Hello all. I am new to this forum. I have never heard of TMS. A little over a year ago I started experiencing issues with my right/dominant hand. Specifically, my middle fingers would involuntarily try to extend whenever I was typing. I am an attorney, so I type daily. My issues were limited to my right hand during typing. Shortly thereafter, I was diagnosed with focal hand dystonia. The strange thing is that as I joined several dystonia groups and forums, it seemed as if my symptoms were somewhat different. Most people with dystonia get involuntary spasms or fixed postures, and there localized to one area. Specifically, those with hand dystonia typically get a clenched fist. I've never experienced that.
Fast-forward to today and I have many different symptoms. Every so often, I have a sudden, large involuntary inhalations/breaths. I'll get maybe 10 of those a day. Also, most recently I have the most strange sensations in both of my arms. It's difficult to describe, but it feels as if my arms, and most notably my wrists, are uncoordinated. I will get the feeling when I am doing certain tasks like shuffling through paperwork, etc. I am able to carry out those tasks, but it almost feels as if my arms or wrists are doing strange things when in fact they are not. In other words, it seems to be more of an issue with my sensory perception as opposed to my motor abilities. Also, when I have a very deep yawn my upper arms and abdomen will flutter. Also, I will occasionally get extreme tension in the toes of my right foot. These body-wide symptoms are definitely significantly worse in times of stress or anxiety.
I've been to see many doctors including my GP and a neurologist. They've done numerous tests and haven't found anything structurally wrong with me. The neurologist diagnosed me with dystonia and seems to chalk up all of my symptoms to that diagnosis. She has ruled out more serious conditions like Parkinson's. Now I suppose that because dystonia is a spectrum disorder, that could explain my symptoms. But dystonia in adults is typically focal and localized to a certain area. In my case I get these sensations throughout my entire body, most noticeably the strange uncoordinated sensations in both arms and wrists. So I am just reaching out to see whether anyone else has experienced these same symptoms.
Fast-forward to today and I have many different symptoms. Every so often, I have a sudden, large involuntary inhalations/breaths. I'll get maybe 10 of those a day. Also, most recently I have the most strange sensations in both of my arms. It's difficult to describe, but it feels as if my arms, and most notably my wrists, are uncoordinated. I will get the feeling when I am doing certain tasks like shuffling through paperwork, etc. I am able to carry out those tasks, but it almost feels as if my arms or wrists are doing strange things when in fact they are not. In other words, it seems to be more of an issue with my sensory perception as opposed to my motor abilities. Also, when I have a very deep yawn my upper arms and abdomen will flutter. Also, I will occasionally get extreme tension in the toes of my right foot. These body-wide symptoms are definitely significantly worse in times of stress or anxiety.
I've been to see many doctors including my GP and a neurologist. They've done numerous tests and haven't found anything structurally wrong with me. The neurologist diagnosed me with dystonia and seems to chalk up all of my symptoms to that diagnosis. She has ruled out more serious conditions like Parkinson's. Now I suppose that because dystonia is a spectrum disorder, that could explain my symptoms. But dystonia in adults is typically focal and localized to a certain area. In my case I get these sensations throughout my entire body, most noticeably the strange uncoordinated sensations in both arms and wrists. So I am just reaching out to see whether anyone else has experienced these same symptoms.