yesterday morning I got up as usual and of course my symptoms started straight away. But this time I said " ok you carry on doing your thing and I'm gonna set about the various things Im going to do" When I got dressed( this has always...

Day 9 Really struggling with my symptoms. Am so scared they will never go and I will be on my pain meds forever. Am battling my inner bully. But so very difficult.

Day 9 Trying my best not to be scared but I am. Very scared. I'm afraid of my symptoms and they know it. Really struggling.