I’ll address both Maddy and Rabbit here as I had intended to respond to Rabbit on her thread. Save me saying everything twice.
I am over 18 months down the line from where you both are now. I too had an MRI that showed a herniated disk at L5-S1 with impingement of the nerve and had a TMS doctor tell me it was structural. How do you come back from that? I was in complete despair. I was downing three or four different prescription drugs that were not really helping and I hadn’t originally intended to take them long term. I was seeing a therapist at the time so I was able to vent some of my frustration and anger about this diagnosis, whatever I could cram into the 50 minute hour. At first I went back to treating sciatica as a structural issue and had some sessions with an osteopath. That too did not help. I had some correspondence with SteveO of Great Pain Deception fame and even though he wasn’t a doctor I decided he knew far more about TMS than the TMS doctor. I had two choices. The first was to ignore the entire diagnosis, take a leap of faith and believe I had TMS. The alternative could have involved an endless path of doctors, alternative practitioners, a drug dependency and an extremely restricted life full of danger and fear. It wasn’t a difficult choice.
Oh by the way when I visited my GP to hear the results of my MRI he told me that if he set up a scanner on the street and scanned every pedestrian that walked past, he would find most of them had abnormalities like I had but they wouldn’t necessarily be in any pain. This is exactly what Dr Sarno says in his books. The funny thing was this GP had never read or heard of Dr Sarno. Despite Maddy’s doc saying he parted company with Dr Sarno on this point is pretty foolish given there are studies to prove that what’s on an MRI image does not necessarily correspond with a person’s pain experience. Sometimes it does correspond, like with us, but that isn’t conclusive proof that our pain isn’t a result of TMS.
One step I took that really was a turning point for me was enrolling on an 8-week mindfulness meditation course. It was instrumental in allowing me to switch off, calm down and wean myself off the drugs.
I’m pretty sure if I were to have another MRI now it would probably show a similar image, perhaps even worse as I’m that much older and my body is going through all sorts of changes. But then again so is my mind.
Am I still in pain. The answer is ‘yes’, sometimes. The back and sciatic pain are gone but I still get TMS in my foot and when that goes away I get TMS in my knee or I experience some other equivalent to pain. The difference is my attitude is changed. I don’t care if I have symptoms or not. I’m not looking for one final day where I never have anything wrong with me ever again (outcome independence). I simply don’t let symptoms stop me from doing what I plan to do. In the past I would have cried off of all sorts of obligations. Now if I want to do something, I “Just Do It”, as Nike and SteveO say. That’s not to say any of you needs to put on your running shoes and sign up for a marathon. Take things at your own pace. Do what you have to do to educate yourselves further, speaking to someone like Dr Schubiner, starting the SEP or whatever. At some point when you feel more confident, less fearful resume living the life you want to live.
The most difficult concept to accept was knowing for whatever reason I needed my pain, that it was there to protect me from underlying rage and other strong emotions. I’m still on the journey to discover what that’s all about but I’m enjoying the journey rather than dreading it or being angry and upset with myself for being the person I am.