Itching or skin issue success stories?

[lalaland]

Hey all,

I’ve been suffering from chronic vulval itching for over 2 years, and I’m really at the end of my rope.

I’ve been making learning about TMS and trying to apply the theory/exercises my second full time job, but I really need some evidence that it can get better for my symptom.

I’ve seen no success stories on chronic itching anywhere and I really feel like I need at least one as hope. I also have visible redness and skin changes on my vulva so being pointed in the direction of any skin success stories would be SO APPRECIATED!

Love to all.

 

[Baseball65]

I was just typing a response while you were posting. It's on the anal itching question.

Yes, I have a perm-itch spot on my leg that only bothers when I am under pressure. I Imagine like pain, it just chooses somewhere you'll be likely to believe and that is good and distracting

 

[lalaland]

I was just typing a response while you were posting. It's on the anal itching question.

Yes, I have a perm-itch spot on my leg that only bothers when I am under pressure. I Imagine like pain, it just chooses somewhere you'll be likely to believe and that is good and distracting

Thank you for replying! It’s definitely distracting!! What helps you when you’re itchy?

 

[Baseball65]

Turning my mind and thinking about what might be bothering me that I am not aware of yet. This skill came from reading Sarno's books. It is always something my conscious mind doesn't have time to deal with

 

[GhostlyMarie]

https://www.tmswiki.org/forum/threads/new-here-suspect-tms-for-pelvic-floor-issue.4728/#post-29308

These videos and comments on the linked post may be helpful! Abigail had itching with her vulvodynia and she healed. However I will say that if you are trying to find someone with your exact symptoms, it’s going to make it harder to heal from TMS. No two people will have the same symptoms and no two people will have the same experiences that lead to TMS! The more you try to find someone, the more fear you build when you can’t. It will only keep your nervous system on high alert. I have vulvar itch but it’s fading. Mine was due to “pudendal neuralgia” which is a big TMS condition. I don’t care about my symptoms anymore as I know they will just fade away in time. The key is to not give them power. Live your life!

 

[lalaland]

https://www.tmswiki.org/forum/threads/new-here-suspect-tms-for-pelvic-floor-issue.4728/#post-29308

These videos and comments on the linked post may be helpful! Abigail had itching with her vulvodynia and she healed. However I will say that if you are trying to find someone with your exact symptoms, it’s going to make it harder to heal from TMS. No two people will have the same symptoms and no two people will have the same experiences that lead to TMS! The more you try to find someone, the more fear you build when you can’t. It will only keep your nervous system on high alert. I have vulvar itch but it’s fading. Mine was due to “pudendal neuralgia” which is a big TMS condition. I don’t care about my symptoms anymore as I know they will just fade away in time. The key is to not give them power. Live your life!

Thank you for these videos, that is really helpful will defo watch. And I also really take your point and its like i know that myself, I think my visual symptoms are what’s been stopping me from believing, because there are much LESS similar stories out there. But I totally agree with you and think you’re right that it won’t be helping me

 

[Honolulu26]

Hey all,

I’ve been suffering from chronic vulval itching for over 2 years, and I’m really at the end of my rope.

I’ve been making learning about TMS and trying to apply the theory/exercises my second full time job, but I really need some evidence that it can get better for my symptom.

I’ve seen no success stories on chronic itching anywhere and I really feel like I need at least one as hope. I also have visible redness and skin changes on my vulva so being pointed in the direction of any skin success stories would be SO APPRECIATED!

Love to all.

hi! I am experiencing the same symptoms as you it sounds like. I have vulvar itching and maybe some redness but no infections. I am seeing a specialist soon to rule out anything since my gyn was very dismissive. I have successfully healed from back pain using tms methods. I have also experienced bladder pain for years that has finally improved but was replaced with this itch! It does improve for periods of time but it’s hard to shake the doubt that itch in this area could be tms, especially when I’ve heard people recover from vulvar pain but not itch.

 

[GhostlyMarie]

hi! I am experiencing the same symptoms as you it sounds like. I have vulvar itching and maybe some redness but no infections. I am seeing a specialist soon to rule out anything since my gyn was very dismissive. I have successfully healed from back pain using tms methods. I have also experienced bladder pain for years that has finally improved but was replaced with this itch! It does improve for periods of time but it’s hard to shake the doubt that itch in this area could be tms, especially when I’ve heard people recover from vulvar pain but not itch.

Sounds like symptoms imperative/extinction burst!

