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I may have developed PGAD - Persistent genital arousal (male)

Discussion in 'General Discussion Subforum' started by kendis125, Sep 20, 2019.

  1. kendis125

    kendis125 Newcomer


    I am freaking out for the past couple of days. I have been having IBS for more than a year, but not so bad for last couple of months.

    Since sunday I needed to go really badly to toilet, but I postponed it to monday. So, eventually on monday I went, not sure if poop pushed on my nerves or something, but maybe that triggered it?

    However, I also have urethritis that I am treating with autovaccine, started month ago. I take it for 10 days and then 20 days not. I am nearing the 20 day cycle and will start taking it tommorow. Maybe this is something I am feeling because of urethitis? I felt stabbing/cutting pain in my penis on monday.

    Anyways, I have been having problems since tuesday. It started happening on bus ride in the morning, since then I have been feeling each day more and more aroused sexually, I feel like my whole penis shaft is very hypersensitive in a sexual way, and I keep getting those surges of feelings where for no reason get something like "almost orgasms"? I feel this sometimes when I just walk, or when I sit, or when I am on a bus.

    Masturbation doesnt relieve it at all, hell, I tried masturbating like 8 times yesterday and all it did is make it worse. It was never enough. It is certainly not solution. And I know I am not horny because I do not think about anything sexual and I feel it randomly. However, after masturbation I also felt swelling/burning pain somewhere between my intestines and bladder. Maybe my prostate is inflamed?

    So, this is day four since this started and it is driving me crazy. I almost feel like crying. I cannot even go out, sometimes those feelings get so strong that they become totally overwhelming and I do not wish them to overcome me and finish myself off in public like a creep. Stopping them is however extremely difficult.

    I wish and hope that all of this is only in my head and is happening because I focus on it, but I fear that it might not be. That is what I am trying to tell myself, that it is only in my head. I am extremely terrified that life as I know it is finished.

    Please, what should I do? Does it sound like PGAD? Or have I started feeling those surgres/hypersensivity because I felt it once in bus on tuesday and since then I have been focusing on this? Or could it be result of urethitis or could it have been that need on monday to poop triggered it ?

    I am seeing a GP on monday,on tuesday urologist and in week and half a neurologist.

    What do I need to get tested for please to rule PGAD out?
  2. JanAtheCPA

    JanAtheCPA Beloved Grand Eagle

    This is not a question we can answer here because we are not medical professionals.

    The focus of the work we do includes getting people to stop describing the lengthy details of their physical symptoms, and start referring to their symptoms in the most generic and simplest way possible while learning how to think psychologically instead of physically, based on the theories of Dr John Sarno, who has written several very well-known books on the subject of psycho-physiological disorders.

    You have posted uncomfortably intimate details of symptoms but there is no indication that you have done any research regarding the purpose of this forum. I understand that this could be desperation, but I have to be honest, it also occurs to me that there are people who might derive something from doing this. As you can see, your post has not attracted any replies in over a day, which means that other people are steering clear. As a forum moderator, I felt I needed to address both possibilities.

    Here's the suggestion: go to the main page of our wiki at tmswiki.org and start reading about TMS, then post again. If you want to discuss symptoms, do it as generically as possible, keeping it to only a couple of words, such as "possible PGAD" or "urethral pain". No details! This is a habit you need to develop IF you are dealing with the mindbody condition we call TMS - but you won't be able to say that this is possibility until (1) you complete your medical exams and (2) you know what TMS is.

    It's also possible that you have mental or emotional problems that are beyond the scope of this forum, and I would seriously advise, in addition to being checked out by medical professionals, that you please also seek immediate psychotherapeutic help.
  3. NicoleB34

    NicoleB34 Well known member

    i've had this, it's the worst symptom i've ever felt. It was like a mix of arousal and throbbing electricity. it's one of the hardest pains to have and not freak out. first off, dont panic because you'll feed the pain. I know, easier said than done. When i flare these days, i dont analyze it any more. i dont obsessively think things like "will it be gone by the weekend? was it worse today?" Instead, i try to say to myself "yeah, it sucks, but it doesnt matter why it's flaring...it will calm down. maybe tomorrow, maybe in a week. but it will. just trust that. it's not dangerous even if it is unpleasent". Then i try to do everything i'd normally do as if i wasnt in pain.

    PGAD is a subset of pudendal neuralgia, and PN is almost always TMS. There's a reason pelvic pain conditions like interstitial cystitis, IBS, etc. tend to cluster together. Some doctors call the whole group of conditions under the name "chronic pelvic pain". It's because many of those lower pelvic organs share a similar nerve network, and if the brain ramps up the sensitivity of one pelvic location, it can very easily "jump" to a nearby structure. I know i made it sound more clinical, but there is a very strong brain component in all of pelvic pain. Some doctors will call this central sensitization, and people here will call it TMS. It's all pretty similar and mind/body techniques can really help.
  4. Dorado

    Dorado Beloved Grand Eagle

    I agree.
    keenie82 likes this.
  5. keenie82

    keenie82 Peer Supporter

    I really don't think you need to get tested. You just have to have acceptance. It is a symptom of TMS and it will pass. Try not to focus on it and just live your life normally. It will go away and likely it will jump to some other location. Sending you so much love!
    Jane.Fearless likes this.
  6. westb

    westb Well known member

    Very helpful summary and a good reminder of how to deal with flares - always useful, at least to me @NicoleB34. Thanks. I have the IBS/rectal spasm and IC symptoms and I've always believed they were linked, even before learning about CS/ TMS. It really does come back to acceptance, trust and soothing, along with the inner work.
    Last edited: Oct 8, 2019
  7. NicoleB34

    NicoleB34 Well known member

    the timing is great because i'm not in a horrible PGAD flare mixed with pain, and i suspect it was caused by a stressful event at work. I do sometimes struggle taking my own advice when i'm in serious pain. Right now, the thing that honestly saves me when i'm having a horrible flare that meds cant dull (yes, i still occasionally take extra meds in a time of crisis since the nature of my job doesnt allow for many days off. we have to be able to function in society after all) but in an acute flare, a TENS unit can be a life saver. I dont know if you own one, but these days you can get them off amazon (dont bother with the types that allow tons of electrodes, 2-4 is fine and easier to deal with). When i have bad rectal pain, i find that the TENS takes almost 100 percent of it away, but only while it's on, and it can be annoying to walk around with electrodes stuck to you, but anyway, for rectal pain, putting one electrode right on top of the strongest point of pain (in my case, just inside the butt cheek, you'll need to remove hair btw!) and the second (you need at least two for the machine to work) somewhere else like the sitbone or sacrum. The rectal branch is really close to the surface so i find it works best for rectal pain. Perineum pain is harder to treat because the nerves are deeper. Same with urinary pain, i havent had luck with the unit because of nerve depth.

    For PGAD, it depends where you feel the sensations. if it's deep in the perineum or urinary tract, then the TENS may not help, but if it's the tip of the penis, then i find that the TENS unit can scramble the nasty signals pretty well. You'll have to put one electrode as low on the pubic bone it can go, pretty much at the beginning edge of the genitals, then the other electrode by the sitebone or sacrum. Again, you'll have to remove hair! this method of putting the electrode at the bottom of the pubic bone can block some of the signals of the dorsal pudendal branch which controls genital sensation. I'd say it takes about 50% of the icky feeling away. Seriously consider a TENS if you can. It's not always miraculous, but sometimes it is.

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