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Desperate

Discussion in 'General Discussion Subforum' started by mbsgal85, Jun 3, 2025.

  1. dystonicrunner

    dystonicrunner Well known member

    @mbsgal85 Right it is a long journey and I expect that the dystonia, etc will be a tendency that I have for my life. However, with really only "doing the work" since May 1st I've made huge improvements. Even though the flares come (dystonia, pain, tinnitus, itching, whatever) I recognize them for what they truly are, and I can address them how they need to be addressed. What I used to think was a flare up or worsening of symptoms was more evidence of a terrible destiny that I had with an awful neurological disorder that ruined everything I loved - with few successful treatments and I would share the same fate as the awful people who told me I was screwed. None of that is true. I've proven that to myself time and time again. I am not putting any time line on my recovery, I have one in my mind that I think I will do just because I think that's what going to happen. Like it's just a feeling I have. It's long. But I also know that the overall trajectory will be in the right direction. I have felt better in the last few weeks and more like a normal person, not even my old self, a new and better self, than I have in the last 18 months which was full of hell and despair.
     
    Diana-M and JanAtheCPA like this.

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