CPPS/IBS/Prostatitis/IC or TMS/MBS

Hello, I am new to this forum. I am looking to talk/share with those who may have similar symptoms.

The symptoms being chronic pelvic pain as in frequent urination, 30x per day, urgency that is about a 9 out of 10 every 30 minutes and at times every 10 minutes, frequent rectum pain, post ejaculation pain that lasts for days and penal pain almost constantly. I don't have "flare-ups", I live in constant pain.

This began over five years ago. I have been treated by Nutritionist's, Chiropractors, Urologists, Psychoanalysts, Physical Therapists, Acupuncturists and Pain Managements Specialists. I have subjected myself to multiple medications and treatments such as Prostate Biopsies, Cystoscopy, Bladder Installations, Colonoscopy, CT Scans, multiple MRI's, Uroflowmetry, and Caudal Epidural Blocks. None of the listed found anything remarkable or had a lasting effect eliminating pain.

I attended Dr. Wise's six day class in California last year and practiced the Wise-Anderson Protocol for a full year before discontinuing it completely. I completed Dr Schubiner's class recently. I have read all of Dr Sarno's books, Dr. Wise's books and just completed reading Steve Ozanich's the Great pain deception.

I am hoping that someone out there has had similar experiences and we can have further discussions.

 

JamesB I haven't had the symptoms your having
but-
Can you tell me how much about yourself, like emotional self you have explored?

It looks like you have a vast amount of teachings on your hands
Can you tell me the protocol your currently doing to combat this issue?

Do you practice meditations and soothing ?

Have you been reluctant in exploring any past or present issues?

Do you get upset easy? Is there someone you cant forgive?

Lets start here, then we can have a discussion ok.

 

Hi James
The pelvic area pain..yes... off and on for maybe 15 years very similar to your symptoms. Current flare-up 6 months and still with me.. and that was the reason I stumbled on this site. Just a novice but Im working on it here and at least my stress levels with the pain have reduced a little.
Leo

 

James,

Do you "believe" your mind is playing a significant role in your pain?

 

Sorry... just removed my reply.... your question was to James not me... was not awake when I checked in......
Leo

 

James B, since you have had medical exams and nothing physical is causing the pelvic pain and frequent urination,
it sure does sound to me like TMS from one or more repressed emotions. The books you've read, Sarno's and Ozanich's and the
others have all the advice for you. Just follow the programs and be patient. When you learn about your repressed emotions and
tell your unconscious mind about them, you will heal.

If you have to urinate often overnight, maybe keep a jar or pot handy and relieve yourself in it, rather than get out of bed often.

Good luck and let us know how your TMS healing is going.

 

Thanks to all for responding, it means a lot to me knowing I am not alone out here. Eric, I can tell you enough about myself to fill a book given the time, so I will start with emotionally I believe I fit the Sarno description of a TMSer to a T. I a perfectionist, I set and have high expectations of myself, I am conscientious, I have high anxiety levels, I wouldn't say I worry I just go over every thought way to much and I am cautious shy and reserved. That's just what comes to mind currently.

What I currently work on is writing unsent letters, some have been sent, journaling my thoughts, reading and re-reading about TMS and doing relaxation/meditation sessions. I practice and listen to the meditations from Dr Schubiner and I also use Dr Wise's Paradoxial Relaxation techniques. I don't do any physical therapy now as I have replaced that with being physically active.

I have been exploring past and present issues working with Dr. Schubiner and on my own and I am not reluctant doing it. I do believe that I am learning and discovering more about myself every day.

I do tend to get upset easily. But I will add that I am learning to let things go that I have no control over and that helps with the anxiety levels.

As far as forgiveness, that's huge at this time. I am wrestling and struggling with that one. I have a daughter that has caused me, my wife, my other children and my extended family an immeasurably amount of grief, sorrow and bad feelings in the past and currently continues doing so every day.

I know that this daughter is causing me to manifest pain to some degree maybe even more than I will admit, but I will not say that she is the only matter in my life that has caused unresolved emotional issues.

 

JamesB, you're doing all the right things. Your daughter sounds like she's the cause of a lot of your TMS pain. She must have her own
emotional problems so she's causing them for you and the rest of the family. What age is she? Does she live with you and the rest of the family?

She may be a "misery loves company" kind of person.

If at all possible, try tuning her out. Abraham Lincoln said his wife drove him nuts, so he just left the house and took a walk and met with his
friends at the barber shop or cigar store and they traded jokes. By the time he came back home, she had stopped giving him noise.

 

Forgiveness is one of my challenges too. My sister has really let me down in supporting me in taking care of my parents. She says the future will be different. I don't believe her. It is hard to forgive when you know it will happen again. I journaled about this and the need for forgiveness but then i wrote it will just happen again and again...then what, then what "then I really will be worthless." I cried and cried after I wrote this. It was so painful but very very insightful. It got to the core of my pain and fear.

 

Walt, thanks for the encouraging words. As for my daughter, lets call her "M", she is 27 and lives in our home with her two children ages 7 & 6. So putting her out gets complicated to say the least. Coincidentally the symptoms began soon after she moved in back in 2007. I will add that the symptoms have progressively increased since that event.

I am almost totally committed to believing that my symptoms are caused by TMS. One of the obstacles I have is that in all of the reading I do not see any case examples or stories about someone having the same symptoms that I do. If this were back, neck or shoulder pain I would have numerous examples to relate to. The main reason I entered this forum is for the possibility that someone would respond saying I know exactly what your talking about. This is kind of like when I have visited MDs for help, they all just looked at me like they were confused and could not relate to what I was presenting. It can get somewhat depressing after awhile.

I have witnessed positive results so far and I am not giving up for sure. I believe that if I can get to a point where my emotions do not go unresolved I can handle anything, even daughter M.

 

JamesB,
Have you tried putting the conditions you list into the search bar on the Forum? I have seen several threads recently of people discussing having the same symptoms that you list.

 

Your getting great advice JamesB,
You already know you have to believe 100 percent from your studies
and I think you hit one of the main issues on the head when you wrote about
daughter M

We all search for someone that has our exact symptoms.
It really doesn't matter if others have the same symptom in
tms healing- You will still heal the same

It does take some longer than others
and I can tell you have that winning heart
your a champion brother- you will win

Ellen has a great idea- I looked in the search engine and found this
on CPPS

http://www.tmswiki.org/ppd/Prostate_Pain

I searched further and found this on IC

http://www.tmswiki.org/ppd/Interstitial_Cystitis_(IC)

The story by Abigail Steidly is awesome.

Dr. James Alexander had this type of pain too
im sure you'll find out about him in the search.
Hes a great tms doctor/psychologist

Steve ozanich talks about IC/PBS in his book on p.348

You can search here to find anything -
http://tmswiki.org/search/

I know Walt is right , and you feel it too.

Family matters are hard issues to resolve, very hard

I have had situations like yours above and if it weren't from my faith

I wouldn't have got through it

That's why I love tms healing so much

what ever your faith, it works just fine with it

ask more and im sure you'll get closer and closer to your answer

as I can tell you have a good heart by letting M stay there,

its our goodist personality- Stay course- The truth will set you free

God Bless

 

Dear Stella, this does indeed sound insightful. I hope that getting to the core of your pain and fear has helped you move past it, and that the crying was cathartic, as only a good cry can be.

Wishing you peace....

 

James, guilt plays a major role in TMS pain. I feel guilt when I don't feel like I have been the perfect daughter, sister, mother, friend, etc.

I also feel guilt when I feel anger or hate toward family members or others. When I first moved my parents to my city 4 years ago I remember saying after a physically and mentally exhausting week "I wish my parents were dead." I told my husband "Aren't I a terrible daughter for feeling this way?" NO, I am not.

I have learned from the TMSwiki readings that anger and hate are perfectly normal. Everyone feels this way. When you feel that anger, hate, guilt just shrug it off saying to yourself this is perfectly normal. I am not a awful person.

Do a search on the wiki on the role of guilt.

 

The TMS is winning by your need to find someone that has your identical symptoms. This is how the TMS distracts and keeps you thinking physical instead of psychological.

When I moved my parents to my city I started having constant urinay tract infections. Then unbearable bladder pain (Interstitial Cystitis). I had constant urinary urgency and pain. Then I had cramping in my abdomen, then the cramping moved to my glutes with painful trigger points, then terrible tightness in my inner thighs, my IT band, then myofascial pain all over and it just went on and on moving all over the place.

Thank goodness my physical therapist recommended Dr. Sarno. She changed my life forever.

 

Have you read Louise Hay's book 'You Can Heal Your Life' and/or 'Decoding the Secret Language of your Body' Martin Rush? They both deal with how literal the body can be with pain/dysfunction. Like urinary problems being because you are 'pissed off' at a situation or person in your life. I have had many skin problems from childhood onwards, and that is because of people/situations 'getting under my skin' - and they certainly do! I have often found symptoms I have been struggling with in the Hay book - and the reason has usually been correct.
Relatives are a minefield - we love 'em but we hate them too! It's good you are supportive to your daughter, but she ought to be supportive in some way to you too. Even if this is just respecting your need to have some space/peaceful time/quality time with spouse. We all need our 'own' time - make sure you get it.

 

Stella, thanks for the concern and thoughts. I do have anger conscience and unconscious over the events of life. I have been working at resolving these emotions for some time now. Working through Dr. Schubiner's class I have been able to address my anger using the ISTDP framework resolving much of the anger I have had. Would I say that my anger is gone, no way! New events in life give rise to increased levels of anxiety almost daily. But I will continue working on the anger knowing that it is not healthy and needs to be resolved for my healing.

You suggested that my search for someone else in my shoes may be giving TMS a foothold is interesting and I will consider that as a possible issue. Truthfully I do not think so. I continually search for information about my symptoms adding to my knowledge of this disorder. Actually your response to me gives me more reason to find others with similar symptoms. You mentioned that your symptoms moved all over the place. That is the typical statement found in everything I read. My major area of pain has not moved only become more intense over the last 5 years. It does not go away for a period of time and then flair-up as some say, it's just always there, same place. The only change is sometimes it can become more debilitating. See I am not hearing anyone else state in book or anywhere else similar experiences. Maybe someone stating that they have IC for a period but not the Prostate/Penal pains I have. Even in Dr. Schubiner's group clinic I was the only one who had these symptoms. Therefor it is difficult to shake the thought that there is a structural problem. I do entertain the thought that during all of the procedures I allowed to be preformed on me additional issues resulted.

This is not to say that I don't believe that TMS is responsible for my pain. Before I began down the Mind/Body disorder path I had a long list of symptoms that I presented to every health professional. Most of them were baffled without any hope, help or answers. Just reading Sarno books and working with Dr. Schubiner 90% of my symptoms and pain went away. So TMS is real, my mind was causing a tremendous amount of pain which I am now free of, I thank God for the discovery of Dr. Sarno. I have recovered to the point of a somewhat functioning life, but I have a ways to go.

Thanks Hecate, I have not read anything by Martin Rush but I will look into it. Your post made me laugh remembering what Dr. Schubiner said to me about urinary frequency. He told me the reason I have such frequency is that I am pissed off. You are both right, I'm pissed off that I am in this condition.