Hello all,
I'm new to this site, and new to the idea of TMS (thank you Howard Stern - a champion of Dr. Sarno's work...and a bababooey to you all)
I've been suffering for three years from Chronic Pelvic Pain. I've had all the symptoms one could imagine, with an ever growing list of pains, suffering, suicidal thoughts, and more questions with nearly every 'answer' I've found.
Three years ago, I was originally diagnosed with Chronic Bacterial Prostatitis. Upon receiving a lengthy course of antibiotic treatments, the 'infection' (as the studies show only 5% of men with CPPS actually have any sort of infection within the prostate) was removed.
There after, a diagnosis of CPPS was introduced to me. This included symptoms that vary in many ways, including (but certainly not limited to):
* Frequesnt Urination
* Erectile Dysfunction
* Pain in perenium
* Pain in buttocks
* Pain in Legs, Thighs, and Lower back
After suffering with this for about a year, I attended the Wise-Anderson clinic in California to address a 'holistic' approach to treating my pain. Upon several months of gradual reduction in pain/symptoms, I developed a burning sensation - this went from the back of the legs at my knees all the way through to the middle of my back. Redness developed in the genitals. Burning was constant, then turned to tingling. These were items which couldn't really be explained by the experts with the Wise-Anderson protocol, and was wrote off as an 'overstimulated nervous system' - No S%*@!. Every single day of your life in pain, measuring said pain constantly measuring it on some bogus numeric scale (is it a 3 out of 10, or is it an 8 out of 10? Who the hell can even remember what an 8 felt like two weeks ago versus the 8 that you render it to be now?), who's nervous system WOULDN'T be overstimulated??
I was so depressed that I could barely perform any of my functions. My career as an engineer has suffered, my friendships have suffered, my ability to even go and get out of the house has been limited...
Finally, an osteopath suggested I have an MRI done. Not surprisingly, two bulging discs and a protruding disc in my lumbar spine. Then of course, as the pelvic pain (ie:, trigger points) reduced, the 'nervey' burning, tingling increased substantially.
I've been to Urologists, Neurologists, Physical Therapists, Osteopaths, Chiropractors, Accupuncturists, Naturopaths, TCM Practictioners, any of this sound familiar?
With the pain, I've continued to isolate myself. Alone, depressed, and desperate many days. Most days. Every single goddamned DAY!!! OCD developed in the form of a constant measuring of where the pain was at, would my junk 'work' if I were ever to actually have faith enough in myself and my current issues to reveal it to a woman I was interested in, but that's always been an exposure/vulnerability that I'm less and less inclined to approach. Being 34 and single, I'm currently aching for the chance to FINALLY meet someone and maybe (just maybe) have the opportunity to start a family. Have always put it off though until 'I was healthy'...however, that day has yet to come.
Finally, over the holidays I had my members of my family out to visit me. In the midst of my father's visit (in which I do harbor repressed anger/suppressed rage due to the high amounts of pressure he put on me growing up as a child), I had a complete relapse in nearly ALL of my symptoms. Also not surprising, prior to his visit I was feeling pretty good...pain was limited to one region, and felt like I could almost 'function'. But then, every single item mentioned above came back one morning with a vengence. I panicked...while trying to suppress it and 'save face' in front of my father (because the last thing he thought you should ever do was wear your emotions on your sleeve - that's something weak people do).
Nonetheless, I finally gave in. I had heard Howard Stern mention this again (yes, I am a regular listener - hopefully that won't be held against me in this forum), how Dr. Sarno saved his life. So I purchased the Mind-Body Perspective...and have found so much of me (as I'm sure we all have) in the book. Ive always been harder on myself than anyone else, I hold myself to a standard that I would never hold anyone to, and every mistake I've ever made has been met with rebutles to myself of 'you're a moron, a complete failure, how could anyone love me?'...amongst many other qualities and situations I would endure due to my lack of self-esteem.
I've read through the book once. Am now on my second go. Have decided to say to hell with it, have begun a daily yoga practice (despite what the professionals have instructed me to do - only mild exercises approved by them with lots of bed rest), and am diving in to the TMS recovery program.
Even in some mild journalling I've started, I've found that I will have these moments thereafter wherein the pain is gone (or, at least seems relatively gone compared to the hell I'd been in before - I would dare say 'normal' if I could even recall what the hell 'normal' felt like anymore). I know the pain will come back (as it always does).
I put this off for the longest time. Thinking that this couldn't be a manifestation derived from the unconcious brain. I always felt dealing with the physical pain was far less daunting than what the mental pain would bring. I'm scared of what's inside my head - hell, I would refuse journalling of any sort for years prior, because as soon as it's on paper - it becomes REAL. And that was something I was just not willing to undergo.
Until now. I'm left with no other option. However, I'm holding on to hope...as that seems to be the only thing left to ride out.
I was never able to appreciate any aspect of life...but now, I know that if I can ever find my way out of this hell, I will live, love, and laugh to the fullest forever and ever. But with that, I have to go ahead and find a way to do so in the meantime. No easy feat. But something one can only hope for.
Life's too short and too precious to be defined by my pain.
