Full body nerve pain

[Jenniferdisco]

Hey there everyone!
First time poster

I am looking for some support and insight.
I have been on this journey for about 6 months and thought I was making progress from my original symptom of low back pain.

as of about 2 months ago, my pain started to spread, it’s more like burning and numbness, into my legs and arms. It has now spread to my whole body. Clothing is difficult, showering is awful and anything that touches me is horrible. I have tingling and nerve shocks in every part of my body. It’s become so intense that I have a hard time attending to regular life (mothering, cleaning, cooking, driving)

I am working with a coach and she is wonderful, but have only experienced daily intensifying of symptoms.

Anyone ever feel this???

with love,
Jennifer

 

[lkelse]

Hey there everyone!
First time poster

I am looking for some support and insight.
I have been on this journey for about 6 months and thought I was making progress from my original symptom of low back pain.

as of about 2 months ago, my pain started to spread, it’s more like burning and numbness, into my legs and arms. It has now spread to my whole body. Clothing is difficult, showering is awful and anything that touches me is horrible. I have tingling and nerve shocks in every part of my body. It’s become so intense that I have a hard time attending to regular life (mothering, cleaning, cooking, driving)

I am working with a coach and she is wonderful, but have only experienced daily intensifying of symptoms.

Anyone ever feel this???

with love,
Jennifer

Hello Jennifer yes I have been there. My full body burning came after I developed severe anxiety from a health scare. It lasted a few months until I was finally convinced it was a symptom of anxiety. Once I got the anxiety somewhat under control and stopped the fear loop cycle, it did get better. I am not a hundred percent but the all over body burning has gotten better. It is very scary but know you are not alone, a lot of people have it.

 

[Jenniferdisco]

Thank
You so much!! Is there anything you did, in particular? I’m a yoga/ meditation instructor (go figure!! lol)
And these things are just not helping, however, I really question how much I’m actually doing and how much I’m actually just going through the motions of it.
It makes me anxious just to think
About how I used to be able to be so at peace.

 

[JanAtheCPA]

@Jenniferdisco, have you looked into doing the Structured Educational Program on the main TMSWiki.org? Which Sarno books do you have? Any other resources that you've spent significant time with?

 

[lkelse]

Thank
You so much!! Is there anything you did, in particular? I’m a yoga/ meditation instructor (go figure!! lol)
And these things are just not helping, however, I really question how much I’m actually doing and how much I’m actually just going through the motions of it.
It makes me anxious just to think
About how I used to be able to be so at peace.

I was the exact same way not much of a care in the world and very happy and then bam, the health scare sent me over the edge. I had a lot more than just the body burning, I had tremors, jaw pain, insomnia, dyspepsia, allodynia, the whole nine yards. Then a wonderful chiropractor told me that my body could heal itself. I shifted my mindset and started taking time for myself and exercising more and sleeping regularly at night and journaling and meditating and it just slowly calmed down over time. It really took for someone to tell me I could heal to believe that I could.

 

[Jenniferdisco]

@Jenniferdisco, have you looked into doing the Structured Educational Program on the main TMSWiki.org? Which Sarno books do you have? Any other resources that you've spent significant time with?

HI
Thanks for the response! I have read all the books, the way out by alan gordon, steve ozanich, Unlearn Your Pain, and currently am using the Pain Reprocessing workbook. I have worked with two TMS coaches and had a visit with John Stracks. I meditate and journal daily and prioritize movement even when it feels impossible.
I know, it's alot and my fear is more intense than ever because of all the work and knowledge that I have. I am worse daily. Each day I am terrified about what ELSE will come. It's pretty awful

 

[Cactusflower]

I had the "nerve shocks" in my back. The anxiety from back pain (and many other symptoms) just made things so much more difficult. I reminded myself it was all temporary, and with the help of a few folks (here and other areas of my life) and doing the SEP (which I ended up doing twice), I got much better.
The "nerve shocks" and all other symptoms have pretty much gone (occasionally visit, but I know what they are now, no fear, no anxiety) ... I still have symptoms at times but am doing so much better.

You'll get there.
No self-pressure, but complete determination.
No self-judgement, and an understanding that this is not your fault. No "Shoulds" just because you already operate in the mind/body arena.
Start an evidence sheet if you have not yet, https://www.tmswiki.org/forum/threads/the-benefit-of-an-evidence-sheet.2292/

If you have not read a book by Claire Weekes, I think she will be a wonderful companion to what you are doing. You'll recognize so many of her techniques are utilized in current mind/body work.