 

[lalaland]

y

hi! I am experiencing the same symptoms as you it sounds like. I have vulvar itching and maybe some redness but no infections. I am seeing a specialist soon to rule out anything since my gyn was very dismissive. I have successfully healed from back pain using tms methods. I have also experienced bladder pain for years that has finally improved but was replaced with this itch! It does improve for periods of time but it’s hard to shake the doubt that itch in this area could be tms, especially when I’ve heard people recover from vulvar pain but not itch.

yes it sounds like we have super similar situations! i think if you have already had TMS and healed back pain before it sounds like this is just another form. also i had severe bladder pressure/frequency/pain for 8 months during all of this which is like 95% gone now so we really are very similar. Also if it helps, i emailed Dr Howard Schubiner about my symptoms and he said they are highly likely to be TMS and that he has helped people with vulvar itching before. Also definitely watch the videos ghostlymarie posted above, they definitely helped me!
feel free to message me if you want to support each other

 

[Honolulu26]

Sounds like symptoms imperative/extinction burst!

Thanks for your reply! I would like to think so too!

 

[Honolulu26]

y


yes it sounds like we have super similar situations! i think if you have already had TMS and healed back pain before it sounds like this is just another form. also i had severe bladder pressure/frequency/pain for 8 months during all of this which is like 95% gone now so we really are very similar. Also if it helps, i emailed Dr Howard Schubiner about my symptoms and he said they are highly likely to be TMS and that he has helped people with vulvar itching before. Also definitely watch the videos ghostlymarie posted above, they definitely helped me!
feel free to message me if you want to support each other

Thank you so much for this info, that is so helpful! Yes, I’d love to connect, it can be so hard to find people with similar symptoms in this case. I will message you

 

[bbdeeby]

Hey all,

I’ve been suffering from chronic vulval itching for over 2 years, and I’m really at the end of my rope.

I’ve been making learning about TMS and trying to apply the theory/exercises my second full time job, but I really need some evidence that it can get better for my symptom.

I’ve seen no success stories on chronic itching anywhere and I really feel like I need at least one as hope. I also have visible redness and skin changes on my vulva so being pointed in the direction of any skin success stories would be SO APPRECIATED!

Love to all.

Hello! I just happened to stumble across your post as I was browsing the wiki, but I wanted to share my experience as I have also had vulval itching with redness as TMS that I have managed to get rid of about 90%. The 10% because I still have flare ups from time to time, but they are short. When I have a flare up, the skin is visibly red and during the initial suffering from this it was like that for months and months. As a side note, I have also suffered from Interstitial Cystitis for years which also turned out to be TMS.

To tell you my story, I saw a gynaecologist who didn’t know much and tried a hell of a lot of things. In the end my magic combination has been to come at it from the emotional side (I do JournalSpeak à la Nicole Sachs) whilst also treating from the physical side. There is a lot of interesting research about how the pelvic floor can be involved in nervous system wind up. There is a lady called Jilly Bond who has some really interesting content about it. Basically I think she explains well the mechanism underlying TMS of the pelvic floor through central sensitisation etc even though she does not call it TMS.

What helped me is to use lidocaine ointment daily and do pelvic floor therapy stretching. These both help calms the nerves which are going crazy.

I will also say, your vulva naturally will be redder at some times compared to others. Like if you were sitting for a long time or you are ovulating. I say this because I no longer have symptoms and sometimes my vulva is still red. Try not to get obsessive about checking all the time - I know it’s hard but you can see problems which aren’t there.

 

[JanAtheCPA]

Thank you for that response, @bbdeeby - it's very helpful for our community members with these symptoms.
All the best for you in 2026!

 

[lalaland]

Hello! I just happened to stumble across your post as I was browsing the wiki, but I wanted to share my experience as I have also had vulval itching with redness as TMS that I have managed to get rid of about 90%. The 10% because I still have flare ups from time to time, but they are short. When I have a flare up, the skin is visibly red and during the initial suffering from this it was like that for months and months. As a side note, I have also suffered from Interstitial Cystitis for years which also turned out to be TMS.

To tell you my story, I saw a gynaecologist who didn’t know much and tried a hell of a lot of things. In the end my magic combination has been to come at it from the emotional side (I do JournalSpeak à la Nicole Sachs) whilst also treating from the physical side. There is a lot of interesting research about how the pelvic floor can be involved in nervous system wind up. There is a lady called Jilly Bond who has some really interesting content about it. Basically I think she explains well the mechanism underlying TMS of the pelvic floor through central sensitisation etc even though she does not call it TMS.

What helped me is to use lidocaine ointment daily and do pelvic floor therapy stretching. These both help calms the nerves which are going crazy.

I will also say, your vulva naturally will be redder at some times compared to others. Like if you were sitting for a long time or you are ovulating. I say this because I no longer have symptoms and sometimes my vulva is still red. Try not to get obsessive about checking all the time - I know it’s hard but you can see problems which aren’t there.

hi!! omg thank you so much for commenting!! i appreciate it so much. i didn’t get a notification for your comment, so sorry i haven’t replied

that is so amazing to hear of a similar story to mine which is a success. i also have had itch and bladder symptoms, and funnily enough nicole sachs has been one of the key things i’ve thought could help me. i will also research jilly bond, tbh that seems like the sort of stuff i need to hear rn.

hope you don’t mind but ill message you as i would appreciate it so much just asking some questions about what helped and how you kept going!