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Tingling pressure in face. Now burning & pelvic pain

Discussion in 'Support Subforum' started by redrobin, Jun 18, 2016.

  1. redrobin

    redrobin Newcomer

    i have had face pressure (bi lateral) 1 1/2 year and bladder/pelvic pain (1 year) I have been working through TMS but I have become worse. Burning pain I scalp & face. Had anyone had facial symptoms? I have come to accept its TMS but it has gone much worse & tonight it feels like my upper body is burning. It has been a hard 1 1/2 yeads
    Last edited: Jun 18, 2016
  2. Jacqui9

    Jacqui9 Peer Supporter

    Hi Redrobin,

    I have the bilateral face pressure/pain that you mentioned in your post. I do believe it is TMS. I have had it for about 3 years and thought it was probably a mindbody problem before I knew anything about TMS. I did discuss it with my doctor and she put me on a medication, Gabapentin, which did help most of the time. Once I learned about TMS I decided to taper from the medication and I am now almost off of it and the pain has not intensified which makes me confident that it is TMS and that eventually I will be completely off the medication and the face pressure will be gone. I am working on some other TMS issues at the same time so cannot completely separate them but I seem to be doing better in all areas. I have read in other posts that the pain sometimes gets worse before it gets better and have also read that the pain moves around.

    Just to be sure, I would suggest that you discuss all of your issues with your doctor if you haven't done so. If you can see a TMS doctor that would be great.
  3. redrobin

    redrobin Newcomer

    I have had an MRI & been told the trigeminal nerve is fine but bilateral face pain can't be that. I was told it was from clenching. Now I have burning in my scalp & face is awful. I think it is TMS. Medical doctors just don't have anything to say about bilateral face sensations. It has been relentless I had hoped it was TMS. It doesn't make sense.
  4. Jacqui9

    Jacqui9 Peer Supporter


    I understand when you say your face pain is relentless. It was all I could think about when I first got it. My guess is it is probably TMS. I don't know why but sometimes it takes longer for some to heal from TMS than others. My progress has been slow but steady. I try to read about TMS or do the SEP for an hour are so each day and I think that helps. Also, when I am feeling it I tell myself it is TMS and will eventually go away. I don't know if you can distract yourself from it. When I first had it I could not. I spent too many hours on the Internet trying to figure out what it was and if there was a treatment for it. Now most of the time I can ignore it.

    I am not clenching so I know mine could not be from that.

    I can tell you I understand because I had a very difficult time with it when I first got it. I'm hoping working more with TMS will help you get rid of the pain.

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