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it's my lack of results that's making me doubt

Discussion in 'Support Subforum' started by eskimoeskimo, Jan 30, 2016.

  1. Boston Redsox

    Boston Redsox Well Known Member

    That's why I won't go again ....I feel if your dr can't find anything wrong then it's tms ...know if your dr comes up with some physical causes but can't explain why then I can see going to a TMS dr?
  2. Tennis Tom

    Tennis Tom Beloved Grand Eagle

    Hi Marco, thanks for responding to my questions, one more if you don't mind. You referred to your doctor as a "quack". What made you say that?
  3. Boston Redsox

    Boston Redsox Well Known Member

    Good question TT , he tried giving me some herbal powder to relieve the pain i was having in his office...I said what does this have to do with tms?

    He could not explain why....I got dressed paid him and ran
  4. karinabrown

    karinabrown Well known member

    hi everyone,

    follow this post with great interest,
    want to ad my experience so far( i am dutch forgive my bad english please)
    i have been 'on the search or even maybe say 'hunt' for diagnoses for plus 3 years.
    lately, even before reading about tms 6 weeks ago ..i realized this search is a dead end : when psysically they cannot find it : how many tests am i going to want to do..how many drs to see ? or to be even clearer: how many months..years..do i want to stay on that road when it is not working..
    more orthodics? different therapists? etc
    more specialists ?

    i had my share of remarks from doctor who really did not know, but made stupid remarks anyway that made me upset! some of them really stick to me and kept me awake..going over it again and again..
    when you think about it realistic it is a waste of time.but i know what it can do to you: they make matters worse.
    i made more progress in the months i let the search thing go ( i was do tired of it all)
    that has to mean something! when in went back in the search path' anxiety came back so more suffering. because i am never fully recoverd went back.
    now want to go on the tms road..maybe not 100 % sure : but maybe for some that is part of this; after so many years of pain : hope.faith etc are the scariest things on the planet because you are affraid to be dissapointed again.

    but it is the only way : maybe move forward with fear..maybe that can be outcome indepedent mean too ?
    start a journal anyway..start exploring things even when you have doubts even when you are affraid
    a diagnoses from someone seems the highest thing : maybe it is overated? maybe need your own believe..
    i know i do!
    hope any of this makes sense to you !

    Last edited: Feb 19, 2016
    Tennis Tom likes this.
  5. Tennis Tom

    Tennis Tom Beloved Grand Eagle

    Hi Karina,

    Welcome to the good ship TMS Hope! You're English communication skills are just fine--the language of chronic pain is universal and easily understood by all who've been there. Your overview and outlook are right. The white-coats could not find any accurate structural evidence for your pain--that leaves the path of TMS hope to be explored. There's enough KNOWLEDGE PENICILLIN here to overcome the NOCEBOS you've been given and start your deconditioning/reconditioning process to a happy life.

    G'luck and welcome to hope,
    Susan1111 likes this.
  6. karinabrown

    karinabrown Well known member

    thank u Tennistom!
    read a lot of interesting things here en opions. it is a journey and not 'one size fits all' you have to try and figure out stuff.
    that's good
    maybe you made a good point : a better life should maybe be the best goal
    more balance..more piece of mind
    maybe less pain will follow after..so start backwards
    i hope that is the way!

  7. Susan1111

    Susan1111 Well known member

    Karina Tennis Tom said it so beautifully.. I love the good ship TMS hope! Is that like the good ship lollypop?
    I will just add welcome and get ready for the journey into you.
    Hopefully pain will be gone and your life will get better.
    Tennis Tom likes this.
  8. karinabrown

    karinabrown Well known member

    thanks! Susan

    and to Eskimo: please do not give up!
    it happens i know but still get back on trying.
    made one decision last year : my life cannot not only be about 'surviving' that's what we do when we are in pain. don't we?
    days filled with 100 % pain and fear and worry: wich is not living
    so had to add something that was about 'living' instead of 'surviving'..found something and it workt for a part : not nearly enough but a small thing can give a tiny bit more space to cope and from that point work further up.
    what i mean : the life in pain is a more than fulltime job (and a very heavy one) that leaves no room for some kind of fun..joy..anything good
    so must find something that makes it a fat parttime job(even better : no more job..but when that is not possible for now: that's something)
    if you can get there ..there is some space created to move slowly forward..on the path to more joy in life.
    because i did not improve for a long time and had no results : this is what i have been doing and there came tiny improvements..not enough ..but still better than nothing and more hopefull than before.
    so maybe you can find a start to work from..
    for the rest : hopefully find inspiration, info, feetback
    and hope here. try and try and try.like me too and many others
    good luck
  9. eskimoeskimo

    eskimoeskimo Well known member

    Thank you Karina. I'm still in the 100% pain and fear zone, but messages like yours help. The full-time job metaphor is apt. Being afraid is exhausting work. Wishing you the best, E.

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