For over a year I had every symptom and test under the sun. The people on this forum helped me a lot!
My most bothersome symptoms were burning, tingling, crawling, prickling, numbness, hypersensitive nerve like pain (like I soaked in A535 rub). I also had extremely sore elbows (BOTH). It came and went and affected different areas of my body at different times. In fact, it changes minute by minute...
I have seen Rhumetologists, Neurologists, Holistic medicine, Chiropractors, Accupunturists, GPs...I have had MRIs of brain and spinal cord, tilt tests, small fiber neuropathy test, EMGs, blood work like crazy, ultrasounds, xrays, you name it...all normal.
After searching and obsessing about my symptoms, I just stopped altogether and decided to just live my life and eventually the symptoms all disappeared. They were gone for five months and I was sooooo happy.
The past few weeks, they are back with a vengeance and I feel so defeated and discouraged.
Have you seen people relapse? What causes this? What can I do to get better again? Is this evidence of stress illness? Will this always be my life?
CAN I GET BETTER AGAIN? DO I NEED TO REPEAT ALL OF THESE TESTS? I DO NOT WANT TO GO DOWN THIS RABBIT HOLE AGAIN, BUT NOW I AM SCARED I HAVE A NEUROLOGICAL DISEASE THAT COMES AND GOES.
Thank you for listening to me.
My most bothersome symptoms were burning, tingling, crawling, prickling, numbness, hypersensitive nerve like pain (like I soaked in A535 rub). I also had extremely sore elbows (BOTH). It came and went and affected different areas of my body at different times. In fact, it changes minute by minute...
I have seen Rhumetologists, Neurologists, Holistic medicine, Chiropractors, Accupunturists, GPs...I have had MRIs of brain and spinal cord, tilt tests, small fiber neuropathy test, EMGs, blood work like crazy, ultrasounds, xrays, you name it...all normal.
After searching and obsessing about my symptoms, I just stopped altogether and decided to just live my life and eventually the symptoms all disappeared. They were gone for five months and I was sooooo happy.
The past few weeks, they are back with a vengeance and I feel so defeated and discouraged.
Have you seen people relapse? What causes this? What can I do to get better again? Is this evidence of stress illness? Will this always be my life?
CAN I GET BETTER AGAIN? DO I NEED TO REPEAT ALL OF THESE TESTS? I DO NOT WANT TO GO DOWN THIS RABBIT HOLE AGAIN, BUT NOW I AM SCARED I HAVE A NEUROLOGICAL DISEASE THAT COMES AND GOES.
Thank you for listening to me.