Hello,
I am from France (so please excuse the mistakes). I have EDS and I am now pain free since 6 years.
In a nutshell, I was suffering from intense join pain since childhood. At around 28, the situation went so bad that I was suffering all day long. I spent my days in bed, incapable of doing anything else. Even taking a shower was a nightmare. Painkillers didn't do anything for me.
I saw one of the biggest specialist of EDS in Europa. He said that it was clearly EDS and that I have to learn to live with that. But I didn't want to resign myself to live like an old lady at 28. So I made a lot of researches, read many books, etc. And I came to the conclusion that it was link to my emotions. I grew up in a very dysfonctionnal family with a lot of violence. I had to shut down my emotions and be the nice girl.
It took me a lot of time working on my emotions, healing my inner child, working on my perfectionnism and learning to say no to people. This forum and Dr Sarno's books helped me a lot. It wasn't an easy path. But I am so happy I did it! I am now 37 years old, working, doing a lot of volunteer work, and I have 2 girls. I am pain free since 8 years now. I can say now that having these painfull illness wasn't a curse but a blessing because it helped me to do the work to connect to myself, to learn how to be strong, confident, put clear boudaries and to speak for myself . I am so happy now! I love my life.
I am from France (so please excuse the mistakes). I have EDS and I am now pain free since 6 years.
In a nutshell, I was suffering from intense join pain since childhood. At around 28, the situation went so bad that I was suffering all day long. I spent my days in bed, incapable of doing anything else. Even taking a shower was a nightmare. Painkillers didn't do anything for me.
I saw one of the biggest specialist of EDS in Europa. He said that it was clearly EDS and that I have to learn to live with that. But I didn't want to resign myself to live like an old lady at 28. So I made a lot of researches, read many books, etc. And I came to the conclusion that it was link to my emotions. I grew up in a very dysfonctionnal family with a lot of violence. I had to shut down my emotions and be the nice girl.
It took me a lot of time working on my emotions, healing my inner child, working on my perfectionnism and learning to say no to people. This forum and Dr Sarno's books helped me a lot. It wasn't an easy path. But I am so happy I did it! I am now 37 years old, working, doing a lot of volunteer work, and I have 2 girls. I am pain free since 8 years now. I can say now that having these painfull illness wasn't a curse but a blessing because it helped me to do the work to connect to myself, to learn how to be strong, confident, put clear boudaries and to speak for myself . I am so happy now! I love my life.
Last edited:
