1. Our TMS drop-in chat is today (Saturday) from 3:00 PM - 4:00 PM DST Eastern U.S. (New York). It's a great way to get quick and interactive peer support. Bonnard is today's host. Click here for more info or just look for the red flag on the menu bar at 3pm Eastern.
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  2. Alan has completed the new Pain Recovery Program. To read or share it, use this updated link: https://www.tmswiki.org/forum/painrecovery/
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Day 4

Discussion in 'Structured Educational Program' started by LisaC, Feb 21, 2019.

  1. LisaC

    LisaC New Member

    Today’s Question is: What was the most disheartening thing a doctor has told you about your symptoms? In what ways have you kept that in your mind?

    What a good question! I was so desperate to figure out what the strange pain was that I was having back in 2016. At first I thought it was hemmeroids (proctologist told me it wasn’t). Then I thought it was my tailbone but a visit to my GP didn’t help. He never physically examined me. (Can you believe that?) I insisted on an X-ray and it didn’t even go low enough to show my whole tailbone! He said “you have a bulging disc in your low back.” I already knew that (after years of on and off back pain that I now know was TMS)! That disc wasn’t even in the area that hurt. He just didn’t want to mess with it.

    I searched and researched online and finally found a “Tailbone Doctor”. I live in TX and flew all the way to NJ to see him. He took an X-ray with me sitting and bending backward. He showed me the X-ray and said “No wonder you’re in so much pain! Your tailbone is 100% dislocated and you have a bone spur on it!!” I burst into tears, so relieved to see I wasn’t crazy that it hurt so bad in this area no one could reach! I recalled that yes I have fallen a few times over the years. Finally a diagnosis from someone who cared, I thought. I clung to it with ever fiber in my being, thankful not to be alone with the pain. Over the next 2 years I flew to NJ 3 times for injections and even a nerve ablation. And no relief!

    Reading Unlearn Your Pain by Dr. Howard Schubiner was the first time my symptoms got better. I’m not pain free, but I can at least function again.

    I’m pretty sure that the remaining stubborn pain is the desperate internal me afraid to totally give up the diagnosis and X-ray. I was SO SURE that it was correct. I could see it with my own 2 eyes! This has been the hardest thing to let go of down to my core. I believe my brain 100% gets that I have TMS. But X-rays sink in deep! I guess I need to internalize the TMS diagnosis the way I did “dislocated/bone spur”. In my mind TMS doesn’t look as tangible. But my brain picked the perfect thing to go after in my body. I’m really hoping this program gives me a way to really soak in the reality of TMS on the deepest level.
     
    JanAtheCPA likes this.

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