Hi Everyone: I'm a 33 year old female with the typical TMS personality. Last fall, all of a sudden, I could not exercise on the treadmill anymore and my reflexes became hyperreflexive with stiffness behind the knees. For about a month before that, I noticed my feet were staying cold chronically. During this time, I had gone gluten free and was feeling a lot better in general. Over time, the cold feet got worse, and I was having IBS symptoms at the same time this all started. I went to the doctor, chiropractor, etc... and everything was coming out normal (besides some small antibodies for hashimotos - which the endocrinologist I went to see recently dismissed - I always found it odd anyway). Well, during all of this, I felt like I couldn't walk in heels all of a sudden with the pain behind my knees. I also wasn't as well coordinated as I was - my right foot also started having odd twitching in the big toe which has now advanced to all 5 toes on that foot. I went to the neurologist in January. He did an EMG and NCV. Everything came out normal. I also got MRIs on my brain and entire neck and spine. Everything came up clear. Fast forward to early March - I went to the rheumatologist. Everything came out clear. I went to the movement disorders specialists about a week later that my neuro referred me to - they say I have a rare disorder called painful legs moving toes (PLMT). I don't have ALS, MS, or Parkinson's. Some days I wonder if I have ALS, and nothing got picked up on the EMG at that time (even though it was done around January 21st). There's the anxiety talking. I have twitching all over - sometimes, my face has literally twitched (one side of it). Sometimes, I feel weak when I hold a coffee cup, or it feels like the skin is burning between my thumb and index finger. My hands feel like they burn. My elbows feel like something is pulled. I'm afraid my hands will end up like my feet and that somehow I will become totally disabled and unable to work, etc... which has always been a huge pleasure of mine. I really feel like my entire life has been taken from me. I am a Christian, but I am having a hard time right now. I used to wear high heels, fix my hair, etc... and now I'm just someone with aching, twitching, spasming knees and toes (left isn't as bad as right). Now, I barely get it together. I can't help but think a lot of this is mind body as I was fearing several things before I was diagnosed with PLMT that would be progressive, and lo and behold, I have symptoms. I'm afraid I won't be able to drive. I'm afraid any increase in activity will make my symptoms worse (and I have seen this happen at times). I just don't know what to do next. I know I need to see my psychologist again, but I really think I might need to Skype with a professional that has an understanding of this type of thing. I feel like a total mess, and I just want my life back. I'm tired of my fingers hurting, tired of my toes twitching, etc... I just want to live again...a full life. As I type right now, my elbow has a spasm/twitch and everything begins to get sore all down my arm. Sometimes, the fingers tingle. I don't know what to do, but I have got to get things together and live no matter what. I am including a video of what happens with my foot. It is almost continuous, unless I am sleeping. I'm desperate for help, motivation, and people that care. I feel like a lot of my friends/family think I'm crazy. It's been a rough road the last few months.