Thank you for listening,
I'm new to this site, and new to the idea of TMS (thank you Howard Stern - a champion of Dr. Sarno's work...and a bababooey to you all)
I've been suffering for three years from Chronic Pelvic Pain. I've had all the symptoms one could imagine, with an ever growing list of pains, suffering, suicidal thoughts, and more questions with nearly every 'answer' I've found.
Three years ago, I was originally diagnosed with Chronic Bacterial Prostatitis. Upon receiving a lengthy course of antibiotic treatments, the 'infection' (as the studies show only 5% of men with CPPS actually have any sort of infection within the prostate) was removed.
There after, a diagnosis of CPPS was introduced to me. This included symptoms that vary in many ways, including (but certainly not limited to):
* Frequesnt Urination
* Erectile Dysfunction
* Pain in perenium
* Pain in buttocks
* Pain in Legs, Thighs, and Lower back
After suffering with this for about a year, I attended the Wise-Anderson clinic in California to address a 'holistic' approach to treating my pain. Upon several months of gradual reduction in pain/symptoms, I developed a burning sensation - this went from the back of the legs at my knees all the way through to the middle of my back. Redness developed in the genitals. Burning was constant, then turned to tingling. These were items which couldn't really be explained by the experts with the Wise-Anderson protocol, and was wrote off as an 'overstimulated nervous system' - No S%*@!. Every single day of your life in pain, measuring said pain constantly measuring it on some bogus numeric scale (is it a 3 out of 10, or is it an 8 out of 10? Who the hell can even remember what an 8 felt like two weeks ago versus the 8 that you render it to be now?), who's nervous system WOULDN'T be overstimulated??
I was so depressed that I could barely perform any of my functions. My career as an engineer has suffered, my friendships have suffered, my ability to even go and get out of the house has been limited...
Finally, an osteopath suggested I have an MRI done. Not surprisingly, two bulging discs and a protruding disc in my lumbar spine. Then of course, as the pelvic pain (ie:, trigger points) reduced, the 'nervey' burning, tingling increased substantially.
I've been to Urologists, Neurologists, Physical Therapists, Osteopaths, Chiropractors, Accupuncturists, Naturopaths, TCM Practictioners, any of this sound familiar?
With the pain, I've continued to isolate myself. Alone, depressed, and desperate many days. Most days. Every single goddamned DAY!!! OCD developed in the form of a constant measuring of where the pain was at, would my junk 'work' if I were ever to actually have faith enough in myself and my current issues to reveal it to a woman I was interested in, but that's always been an exposure/vulnerability that I'm less and less inclined to approach. Being 34 and single, I'm currently aching for the chance to FINALLY meet someone and maybe (just maybe) have the opportunity to start a family. Have always put it off though until 'I was healthy'...however, that day has yet to come.
Finally, over the holidays I had my members of my family out to visit me. In the midst of my father's visit (in which I do harbor repressed anger/suppressed rage due to the high amounts of pressure he put on me growing up as a child), I had a complete relapse in nearly ALL of my symptoms. Also not surprising, prior to his visit I was feeling pretty good...pain was limited to one region, and felt like I could almost 'function'. But then, every single item mentioned above came back one morning with a vengence. I panicked...while trying to suppress it and 'save face' in front of my father (because the last thing he thought you should ever do was wear your emotions on your sleeve - that's something weak people do).
Nonetheless, I finally gave in. I had heard Howard Stern mention this again (yes, I am a regular listener - hopefully that won't be held against me in this forum), how Dr. Sarno saved his life. So I purchased the Mind-Body Perspective...and have found so much of me (as I'm sure we all have) in the book. Ive always been harder on myself than anyone else, I hold myself to a standard that I would never hold anyone to, and every mistake I've ever made has been met with rebutles to myself of 'you're a moron, a complete failure, how could anyone love me?'...amongst many other qualities and situations I would endure due to my lack of self-esteem.
I've read through the book once. Am now on my second go. Have decided to say to hell with it, have begun a daily yoga practice (despite what the professionals have instructed me to do - only mild exercises approved by them with lots of bed rest), and am diving in to the TMS recovery program.
Even in some mild journalling I've started, I've found that I will have these moments thereafter wherein the pain is gone (or, at least seems relatively gone compared to the hell I'd been in before - I would dare say 'normal' if I could even recall what the hell 'normal' felt like anymore). I know the pain will come back (as it always does).
I put this off for the longest time. Thinking that this couldn't be a manifestation derived from the unconcious brain. I always felt dealing with the physical pain was far less daunting than what the mental pain would bring. I'm scared of what's inside my head - hell, I would refuse journalling of any sort for years prior, because as soon as it's on paper - it becomes REAL. And that was something I was just not willing to undergo.
Until now. I'm left with no other option. However, I'm holding on to hope...as that seems to be the only thing left to ride out.
I was never able to appreciate any aspect of life...but now, I know that if I can ever find my way out of this hell, I will live, love, and laugh to the fullest forever and ever. But with that, I have to go ahead and find a way to do so in the meantime. No easy feat. But something one can only hope for.
Life's too short and too precious to be defined by my pain.
Thank you for listening,