Stephanie71
Peer Supporter
Hi all,
Checking in for today. I am up and down with my symptoms and sometimes feeling so fully full of hope and 100 percent in acceptance that my pain and symptoms are generated by TMS ... and sometimes not. Sometimes it just feel so structural. It is really challenging to get beyond this, especially because it's my left leg and I'm "on it" every day.
One catch that I haven't been able to find in TMS forums is this strange sensation I get when I press on the peroneal nerve (the place on the outer leg at the top of calf just below the knee) there is often pain there and if I massage it I always feel nerve-y zapping sensations down to my foot. It scares me that there is some kind of nerve entrapment or damage. If it weren't structural, wouldn't this not be there every time I rub that area? It is always there. This was the very first area I started having symptoms years ago - a feeling of weakness and pain in the knee and leg area, back of knee area - and when I straighten both legs the left one feels much weaker and "unsupported" than the right, like the leg is hyperextending. The knee also repeatedly clicks. So hard to explain. But there are symptoms in the whole leg (diagnosed with piriformis syndrome and sciatica years ago.)
I saw a TMS doctor recently and he says the knee clicking is not necessarily a problem and that he thinks I have TMS. I think I have TMS, too. I mean, I know I do. But...
Advice on how to combat last nagging "it's structural" thoughts? Anyone have strange nerve sensations that seemed to always be there, not just tingling that comes and goes? (I have had that too; this seems different.)
Thanks for any replies. Much love,
Stephanie
Checking in for today. I am up and down with my symptoms and sometimes feeling so fully full of hope and 100 percent in acceptance that my pain and symptoms are generated by TMS ... and sometimes not. Sometimes it just feel so structural. It is really challenging to get beyond this, especially because it's my left leg and I'm "on it" every day.
One catch that I haven't been able to find in TMS forums is this strange sensation I get when I press on the peroneal nerve (the place on the outer leg at the top of calf just below the knee) there is often pain there and if I massage it I always feel nerve-y zapping sensations down to my foot. It scares me that there is some kind of nerve entrapment or damage. If it weren't structural, wouldn't this not be there every time I rub that area? It is always there. This was the very first area I started having symptoms years ago - a feeling of weakness and pain in the knee and leg area, back of knee area - and when I straighten both legs the left one feels much weaker and "unsupported" than the right, like the leg is hyperextending. The knee also repeatedly clicks. So hard to explain. But there are symptoms in the whole leg (diagnosed with piriformis syndrome and sciatica years ago.)
I saw a TMS doctor recently and he says the knee clicking is not necessarily a problem and that he thinks I have TMS. I think I have TMS, too. I mean, I know I do. But...
Advice on how to combat last nagging "it's structural" thoughts? Anyone have strange nerve sensations that seemed to always be there, not just tingling that comes and goes? (I have had that too; this seems different.)
Thanks for any replies. Much love,
Stephanie