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Stabbing Neuropathy

Discussion in 'Support Subforum' started by Onbts, Jul 9, 2022.

  1. Onbts

    Onbts New Member

    The title says it. Electric shock like sensations. Need some really bad encouragement. I have been feeling helpless and trapped in a depressive cycle for the past month. I do not have the funds to get any kind of peptides that help with this stabbing pain. I am using a benzo to sleep. It is inexplicably hard. I am just 22. It's like I'm stuck in time. The flare up of pain has been so traumatizing for me. I am so close to giving up. I really want to consider medications for autoimmune conditions. According to my hypothesis that might help since most of my neuropathy (if not all) has been a result of long covid (which has been hypothesized as an autoimmune response). But there is so much uncertainty around these treatments and so much cost to be borne. I have a diploma and a master's and so much sadness bcs I do not know if I even have the motivation to get through this. I am constantly scared I'll have a flare again. Constantly thinking I am not doing enough to relieve it. The only things that help are muscle relaxers. I fear that one day ill get addicted and it won't work. Also, that it may even be resistant to the medication. I have observed the vitamin d supplement helps a lot with this pain. But since it is widespread and sooooooo buried deep into the skin, my body never relaxes and keeps on fearing damage autonomically, so say a stabbing pain is felt, the body tenses again, and the cycle goes hereon. Like an endless loop of unbearable and impatience inducing misery. Moments filled with fear bcs a physical hybrid tms is what i theorize for this to be,... help me. I have been struggling as the indian doctors do not know about this tms theory plus they only give pregabalin and stuff i need the real stuff. And i am dependent on my parents. I am so resentful against them. I am so codependent. When will i be enough. I am feeling so defeated. This post covid cfs is very likely autoimmune. I need someone to validate this hypothesis and the tms theory so badly. I believe i can use both approaches to heal. In tandem. But i feel unheard and misunderstood and so alone and defeated and just. Depressed. Tired. Lonely. Loveless. Doubtful. I am also such a perfectionist. I hate myself.
     
    Last edited: Jul 9, 2022
  2. Onbts

    Onbts New Member

    I have this urge to delete the post bcs i may have put it in a way that no one understands. I want to keep editing it till it is acceptable. To be this perfectionist is so hard. I cannot even find the delete button.
     
  3. Cactusflower

    Cactusflower Beloved Grand Eagle

    I’m so sorry you are going through this! There are many people who have posted about long Covid, and it is being very much studied as a TMS equivalent. There are many long Covid success stories from people who have recovered from it, including someone I know. It is also known that some people do gave side effects but slowly those fade... perhaps because fear of Covid has lessened for them.
    Cfs is often a TMS symptom.
    I recommend you stop “hypothesizing” because really what is happening is your very over anxious, non- stop thinking brain (again, common with TMS folks) is creating worst case scenarios. What happens is that the brain WANTS you to think this is all physical instead of the hurtful realization that you are subconsciously terrified and perhaps angry, obviously frustrated and aren’t acknowledging your feelings. Instead you are blaming yourself for not getting well “correctly”.
    There is at least one study right now on long Covid, and how PRT -pain reprocessing therapy can help.
    You’ve been under massive internal stress, but you can do this! Remember the pain you experience is just a sensation, the cfs type symptoms are just symptoms - it hurts like hell but can’t harm you.
    There are free programs here that can help: https://www.tmswiki.org/forum/painrecovery/ (Pain Recovery Program)
    Here’s a success story:
     
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  4. Meu-retired

    Meu-retired Peer Supporter

    Oh dear god, I totally get you. Due to my back pain I was diagnosed with peripheral neuropathy and lo and behold I began to get stabbing electric like shocks, I thought I was going to go crazy. A long story short: I was given pregabalin but never used it but decided to read Dr Sarno again and totally accept it, totally! If you doubt it zaps you. Its quite simple and like a miracle: knowledge IS the cure. Believe dr Sarno. Read and read and reread until you get your aha moment. My stabbing pain cleared. Its TMS! Believe it. Good luck
     
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  5. Onbts

    Onbts New Member

    what! that sounds so wonderful. thank you for the response. may i ask you for more details via private conversation? please let me know! thanks.
     
  6. Onbts

    Onbts New Member

    thank you so much, I appreciate your reply. I would say I am being driven paranoid by my lack of sleep, definitely. also, any time I try PRT, the nerve pain- well. it shoots really sharply into my skin, making me convulse. It often makes things harder.
     
  7. Meu-retired

    Meu-retired Peer Supporter

    Well all cases are different but the bottom line, the truth is the same, its all our creation. I had an EMG test which came back with the result of Peripheral Neuropathy. That started a subconscious process, I guess, after I googled it -bad mistake- and I started having weird zaps or shocks in my spine, they would terrify me and leave me sweating, catastrophizing, my life is over etc. But in the past, at my darkest hours I always got out thanks to Dr Sarno. Please eliminate doubt, WE are creating this and we can kill it. I had my AHA moment after reading and thinking about my issues and how I do this to myself and when I reached that turning point in my head, the zapping diminished and in a few days disappeared. I am not a 100 percent yet but very functional. Read Sarno. Trust the process. He knew his game. Believe it.
     
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  8. Cactusflower

    Cactusflower Beloved Grand Eagle

    PRT is an entire process, does any of the PRT program make you feel more symptoms or does somatic tracking make you feel more symptoms?
    If it’s the program, keep going! You are definitely on the right track then. Go slow, little bits at a time. My own symptoms increased when I really tried to do this work. Your brain is just trying to control you, protect you, from feeling those emotions. If it is somatic tracking that increases pain you can try something called pendulation where you sort of “bounce” between your pain sensation and a “safe” ( where you have no pain, or use a pleasant memory) sensation or thought - which helps your nervous system realize you are safe in the moment even in pain.. or you just choose not to do it. I found pendulation very helpful and there are some videos with guidance on youtube.
     
    JanAtheCPA and Onbts like this.
  9. Meu-retired

    Meu-retired Peer Supporter

    All other alternatives might work yes, but I want to underscore what worked for me. No special exercises, no specialists, just good old knowledge as penicillin like Dr Sarno said. Read the books, think about inconsistencies and your own pain story.. no need to dig deep in your mind, just believe and understand it is tms and nothing else. That did it for me. Good luck
     
    JanAtheCPA likes this.
  10. JanAtheCPA

    JanAtheCPA Beloved Grand Eagle

    Honey, this is totally your brain on TMS. You're letting your fearful brain call the shots. Re-read the wise responses you have received from @Cactusflower and @Meu-retired. Then read them again. And then buckle down and do the work with self-love and compassion, and faith.

    ~Jan
     

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