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Heidim805
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Heidim805

Newcomer, Female

I have had pelvic pain on and off for 3 years. It has come and gone and moved. Now it's tailbone pain and some rectal spasms. here for help. Mar 30, 2023

Heidim805 was last seen:
Jun 29, 2023
  • My Story

    I began having pelvic pain in 2020. Currently it is coccyx and rectally related. I do not label it as anything although some might call it "levitator ani" etc... I call it PELVIC PAIN from hypertonic pelvic floor. It is very TMS related. I am posting this in hopes of finding people who might relate or have gotten better. The coccyx stuff has spun me out into worrying about my future. Here is my story:

    It started with a lot of stress working with those who had severe disabilities and there was a lot of chaos in this environment. David Schecter the doctor confirmed that I Had tms about a year ago and said this is not uncommon to be a caretaking type and work in chaotic environments similar to those we were brought up in. I also believe my tms had a lot to do with child trauma, in and outside the home. I had lived a very stressful life and even lost someone dear to me in the decade prior to it happening.

    It began with stabbing in the private part and outside the private. Sitting was hard on the perineum and also the left side always seemed more affected. I began doing pelvic physical therapy almost 3 times a month to 2 times a month to 1 time a month. I got on amitryptaline and diazepam. I used about 50 mg of amitryptaline a night and that helped. Diazepam 2 to 5 mg was used when there were really bad spasms. I noticed a correlation of panic/fear and flares. Also, lack of sleep and flares. I often felt scared or doomed.

    I began doing yoga without failure daily. I had rituals. I meditated. Sitting started to become easier. By about June 2020 almost all pain diminished. Then in 2020 I got into a relationship with someone abusive. Pain began to come back. When it ended there was constant panic and soon the pain went more toward the bladder/bowels/uterus area. I would get shocks all day long. I got to the point I was using tramadol every so often and I had full body pain. I missed many days of work due to this. Then I began to convince myself I had endometriosis. I saw dr schecter and he told me to begin going to where I felt good which was nature and listening to music and being around friends. Doing those things more often helped. I was not big on the journaling and began to feel better. I still wanted an exploratory surgery for endo because I couldn't figure out what was going on. Dr. Schecter did let me know that sometimes surgery can flare us up more and what is odd is that after the surgery all the pain in the front diminished. Again, my pain moved. A month later I had rectal pelvic pain and coccyx pain.

    I went back to PT again which I had done on and off. I have been in PT for awhile. I am pregnant now so I cannot take my medicine.
    PT has helped eliminate the burning and spasms. However, I am in dire need of more TMS work. I do not believe this is structural in the sense there is nothing wrong with me. But I do believe my TMS causes me to tense my pelvic floor. IT has been the most beneficial for me to do TMS in unison with talk therapy with a regular therapist, and Pelvic floor therapy. I know some people do not agree with this but that is what helped in the past.

    I am looking for tips. I am really struggling when especially in pain days to get myself to do things like meditate. I do not seem to like journaling but I do realize it may be imperative. If there is any guidance or direction I would love that. I do like TMS therapy but I have insurance and do not want to pay out of pocket. If you know of therapists who take insurance let me know. I need help with how to get out of my head when the rectal pain is going on in unison with tailbone. Tailbone is constant or very little.


    Pelvic pt got me to identify triggers: Lack of sleep/stress/caretaking/obsessing/anxiety/panic/fear

    If you have any success with tailbone issues or rectal issues and pelvic issues please feel free to reply. I need to get on some kind of ritual. I Have not been medicated for over a year. Everything I am doing is pretty natural. I may go back on meds but would like to try tms with my PT in unison. I would like to keep it simple. I will take any advice. Thank you!
    1. Heidim805
      Heidim805
      I have had pelvic pain on and off for 3 years. It has come and gone and moved. Now it's tailbone pain and some rectal spasms. here for help.
  • Loading...
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  • My Story

    Gender:
    Female
    I began having pelvic pain in 2020. Currently it is coccyx and rectally related. I do not label it as anything although some might call it "levitator ani" etc... I call it PELVIC PAIN from hypertonic pelvic floor. It is very TMS related. I am posting this in hopes of finding people who might relate or have gotten better. The coccyx stuff has spun me out into worrying about my future. Here is my story:

    It started with a lot of stress working with those who had severe disabilities and there was a lot of chaos in this environment. David Schecter the doctor confirmed that I Had tms about a year ago and said this is not uncommon to be a caretaking type and work in chaotic environments similar to those we were brought up in. I also believe my tms had a lot to do with child trauma, in and outside the home. I had lived a very stressful life and even lost someone dear to me in the decade prior to it happening.

    It began with stabbing in the private part and outside the private. Sitting was hard on the perineum and also the left side always seemed more affected. I began doing pelvic physical therapy almost 3 times a month to 2 times a month to 1 time a month. I got on amitryptaline and diazepam. I used about 50 mg of amitryptaline a night and that helped. Diazepam 2 to 5 mg was used when there were really bad spasms. I noticed a correlation of panic/fear and flares. Also, lack of sleep and flares. I often felt scared or doomed.

    I began doing yoga without failure daily. I had rituals. I meditated. Sitting started to become easier. By about June 2020 almost all pain diminished. Then in 2020 I got into a relationship with someone abusive. Pain began to come back. When it ended there was constant panic and soon the pain went more toward the bladder/bowels/uterus area. I would get shocks all day long. I got to the point I was using tramadol every so often and I had full body pain. I missed many days of work due to this. Then I began to convince myself I had endometriosis. I saw dr schecter and he told me to begin going to where I felt good which was nature and listening to music and being around friends. Doing those things more often helped. I was not big on the journaling and began to feel better. I still wanted an exploratory surgery for endo because I couldn't figure out what was going on. Dr. Schecter did let me know that sometimes surgery can flare us up more and what is odd is that after the surgery all the pain in the front diminished. Again, my pain moved. A month later I had rectal pelvic pain and coccyx pain.

    I went back to PT again which I had done on and off. I have been in PT for awhile. I am pregnant now so I cannot take my medicine.
    PT has helped eliminate the burning and spasms. However, I am in dire need of more TMS work. I do not believe this is structural in the sense there is nothing wrong with me. But I do believe my TMS causes me to tense my pelvic floor. IT has been the most beneficial for me to do TMS in unison with talk therapy with a regular therapist, and Pelvic floor therapy. I know some people do not agree with this but that is what helped in the past.

    I am looking for tips. I am really struggling when especially in pain days to get myself to do things like meditate. I do not seem to like journaling but I do realize it may be imperative. If there is any guidance or direction I would love that. I do like TMS therapy but I have insurance and do not want to pay out of pocket. If you know of therapists who take insurance let me know. I need help with how to get out of my head when the rectal pain is going on in unison with tailbone. Tailbone is constant or very little.


    Pelvic pt got me to identify triggers: Lack of sleep/stress/caretaking/obsessing/anxiety/panic/fear

    If you have any success with tailbone issues or rectal issues and pelvic issues please feel free to reply. I need to get on some kind of ritual. I Have not been medicated for over a year. Everything I am doing is pretty natural. I may go back on meds but would like to try tms with my PT in unison. I would like to keep it simple. I will take any advice. Thank you!