The SEP will teach you many new insights.

Let us know how you are doing as you progress!

I'm adding that if you have done all that work, and have all that knowledge then it's time for you to let go. You're in the phase right now of trying to control your healing and "fix" - you need to let go, allow, etc. It doesn't mean you don't do the other things, it just means that you need to let it be here for now. Just for now. Not for ever. Just for now. Accepting the just for now and then refusing to think about the "what if's" - by forcefully turning my mind to other tasks (this is when distraction is a good thing) is when I started to turn a corner.

 

[Jenniferdisco]

I was the exact same way not much of a care in the world and very happy and then bam, the health scare sent me over the edge. I had a lot more than just the body burning, I had tremors, jaw pain, insomnia, dyspepsia, allodynia, the whole nine yards. Then a wonderful chiropractor told me that my body could heal itself. I shifted my mindset and started taking time for myself and exercising more and sleeping regularly at night and journaling and meditating and it just slowly calmed down over time. It really took for someone to tell me I could heal to believe that I could.

And it sounds like patience...... which I am running out of and i know that is contributing. My anxiety and fear are definitely at the wheel

 

[Jenniferdisco]

I had the "nerve shocks" in my back. The anxiety from back pain (and many other symptoms) just made things so much more difficult. I reminded myself it was all temporary, and with the help of a few folks (here and other areas of my life) and doing the SEP (which I ended up doing twice), I got much better.
The "nerve shocks" and all other symptoms have pretty much gone (occasionally visit, but I know what they are now, no fear, no anxiety) ... I still have symptoms at times but am doing so much better.

You'll get there.
No self-pressure, but complete determination.
No self-judgement, and an understanding that this is not your fault. No "Shoulds" just because you already operate in the mind/body arena.
Start an evidence sheet if you have not yet, https://www.tmswiki.org/forum/threads/the-benefit-of-an-evidence-sheet.2292/

If you have not read a book by Claire Weekes, I think she will be a wonderful companion to what you are doing. You'll recognize so many of her techniques are utilized in current mind/body work.

The SEP will teach you many new insights.

Let us know how you are doing as you progress!

Thank you so much!! Yes, Claire Weeks, just came by my awareness and I listened to her book. She is like Mary Poppins and I love her work. It is all so textbook to me, but the shift just does not seem to come (or to be fair, last very long). I will check out the SEP and keep in touch! It seems so crazy that this could just all go away. I feel like I am so far gone. There is too much to resolve.

 

[Cactusflower]

Thank you so much!! Yes, Claire Weeks, just came by my awareness and I listened to her book. She is like Mary Poppins and I love her work. It is all so textbook to me, but the shift just does not seem to come (or to be fair, last very long). I will check out the SEP and keep in touch! It seems so crazy that this could just all go away. I feel like I am so far gone. There is too much to resolve.

I would suggest if you've been focusing on audio books, that you begin to look at print books that you own and can pick up and read at any time. This is a huge benefit, very comforting to have right there with you. Same with a book by Sarno. Just grab one and read a bit every single day. Bathe yourself in the idea that this works.

 

[Jenniferdisco]

I would suggest if you've been focusing on audio books, that you begin to look at print books that you own and can pick up and read at any time. This is a huge benefit, very comforting to have right there with you. Same with a book by Sarno. Just grab one and read a bit every single day. Bathe yourself in the idea that this works.

Good idea!!!! I get away from it when symptoms intensify feeling disappointed, rather than turning towards

 

[Jenniferdisco]

Good idea!!!! I get away from it when symptoms intensify feeling disappointed, rather than turning towards

I would suggest if you've been focusing on audio books, that you begin to look at print books that you own and can pick up and read at any time. This is a huge benefit, very comforting to have right there with you. Same with a book by Sarno. Just grab one and read a bit every single day. Bathe yourself in the idea that this works.

It takes constant exposure, right?

 

[Cactusflower]

It takes constant exposure, right?

It’s assurance. You are currently looking for assurance, both now in your conscious mind, but also the subconcious. The subconscious, or Id wants be in control to keep you safe. It’s scared to let go so it scares you into attempting to keep a tight reign on everything.. to put you in a box. Reading those books, especially from a trusted source is a way to teach all levels of yourself that you can let go without falling, that you are just fine as you are “because they say so”. I think it’s why people love Claire Weekes. Granny says you are going to be ok!

