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Sorry I keep revisiting this

Discussion in 'Support Subforum' started by tgirl, Mar 2, 2016.

  1. tgirl

    tgirl Well known member

    I think there is something that keeps popping in my head when I try to deal with the possibility of TMS. I feel most people have logical issues such as a sore back, RSI, sore neck etc. If my situation was 'normal' I would move along with TMS 100%, but there is a 'but'. My situation is strange, not run of the mill. I have a prickly sensation in the nerve endings of both legs ( not my feet). It's always on my legs but it moves around. Sometimes on one leg, sometimes the other leg, sometimes both- weird. I also get a surging adrenaline-like feeling that stems from my chest and adds to the prickly feeling. Being in bed reading and doing exercise help. It has gone away twice in the past. Also, I have been tested extensively by numerous doctors and everything comes back normal.

    My concern is that I never see this type of sensation mentioned in any of the TMS books. The closest would be sciatica nerve pain, which is different. Sciatica seems to fit in the normal realm to me. I suppose this haunts me a bit - hard to let go of the what ifs and believe me I know the what's ifs are counterproductive. Sorry for rehashing but I had to get it off my chest.
     
  2. Susan1111

    Susan1111 Well known member

    Tgirl firstly there is no need to be sorry. You are frightened and it's so very understandable.
    Let's think about what might calm you down...you've seen doctors and they can't find anything, this positive and a great first step. Do you have access to a TMS Doctor? If so I would advise doing so. And or have you worked with a TMS therapist who can help you work through your fears?
    My understanding is that unless and or until you believe 100% that it's TMS recovery will be difficult as the pain is winning.

    What also comes to mind is that when your relaxed reading in bed or caring for yourself via exercise you don't have the pain...was this mentioned before, it sounds familiar to me. You've noticed what you do when there is no pain now perhaps notice what is setting off pain.

    Hope some of this helps.
    Warmly, Susan
     
  3. tgirl

    tgirl Well known member

    Thanks again Susan for your thoughtful response. No I have never seen a TMS specialist but maybe this should be a step I take..
     
  4. Susan1111

    Susan1111 Well known member

    If you have access by all means do so!! Do whatever it takes to feel safe.
     
  5. Knut

    Knut New Member

    Hey tgirl, just out of curiosity, what do you mean nerve endings on the legs?

    I too have a very prickly feeling in the legs, moving around. very often on my shins. It moves around very fast. And often it gets stuck, and lodges itself as a prickly electrical sensation under my foot....but on certain days I don't feel the nervy feeling under my foot, but instead it moves all around my ankles and shin. Sometimes it reaches my groin. I also get the surge of adrenalin...the tickly tingly feeling is always accompanied with anxiety and fear.
     
  6. tgirl

    tgirl Well known member

    Knut that is interesting. What you described is very similar to what I experience. Has it been explained to you what this is? It's strange I felt fairly normal a lot of today and I haven't had that in a long time. I think I was more convinced that it was a mindbody thing today and that I wasn't dying. Haha
     
    MWsunin12 likes this.
  7. Tennis Tom

    Tennis Tom Beloved Grand Eagle

    Well there you go, with Knut there are two of you on the planet with the same TMS symptom. Since you mentioned the docs could not find anything wrong, I'll go out on a limb and claim you have TMS.

    The body's electrical system, or nervous system, can on occasion do some weird things. The gremlin in the un-c may be playing with some circuit breakers causing this for a TMS distraction. Have you looked at the Rahe-Holmes list for ideas on what events may have occurred to you in the last year that the gremlin wants to "protect" you from dealing with head-on?

    The nervous system is capable of some weird stuff. An example often mentioned is phantom nerve pain. That's when a limb is amputated, but the brain is still feeling sensations like it's still there. So, if the mindbody can do that, all the TMS symptoms are not that far fetched.
     
    tgirl likes this.
  8. tgirl

    tgirl Well known member

    Thanks Tennis Tom. I haven't looked at the list that you referred to but I will. Mine has been longer than a year unfortunately but I'll give it a shot.
     
  9. Knut

    Knut New Member

    Mine has also been longer than a year now, and i've been worried I have a neurological disease since it is so disturbing and, well, everywhere. I have had all kinds of test, and apparently I am super healthy in all kinds of ways. Somehow, I sometimes feel that I am too "high frequent" in my head and body, as if there is too much frequency in my meaty parts, that results in muscles knotting all over and sending aches and pains. Throughout the day, I get these electrical tingly feelings in my legs and feet. They are disturbing and often painful, but you know, the most uncomfortable feeling of all is the fear and constant anxiety that accompanies it...but I am now beginning to understand that it is because of fear and anxiety that they are there to begin with.

    I haven't checked the list, but I know I had a gun to my head as my bus got violently robbed in Colombia, and uniformed men started to shoot out the windows behind me, and a whole cascade of other events lately...so I'm pretty sure it's TMS and not after-effects of that tropical mosquito borne disease that I might have never had...
     
  10. tgirl

    tgirl Well known member

    Wow Knut it does sound like you have been through some stress situations. When mine first started a long time ago I had a bad flu and I kept blaming that, but after extensive testing no damage could be found and my symptoms just went away. My symptoms totally went away twice. Once a neurologist told me I was fine and I got better. This last bout began after an extended period of unbelievable stress and no matter what doctors have said since I haven't gotten better. I get very angry about this and I'm sure it doesn't help. I think this last time I really jangled my nervous system. Time to let it heal.
     
  11. Tennis Tom

    Tennis Tom Beloved Grand Eagle

    Don't get hung-up on the "one year" thing, that's a generalization. TMS shouldn't be taken too literally--
    that's PERFECTIONISM--the unconscious is GRAYmatter. TMS'ers have recovered from symptoms that have gone on for decades--10, 15 years. StveveO recovered from 25 years and he wrote the book.

    Here's the RAHE_-HOLMES page from the TMS WIKI:

    ://www.tmswiki.org/ppd/The_Holmes_and_Rahe_Social_Readjustment_Rating_Scale_(SRRS)
     
    tgirl likes this.
  12. tgirl

    tgirl Well known member

    Thanks TT. There are so many kind and thoughtful people on this site!
     

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