First, I apologize for my poor English.
I'm 28 years old woman from Finland. In my country tms seems to be a condition nobody knows about so I've been searching answers from this forum and I've read many stories that sound exactly like mine.
I've been in pain for almost an year now. It started suddenly, in one night, without any good reason. I was living stressful times and developed bad anxiety disorder. So the case is constant pain in my rectum and tailbone too. It's getting worse especially when sitting but never disturbs sleeping. Also drinking alcohol seems to be a way to get rid of this pain for a while. Last spring - when this started - the pain was horrifying. One time I fainted because of my pain and my boyfriend took me to hospital. I was afraid of endometriosis cause this pain started 4 months after I stopped taking birth control pills that I took for almost 14 years. But the gynecologist said that this kind of pain doesn't match with endometriosis. Also nothing was wrong in vaginal ultrasound and the pain didn't follow menstrual cycles etc. The doctor mentioned levator ani syndrome as one of the possibilities causing the pain. After that I went home. Sometimes pain was worse (the most difficult pain lasted about 30 minutes at a time but never went fully away expect at nights) and sometimes there were days or weeks with only mild pain. Sometimes there's also electric shock feelings in my rectum, vagina and urethra. Sometimes I feel knife-like pain when urinating. One doctor mentioned also pudendal neuralgia because the symptoms match quite well with that.
I've seen almost 10 different specialists. Nothing in gynecologist examinations (I've seen 5 gynecologists because I couldn't get rid of the fear of endometriosis) , nothing also in mri pictures of brain, pelvis or spine. Nothing in blood tests and enmg-test. Everything seems to be normal. The only "finding" was quite tight anal. Still I'm suffering from this every day. My anxiety is getting worse and the pain seems to follow my feelings; it's usually worse when I'm stressing more or feeling really anxious. It feels like I can't relax my anal spinchter at all, even when trying. When in pain, I'm truly afraid of endometriosis, even though I know my symptoms don't fit in that syndrome and I don't have the most important symptoms of endometriosis. And when I'm afraid of endometriosis and start to think of that, the pain is getting worse. That's one hell of a cycle I can't get rid of.
I'm taking pregabalin and amitriptylin for my pain, also sertralin for my anxiety and depression. Nothing helps. Luckily it's not as bad as it was last year and the electric shock feeling comes seldom. Oh and there's also muscular fasciculations in my whole body every day. That started about a month later the pain started.
So I'm starting to believe I have tms. Cause there seems to be nothing wrong with me. Could it be possible? Pudendal neuralgia, levator ani syndrome, tms... Nobody seems to know. So I'm asking your help. What should I do next, what should I think?
I'm 28 years old woman from Finland. In my country tms seems to be a condition nobody knows about so I've been searching answers from this forum and I've read many stories that sound exactly like mine.
I've been in pain for almost an year now. It started suddenly, in one night, without any good reason. I was living stressful times and developed bad anxiety disorder. So the case is constant pain in my rectum and tailbone too. It's getting worse especially when sitting but never disturbs sleeping. Also drinking alcohol seems to be a way to get rid of this pain for a while. Last spring - when this started - the pain was horrifying. One time I fainted because of my pain and my boyfriend took me to hospital. I was afraid of endometriosis cause this pain started 4 months after I stopped taking birth control pills that I took for almost 14 years. But the gynecologist said that this kind of pain doesn't match with endometriosis. Also nothing was wrong in vaginal ultrasound and the pain didn't follow menstrual cycles etc. The doctor mentioned levator ani syndrome as one of the possibilities causing the pain. After that I went home. Sometimes pain was worse (the most difficult pain lasted about 30 minutes at a time but never went fully away expect at nights) and sometimes there were days or weeks with only mild pain. Sometimes there's also electric shock feelings in my rectum, vagina and urethra. Sometimes I feel knife-like pain when urinating. One doctor mentioned also pudendal neuralgia because the symptoms match quite well with that.
I've seen almost 10 different specialists. Nothing in gynecologist examinations (I've seen 5 gynecologists because I couldn't get rid of the fear of endometriosis) , nothing also in mri pictures of brain, pelvis or spine. Nothing in blood tests and enmg-test. Everything seems to be normal. The only "finding" was quite tight anal. Still I'm suffering from this every day. My anxiety is getting worse and the pain seems to follow my feelings; it's usually worse when I'm stressing more or feeling really anxious. It feels like I can't relax my anal spinchter at all, even when trying. When in pain, I'm truly afraid of endometriosis, even though I know my symptoms don't fit in that syndrome and I don't have the most important symptoms of endometriosis. And when I'm afraid of endometriosis and start to think of that, the pain is getting worse. That's one hell of a cycle I can't get rid of.
I'm taking pregabalin and amitriptylin for my pain, also sertralin for my anxiety and depression. Nothing helps. Luckily it's not as bad as it was last year and the electric shock feeling comes seldom. Oh and there's also muscular fasciculations in my whole body every day. That started about a month later the pain started.
So I'm starting to believe I have tms. Cause there seems to be nothing wrong with me. Could it be possible? Pudendal neuralgia, levator ani syndrome, tms... Nobody seems to know. So I'm asking your help. What should I do next, what should I think?
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