 

[Jenniferdisco]

It’s assurance. You are currently looking for assurance, both now in your conscious mind, but also the subconcious. The subconscious, or Id wants be in control to keep you safe. It’s scared to let go so it scares you into attempting to keep a tight reign on everything.. to put you in a box. Reading those books, especially from a trusted source is a way to teach all levels of yourself that you can let go without falling, that you are just fine as you are “because they say so”. I think it’s why people love Claire Weekes. Granny says you are going to be ok!

You are a gift thank you!

 

[Rabscuttle]

Start shifting how you view these ‘flare ups’. It’s super easy in these moments to just fall into utter despair, the fear loop of this being forever etc. but when we soften at how we respond in these moments we can make true lasting progress. Is that easy, HELL NO! You have to force it as first, force yourself to smile while the symptoms are flaring, force yourself to give praise, to be self compassionate, force yourself to do hobbies that truly bring you joy and happiness. We absolutely have to challenge the base narrative of sheer panic at our situations. When we see flare ups as opportunities not just shittiness, good things will follow. And then the symptoms start to lower and you start getting that evidence that this possible and momentum can build.

Yes to constant exposure. You know what triggers the symptoms- Clothes, showers, touch. Expose yourself, put on a pair of uncomfortable clothes, sit with the symptoms, praise yourself for your resilience, , know that this will pass,. You know it’s TMS, you know nothing is ‘wrong’. And if symptoms flare or worsen, thank the primitive brain for giving you a ‘challenge’ you know you can meet.

Post vasectomy pain was issue that led me to TMS. I was in an absolute F’ing panic. I was terrified of underwear lol, because specific types made it feel like I had constant insect bites or a terrible sunburn in an unfortunate area. Once I became TMS aware the first thing I started doing was wearing those uncomfortable pairs of underwear and just sitting with and embracing the sensations. I can wear whatever I want now.

you need to start believing in yourself. You can get through this

 

[Jenniferdisco]

Start shifting how you view these ‘flare ups’. It’s super easy in these moments to just fall into utter despair, the fear loop of this being forever etc. but when we soften at how we respond in these moments we can make true lasting progress. Is that easy, HELL NO! You have to force it as first, force yourself to smile while the symptoms are flaring, force yourself to give praise, to be self compassionate, force yourself to do hobbies that truly bring you joy and happiness. We absolutely have to challenge the base narrative of sheer panic at our situations. When we see flare ups as opportunities not just shittiness, good things will follow. And then the symptoms start to lower and you start getting that evidence that this possible and momentum can build.

Yes to constant exposure. You know what triggers the symptoms- Clothes, showers, touch. Expose yourself, put on a pair of uncomfortable clothes, sit with the symptoms, praise yourself for your resilience, , know that this will pass,. You know it’s TMS, you know nothing is ‘wrong’. And if symptoms flare or worsen, thank the primitive brain for giving you a ‘challenge’ you know you can meet.

Post vasectomy pain was issue that led me to TMS. I was in an absolute F’ing panic. I was terrified of underwear lol, because specific types made it feel like I had constant insect bites or a terrible sunburn in an unfortunate area. Once I became TMS aware the first thing I started doing was wearing those uncomfortable pairs of underwear and just sitting with and embracing the sensations. I can wear whatever I want now.

you need to start believing in yourself. You can get through this

It’s good to know that we can still find humor in our uncomfortable undies!
I have like only 3 pairs I will wear right now cuz the rest make me feel uncomfortable. I’m
Gonna have to shift!
I appreciate your post so much and will take your words to practice. It’s sooooo different than what we are set to do on intuition

 

[Yine]

Hi how are you now?

 

[ficus]

Hi Jenni

Hey there everyone!
First time poster

I am looking for some support and insight.
I have been on this journey for about 6 months and thought I was making progress from my original symptom of low back pain.

as of about 2 months ago, my pain started to spread, it’s more like burning and numbness, into my legs and arms. It has now spread to my whole body. Clothing is difficult, showering is awful and anything that touches me is horrible. I have tingling and nerve shocks in every part of my body. It’s become so intense that I have a hard time attending to regular life (mothering, cleaning, cooking, driving)

I am working with a coach and she is wonderful, but have only experienced daily intensifying of symptoms.

Anyone ever feel this???

with love,
Jennifer[/QUOTE

Hi jennifer

How are you travelling now ? Same issues here - have dived into the work and it is helping some so far - everyday is a challenge still - but the mind is opening up