Karolien
Newcomer
My name is Karolien. I was just looking at a picture of me, taken on February 26, 2018. The first day of a trip to Bulgaria with my boyfriend, whom I had known for about a year back then. I am smiling in this picture, but in reality I was crying deep inside. Two weeks before this picture was taken I unfortunately got infected with herpes (HSV1) via my boyfriend. He had no symptoms at the time of my infection. The symptoms I got were horrible. I've never been in so much (physical) pain in my whole life. After the herpes outbreak had visibly disappeared, the painful sensations in my vulva remained. To this day I am plagued and limited almost daily by burning, stinging, tingling pains in my vulva, buttocks, and sometimes even my legs.
In 2018 I was diagnosed with post herpetic neuralgia and generalized vulvodynia. Last year I was referred by my GP to a specialist in the field of pudendal neuralgia. This gynecologist does not rule pudendal neuralgia out, but also thinks of an overactive pelvic floor. She was able to determine this via an internal examination. This could explain the pain that I am experiencing. The fear and anger caused by the herpes infection (and trauma build up earlier during my life) may have caused my pelvis to spasm to the extent that an overactive pelvic floor has slowly developed.
I've tried several things to heal. Amitriptyline, gabanpentine, pain education, but none of this really helped. Unfortunately I had to stop with acupuncture due to Corona and the traveling distance. What gives me relative peace is yoga. The gynecologist who diagnosed my overactive pelvic floor referred me to a pelvic floor physical therapist. She recommended some easy exercises but it didn’t bring me any relief.
A few months ago I got interested in TMS, but I didn’t really dive into it. My symptoms were actually almost gone for a month, until two weeks ago they came back big time. Even symptoms that I’ve hadn’t experienced for more than a year.. Just when I got a little hope that this hell was slowly coming to an end it hit me as a boomerang. I don’t have a clue why this happened. I am tired and frustrated, but more and more convinced that TMS is key for healing.
In 2018 I was diagnosed with post herpetic neuralgia and generalized vulvodynia. Last year I was referred by my GP to a specialist in the field of pudendal neuralgia. This gynecologist does not rule pudendal neuralgia out, but also thinks of an overactive pelvic floor. She was able to determine this via an internal examination. This could explain the pain that I am experiencing. The fear and anger caused by the herpes infection (and trauma build up earlier during my life) may have caused my pelvis to spasm to the extent that an overactive pelvic floor has slowly developed.
I've tried several things to heal. Amitriptyline, gabanpentine, pain education, but none of this really helped. Unfortunately I had to stop with acupuncture due to Corona and the traveling distance. What gives me relative peace is yoga. The gynecologist who diagnosed my overactive pelvic floor referred me to a pelvic floor physical therapist. She recommended some easy exercises but it didn’t bring me any relief.
A few months ago I got interested in TMS, but I didn’t really dive into it. My symptoms were actually almost gone for a month, until two weeks ago they came back big time. Even symptoms that I’ve hadn’t experienced for more than a year.. Just when I got a little hope that this hell was slowly coming to an end it hit me as a boomerang. I don’t have a clue why this happened. I am tired and frustrated, but more and more convinced that TMS is key for healing.
. We can do this!