Lauren.R89
Peer Supporter
Warning not to read on if you’re bothered by things surrounding Interstitial Cystitis. I just know as a person dealing with TMS, that it doesn’t take much to suggest a symptom. Also, second warning, female issues - in part- to follow.
I had a laparoscopic procedure yesterday to remove cysts on my ovary (This was mostly because I lost my other ovary to cysts so I want to keep the one healthy until I can have kids). Anyway, they asked for permission to check things out while they were in there since I do get some pelvic pain so I was like “sure” bc they are already in there, might as well. ANYWAY while looking in my bladder they saw “Hunner’s lesions” which appears to be a rare but a definitive way they diagnose IC. I have such a hard time with this because - I know interstitial cystitis is often psychogenic- BUT I also do have these less common ulcers. I want so much for this to be TMS but I also don’t want to foolishly ignore something they saw just because I don’t like the diagnosis.
Anyway, I don’t have a follow up to discuss results until the 17th. Lots of time to just think. So I’ve just been crying a lot - feeling like I have another diagnosis... but one with a rare structural component.
I need a little hope. I feel like... I don’t know what to do.
Hopefully I explained this ok. It’s so difficult when only a handful of doctors really understand psychogenic pain.
I had a laparoscopic procedure yesterday to remove cysts on my ovary (This was mostly because I lost my other ovary to cysts so I want to keep the one healthy until I can have kids). Anyway, they asked for permission to check things out while they were in there since I do get some pelvic pain so I was like “sure” bc they are already in there, might as well. ANYWAY while looking in my bladder they saw “Hunner’s lesions” which appears to be a rare but a definitive way they diagnose IC. I have such a hard time with this because - I know interstitial cystitis is often psychogenic- BUT I also do have these less common ulcers. I want so much for this to be TMS but I also don’t want to foolishly ignore something they saw just because I don’t like the diagnosis.
Anyway, I don’t have a follow up to discuss results until the 17th. Lots of time to just think. So I’ve just been crying a lot - feeling like I have another diagnosis... but one with a rare structural component.
I need a little hope. I feel like... I don’t know what to do.
Hopefully I explained this ok. It’s so difficult when only a handful of doctors really understand psychogenic pain.