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Day 4 What was the most disheartening thing a doctor has told you about your symptoms?

Discussion in 'Structured Educational Program' started by plafield, Jan 19, 2019.

  1. plafield

    plafield New Member

    I've been lucky enough to realize that my coccydynia is TMS before I ran around to a lot of doctors. My PCP and the one "Pain Specialist" I saw both told me that there wasn't anything to be done other than special pillows, don't sit (not an option for my job) or injections of steroids and/or local anesthesia which are temporary, and pain meds. The most disheartening thing was hearing that they didn't know that actual cause and that often people suffer ongoing chronic pain for years and years from this condition.
  2. Aaricia

    Aaricia Peer Supporter

    How wonderful of them :) that what they went to school for several years!
    Mine dr when he saw me the first time for my back pain told me to do physical therapy and chiropractor. After 9 months when I came back still in pain he told me that at this level the pain became chronic and there is not much he can do about it.
    That’s why I decided to give up on this whole medical approach.
  3. plafield

    plafield New Member

    I have had chronic back pain for my whole adult life and after trying chiropractic for a year I gave up on the medical approach before I even knew about TMS and have just been ignoring it and doing my life for 35 years. I really believe that because I never gave it a lot of energy or felt afraid that something was terribly wrong structurally, it's been more than manageable and rarely interferes with my activities. But this pain in my tailbone was really bad and I got very scared about it, thinking it might be a tumor but my insurance denied an MRI to find out for sure. I did get an X-ray that was negative. I now believe that the level of fear and the time I spent focusing on the pain and how scared I was about it being a possible tumor and/or that it would never feel better really got my brain in the pain loop. Since finding out about TMS and working from this approach it's gotten 75%-90% better. It still fluctuates but that's how I know it's TMS and not some scary cancer or a structural coccyx issue.
    Fredric likes this.
  4. Aaricia

    Aaricia Peer Supporter

    Good work!
    Sound like your mind really took your energy to keep your attention out of your repressed emotions.
    Currently in in my second episode of tms. First time I had RSI so bad I couldn’t drive my car.
    I know this time is tms again but for some reason my body still refuses to get better.

    Keep it going!
    Last edited: Jan 26, 2019
    plafield likes this.

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