Gillis1985
Newcomer
The most disheartening advice I've heard from my doctor is that my pain is caused by my desk job. It felt like I had to choose between being pain-free or working my job. It was even more disheartening when I did eventually quit my job (partly due to pain, partly due to stress) and the pain persisted with no computer use! It was tough during those years that I thought the computer use was causing the pain, because I used to do a lot of unwinding by playing computer games, and I stopped doing this after work because it was just extra computer use that was apparently causing my pain. I bought a sit-stand desk, ergonomic chair, I set timers to do stretches...nothing helped. My whole life shifted and I avoided using the computer whenever possible if it wasn't for work, and then I stopped doing anything that resembled sitting at computer...sitting at a table, watching a movie, etc...because in my mind it felt similar to sitting at a computer. It's sad to look back at the past 10 years of pain and see how basic activities became banned because I thought it was contributing to my pain.
Another disheartening advice, though I guess it was with good intent, is when nothing was helping my back pain and I refused to take pain killers, so my doctor recommended I see a counselor to talk about my mental health (I am diagnosed with anxiety and depression). This was before I really understand TMS or chronic pain, and I felt that I was being called crazy, that I was making up the pain. I remember going to the car and crying, because I had went to the doctor to ask for help and I was told it was all in my head and I needed help she couldn't give me.
While I do think the doctor could have explained things better, I did eventually (not because of my doctor) see a therapist and have been going for a little over two years. It has been incredibly helpful, but I have found through this program that I still have a lot of repressed emotions/experiences that I have refused to talk about with her.
Another disheartening advice, though I guess it was with good intent, is when nothing was helping my back pain and I refused to take pain killers, so my doctor recommended I see a counselor to talk about my mental health (I am diagnosed with anxiety and depression). This was before I really understand TMS or chronic pain, and I felt that I was being called crazy, that I was making up the pain. I remember going to the car and crying, because I had went to the doctor to ask for help and I was told it was all in my head and I needed help she couldn't give me.
While I do think the doctor could have explained things better, I did eventually (not because of my doctor) see a therapist and have been going for a little over two years. It has been incredibly helpful, but I have found through this program that I still have a lot of repressed emotions/experiences that I have refused to talk about with her.