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Derek S. How do I overcome the desire to get rid of my pain?

Glad I found this thread. Foot pain is my primary symptom too. My worst pain is when I have to wait in line at a supermarket, or stop to chat with a co-worker. If I'm moving it's less painful; but those "in-between" moments are hell. I get massive relief from removing my shoes and socks, which seems odd.

I started cycling a while back and, of course, now I'm getting hand pain (totally new symptom.) TMS blows. I have no fear of structural damage anymore, but I have a real strong tendency to obsess over symptoms. Sucks living this way. I hope we can all find contentment soon.
 
Map76- my pain presents the exact same way. Running is far better than standing still. It is TMS and we will get better. I've decided to work with a therapist in Alan Gordon's practice to try to get to the bottom of it.
 
Same here guys .....when I stop or rest pain is much worse all indomis embrace it meaning in don't fight it and eventually its passes.

Working with a therapist is great but once you start talking about the same issues over and over your time with them is done. That's what my experience was with them. In use a regular therapist to basically vent my emotions and fears.
 
Boston- I just spoke on the phone with a patient of Alan Gordon's. After 2 1/2 years of working with him, his 17 years of feet pain is gone! That was great to hear and motivational for me!
 
Boston- I just spoke on the phone with a patient of Alan Gordon's. After 2 1/2 years of working with him, his 17 years of feet pain is gone! That was great to hear and motivational for me!
Did he mention any "a-ha!" moments? Or was it more a gradual process of undoing the pain/fear cycle?
 
For him it was gradual and then one day just clicked. He didn't feel like he had small wins but rather just stuck with it and then the pain just left! I'm know everyone is different but it was helpful to know it could potential take awhile.
 
That bike video was really interesting and informative!! It deeply encouraged me not to give up, as I didn't realise how it could take so long to rewire my neural pathways. Fascinating stuff! :)
 
Hi WantToBelieve,
Your follow-up question poignantly articulates the main dilemma most people face in TMS recovery. I'd like to lay out a plan that I think will give you a good chance of success.

First off, even if you believe intellectually that your pain is TMS, on a gut level, you absolutely believe that standing causes the pain. It's impossible not to given the fact that your pain intensifies the longer you stand. So the first step would be working to override this gut-level conclusion.

It's a tricky thing, it requires belief in the TMS diagnosis to gather evidence, yet it often requires evidence to solidify that belief.

I have a former patient who had the same condition you have for 17 years and is now recovered. I'd like to link you up with him. Sometimes speaking with someone who recovered from the same symptom you have can help with the belief piece.

From there it's a matter of telling yourself over and over, "I know there's nothing wrong with my feet, this is a conditioned response, my brain is wired to send me pain signals when I stand, but it isn't the actual standing that's causing the pain."

It's important to emphasize this repeatedly until it becomes part of you. You are not trying to get rid of the pain with this behavior and should not expect to, you are simply trying to override the evolutionary instinct of associating pain with structural damage.

The more you emphasize that, the more you come to believe it, that is success.

From there you work to try and tease out your preoccupation with the pain. This is no easy task, I can see from your posts that it has a deep hold on you.

I work with a therapist who's pretty great at helping patients break conditioned responses and symptom-preoccupation. If you like, I can hook you up with him as well.

Your neural pathways are deeply set, it goes like this: standing -> pain -> frustration/despair/fear. This stimuli/response/feeling state is deeply ingrained, but it's not who you are, it's just what you do. And it isn't set in stone.

You can change your neural pathways, it just takes time, effort, and patience. This backward bicycle youtube clip articulates the difficulty of altering our most deeply set neural pathways, as well as our potential triumph:

Alan
Hi, may I have the name of that therapist too? I am on Day 11 of the Structured Recovery Program & want to finish it out & see how it goes. If I still need help after Day 42 though I may contact the therapist. Thank you!
 
That 'backwards brain bicycle' video (as seen in a posting above) is really interesting...

I learned to ride a bike merely by watching other kids ride their bikes and imagining that it was me on those bikes. (My parents wouldn't let me have a bike of my own.) My mother was astonished when she saw me on my friend's bike (which didn't have stabilisers) just ride off on it with no problems - without my ever having been on a bike before! (I hadn't realised that people usually needed to learn to ride a bike by physically practicing to do it!) So, in connection to the video and neuroplasticity and my own experience of the latter in relation to learning to ride a bike - albeit we are adults and it's generally harder for adults to change 'learned behaviour' and learn new things than it is for children - even just imagining/visualizing the changes we want to make could work well TMS cure-wise.

I also wonder if the guy in the video had regularly ridden both a normal bike and the backwards bike (alternating between the two) he would/should have been able to swap from one to the other easily and without any problems.
 
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