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Peripheral neuropathy with Pain

Discussion in 'Success Stories Subforum' started by zeeman01, Jul 11, 2018.

  1. zeeman01

    zeeman01 New Member

    I just wanted to post this in hopes it helps someone else. Back in 2009 I experienced many neurological and pain issues for over a years time without any help from doctors. This came on after a few years of prolonged stress with my wife and i going through terribly infertility issues so I new the source but did not know how to fix it. I was diagnosed with non specific peripheral neuropathy and was convinced I had a terrible neurological disease of some kind. Here are the symptoms I experienced.

    Symptoms List
    -Perceived weakness in limbs
    -Cramping in all limbs
    -Intense tingling and burning all over (mostly feet, legs and bum) non stop
    -could not run very long, can only walk/stand for 15-20 mins
    -pain all over (feels like a deep bone or arthritic pain)
    -loose bowel movements
    -bladder urgency at night
    -muscle twitches all over
    -exercise seems to make things worse

    I had been reading many health message boards and was convinced I had MS. I had 3 MRI's, been to pain specialist and 3 different neurologist/rhumotolgist ect... I started working with a natural path who found out that my B12 was on the low side of normal and we did methly b12 injections for 5 days which helped a little but still did not resolve the problem.

    I was able to finally recover over the period of about 6 months afer suffering for over a year with this. Here is what worked for me.

    1) Having all test done that I wanted to help me feel better about not having a nerological disease
    2) Staying off health message boards and stopped searching dr google
    3) The big AH-HAH moment happened when i had to stand for a church ceremony. I told the priest that I needed a chair as i could not stand for long but he forgot to provide one. This forced me to stand 40 minutes. After that time I felt a bit worse than normal but not too much worse. I started to think maybe this is something I can deal with and recover from even though the pain and tingling was still fully there
    4) Finding the website neurosymptoms.org. This website is dedicated to a list of functional neurological issues. There are many people suffering with simlar issues. I started following the greated exercise program seen here. http://www.neurosymptoms.org/physio-exercise/4533198131 (Physio / Exercise - neurosymptoms.org)

    All off this drove me to stop worrying about my health and symptoms and really start trying to live my life again by going on walks, playing golf with a cart and just trying to do more and more things that I enjoyed even though I was in a lot of pain.

    After months of this mindset the pain and tingling slowly started to decrease but it took many many months. I still get occasional leg pains, cramping and tingling in my body but I don't focus on it anymore and it usually goes away pretty quickly. I know all of this sounds too simple but it worked for me and it can work for you too!

    See image about recovery below that I also found useful
    Caulfield, MindBodyPT and JanAtheCPA like this.
  2. Gigi

    Gigi Well known member

    Love the graph, Zeeman! I think we've all encountered that low spot, not being able to see that we were truly on the road to recovery.
    I'm delighted that you found your way to recovery. It is such a blessing! There are days that I still marvel that I’m pain free. I will never take it for granted.
    Thanks for taking the time to share your success.
    JanAtheCPA likes this.
  3. JanAtheCPA

    JanAtheCPA Beloved Grand Eagle

    I like this statement from the web site, which certainly applies to anyone who needs to recover from a very debilitated starting point:

    The principles of rehabilitation in this situation are to recognise that you probably are doing a bit too much on the good days and not enough on the bad days.
    Bodhigirl likes this.
  4. Caulfield

    Caulfield Well known member

    Wonderful story; thank you for sharing! I've recovered from extreme nerve pain myself and know it's not always easy to believe that something so severe can be caused (or worsened) by emotions.

    I no longer visit the NeuroTalk forums, but I remember seeing so many individuals who were diagnosed with neuropathy despite negative biopsies, sweat tests, etc. One poster in particular spent a great deal of time trying to convince their doctors of nerve damage only to pass every single test. Finally, after many years, they finally "failed" an EMG test where the results were slightly off. The test didn't indicate severe or even moderate damage. It's pretty normal for an EMG results to change as one gets older. Unfortunately, this person took this test as a major win and testament to their pain.

    Nah, buddy, your symptoms are being caused by emotions. If only they had access to what we know, right?

    Cheers to a great and pain-free life!
    JanAtheCPA likes this.
  5. Marinedad

    Marinedad New Member

    I suffer the same issues it’s been 8 years for me with no resolution at all...done all the tests
  6. zeeman01

    zeeman01 New Member

    Sorry to hear that you are going through this. The fact that u are here is good. A few other things I did was take 1000mg metyl b12 ever day and I did 30 second cold shower bursts on my feet to help with circulation but acceptance and no longer fearing being sick helped the most... best of luck
    Last edited by a moderator: Jul 28, 2018

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